Patkid Posted September 19, 2005 Share Posted September 19, 2005 Well, Our news is somewhere between good and troubling so I will post here in general. Doctor took a lot of time with us and explained some things: *Brian's cancer is behaving much more like small cell lung cancer than non small cell. *That is why he chose to go w/ CPT-11 and Carboplatin when Brian experienced rapid progression of the disease. *He usually uses CPT-11 with Cisplatin for small cell. *Brian had Cisplatin w/ VP-16 for his first protocol. *Doctor has never had anyone on carbo/cpt-11 combination. *So for this doctor we are blazing the trail. * Doc is very concerned about the neuropathy and how quickly it is progressing. * Doc is very concerned about the 'mental withdrawal from his surroundings' experienced last week. * Doc is very concerned about lab work. HOWEVER THERE IS SIGNIFICANT REDUCTION IN TUMOR VOLUME & DENSITY * So the plan: No more Carboplatin.............too risky w/ Neuropathy and other side effects. Brian will have CPT-11 alone (but doc is going to do some research to see if there is another agent he may want to add in place of the Carboplatin) for the next three Thursdays. Then no chemo till after Greg's wedding. (Doc said he will support Brian w/ whatever he can, medically, to help him feel strong enough to go ~ blood products, or whatever............) Then scan when we get back. Then plan moving forward when we get the scan results. We are very very very relieved. We feel very blessed. When Brian began to celebrate the good news a bit; Doc warned us to remember that Brian got this type of reduction after the first 2 rounds of Cisplatin/Vp16 and that his cancer is very aggressive. He did rain on our parade a bit. But right now we are simply praising our Father in Heaven for this good news which we so sorely needed today and we are simply trusting that He will continue to hold us as we move into the future. Today is all we are sure of and today is GOOD. To all of our faithful friends and comrades on LCSC: THANK YOU FOR YOUR PRAYERS, for all positive thoughts and for your loving support. You see us through. This is a good day and we are not going to look beyond today, except that I am going to book our air travel for the wedding. We are trusting God to take us there...............though He may want us to use an earthly flight.......... Lot of love and continuing prayer that our family here on this site can feel some of the peace that is in our hearts today. P Quote Link to comment Share on other sites More sharing options...
cindi o'h Posted September 19, 2005 Share Posted September 19, 2005 a peaceful heart is a very good thing, Pat. Doesn't get any better than that. Sounds like Brian's onc. is a dedicated scientist. Savor this glory. love, Cindi Quote Link to comment Share on other sites More sharing options...
LynneH Posted September 19, 2005 Share Posted September 19, 2005 THERE IS SIGNIFICANT REDUCTION IN TUMOR VOLUME & DENSITY Okay, you have made me cry, but these are the best tears I've had in a long time!!!! I read the other stuff and that is info for the doctor to consider so he can give Brian the Best Treatment. Tumor reduction means it is working!!!! This is the best. With love, Lynne Quote Link to comment Share on other sites More sharing options...
Ann Posted September 19, 2005 Share Posted September 19, 2005 Pat...I think this is good news! It sounds like Brian has a very good and dedicated doctor! Yes, Pat, today is a good day! Quote Link to comment Share on other sites More sharing options...
mamasbabygirl Posted September 19, 2005 Share Posted September 19, 2005 Ah yes, enjoy, savor, and relax now..I am so glad and thankful for this good news. Pat, what is the concern with his lab work? Quote Link to comment Share on other sites More sharing options...
Don Wood Posted September 19, 2005 Share Posted September 19, 2005 Pat and Brian, know that you continue in my prayers. You have some good news and you have a plan for the other news. I sure do like your onc -- a jewel. Don Quote Link to comment Share on other sites More sharing options...
CharlieD Posted September 19, 2005 Share Posted September 19, 2005 Pat and Brian, Great news. Celebrate. A lot of prayers have been answered. CharlieD Quote Link to comment Share on other sites More sharing options...
rogfam Posted September 19, 2005 Share Posted September 19, 2005 Praise GOD!! Your faith and trust are in the right place; He WILL most definitely take care of you both! Quote Link to comment Share on other sites More sharing options...
TAnn Posted September 19, 2005 Share Posted September 19, 2005 Pat and Brian, Significant reduction!! Hooray! What better way to celebrate than going to your son's wedding! Prayers work!!!!! You have a great doctor. Best wishes to the newlyweds and have a great time. TAnn Quote Link to comment Share on other sites More sharing options...
Frank Lamb Posted September 19, 2005 Share Posted September 19, 2005 Pat and Brian, way to go guys.Sounds like good news to me.Also seems as if you have a very good dr. Quote Link to comment Share on other sites More sharing options...
melindasue37 Posted September 19, 2005 Share Posted September 19, 2005 Pat and Brian, Wonderful news! Book the flight....you two have a wedding to look forward to. Yippeeeeeee I found this little quote I wanted to share with you..."The best thing about the future is it only comes ONE day at a time." October will be here before you know it... PS. Don't you have a birthday coming up Pat? I remember you saying the first day of Fall. It has to be in the next day or two right??? Melinda Quote Link to comment Share on other sites More sharing options...
SBeth Posted September 19, 2005 Share Posted September 19, 2005 Pat & Brian, Bill and I are so very very happy for you both. This is good news and it is good for you to plan and get those airline reservations. I cannot wait until we are able to exchange our "Father of the Bride/Groom" pictures. Lots of love, hugs and prayers to you both! Quote Link to comment Share on other sites More sharing options...
Botley Posted September 19, 2005 Share Posted September 19, 2005 Thoughts and Prayers are with you both! Hope he gains some strength and can enjoy the wedding! You both deserve a really good time with family and friends! Take Care, Botley Quote Link to comment Share on other sites More sharing options...
Kasey Posted September 19, 2005 Share Posted September 19, 2005 BIG sigh of relief here, Pat. One day at a time is a great philosophy. Sometimes easier said than done, huh? I must have missed info on the wedding. If up to it, how about some details? If you already did post...sorry I didn't see it. Will have to go hunting. At any rate, glad the doc takes so much time with/for you. Not everyone experiences that . For now I am sending up prayers of thanks and joy! May success continue. Much love, Kasey Quote Link to comment Share on other sites More sharing options...
daggiesmom Posted September 19, 2005 Share Posted September 19, 2005 I'm so glad to read the good news post about Brian. Definitely get those airline tickets and continue to look to the future. The doctor sounds very good and supportive. Wonderful. Keep smilin' Joanie Quote Link to comment Share on other sites More sharing options...
kitkathi Posted September 19, 2005 Share Posted September 19, 2005 Pat & Brian, So glad there is some good news!! Praying for continued success and that the doc's come up with a new combo. Kathi Quote Link to comment Share on other sites More sharing options...
shineladysue Posted September 19, 2005 Share Posted September 19, 2005 Pat and Brian, I'm so happy to read about your good news and it sounds like Brian has a wonderful oncologist. Dwell on the positive and trust in your doctor and of course in God. Draw strength from our continued prayers. We are all pulling for you. Love and Prayers, Sue Quote Link to comment Share on other sites More sharing options...
bunny Posted September 19, 2005 Share Posted September 19, 2005 I'm crying too. doesn't have to be perfect, we'll take darn good news. I love your doctor, I love you both. you are a pillar of faith and an example to all of us of fighting the good fight. I'm woo-hoo'ing. xoxo bunny Quote Link to comment Share on other sites More sharing options...
Addie Posted September 19, 2005 Share Posted September 19, 2005 Grab the good news and run with it, honey! I'm so happy to hear "significant reduction"....SO happy! Ride on this wave of good news and happiness as long as you can. It's good for the soul...you and Bri will draw strength off of it. Rent a funny movie and laugh and enjoy yourself right on thru to tomorrow...and then maybe the next day...and the next...and the next.... Love you guys. Hang in!! And yes....I want to know about that birthday too...isn't the 22nd the first day of fall this year....huh, huh, huh? Is that your birthday, huh, huh, huh? Woo hoo....grab your forks people we got back to back birthdays and lots of cake!! mine is the 21st Quote Link to comment Share on other sites More sharing options...
Patkid Posted September 19, 2005 Author Share Posted September 19, 2005 Addie Cake !!! Mine is Wednesday. Yup 9-21-47 I guess it is close enough to the first day of fall for Apple Crisp. Are we birthday twins? Quote Link to comment Share on other sites More sharing options...
hopeandstrength Posted September 19, 2005 Share Posted September 19, 2005 Once again, I love the "significant reduction"! Now, enjoy today and that upcoming wedding!! Cathy Quote Link to comment Share on other sites More sharing options...
DianeFox Posted September 19, 2005 Share Posted September 19, 2005 Praises and yahoos for the significant reduction....now on to the birthday and wedding...Diane Quote Link to comment Share on other sites More sharing options...
Maryanne Posted September 19, 2005 Share Posted September 19, 2005 What could I say. The power of prayer is wonderful. I am so thrilled for Brian and you!!! Smiles all around. Looks like we have some celebrating to do on the 21... Addie and you. Cindi better keep the bar open all night. WOOOOOOOOOOOOOOOOOOOOOHOOOOOOOOOOOOOOOOO!!!! Maryanne Quote Link to comment Share on other sites More sharing options...
Ry Posted September 19, 2005 Share Posted September 19, 2005 I am glad all went well. Pass the cake! Our son Tyler is 18 on the 21st. Popular day! Quote Link to comment Share on other sites More sharing options...
Leslie221 Posted September 19, 2005 Share Posted September 19, 2005 Pat, This merits a WOOOOHOOOO!!! Imagine if you got all that news but DIDN'T have the SIGNIFICANT reduction! And you've got a doctor who obviously is committed to Brian's well-being. Enjoy the wedding then regroup for another attack on that stupid cancer. Today is all we are sure of and today is GOOD. That works for me! Leslie Quote Link to comment Share on other sites More sharing options...
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