InCalifornia Posted November 5, 2005 Share Posted November 5, 2005 Hello Everyone:-) I believe the last time I posted here was around the first week of August 2005, when our brother was told that he had a few weeks to 3 months to live. He was diagnosed with NSCLC in September 2004... The primary tumor was huge (right lung) inoperable and was compressing the heart. He was treated with radiation first to shrink the tumor and a combination of Cyplastin and something else (can't recall the name).... Unfortunately the chemo was cancelled due to low blood counts... When he was feeling better they started him on taxotere... He was only able to do 3 treatments (out of 6) and developed pneumonia... He was in the hospital for almost 3 weeks with pneumonia.... and finally was given blood transfusions in order to get rid of it since he was not responding to any of the antibiotics... When he got healthier they started him om Alimta... He was bale to complete the Alimta treatment but unfortunately right after he was finished with the treatment he ended up in the hospital due to neurological problems.... At the time we didn't know if "what he was experiencing" were side effects of ALIMTA or maybe it was something else... I had my own suspicions that the cancer might have spread to the brain. His legs were numb, he was nauseated a lot, started losing his balance, would become disoriented, he was trembling/shaking and eventually starting having seizures, also a lot of pressure and pain on the forehead and right eye was painful to the touch... also he had blurry vision from that eye! At the ER they confirmed that the ct scan showed lesions to the brain. He tehn was admitted to the hospital and the next morning an MRI wa done to the head... The doctor called us that evenning in his office and told us that our brother had multiple braim tumors and that there was nothing they could do at this time and that he had less than 3 months to live. We were devastated... In total shock! (This happend on August 1st 2005) He doesn't know he has those brain tumors, his doctor gave him radiation to the brain also started him on Decadron for the brain edemas, and decided to give him a chemo on a pill form called TARCEVA... Up to this date our brother is still alive, still walking, still functioning, his brain activity is normal, he is still takinfg decadron daily and he is on he is bout to complete his second month of tarceva... Everyday is a gift.... He has a lot of sypmtoms now such as muscle pain, his walking has slowed down quite a bit, he has shaking periods, he feels llots of pressure on his forehead and right eye..,, But he still alive,it's been over 3 months and I still BELIEVE with all my heart that GOD can change all of this in the blink of an eye.... PLEASE KEEP HIM IN YOUR PRAYERS!!!! EVERYDAY IS A GIFT AND I WANT HIM TO ENJOY MANY MORE DAYS WITH ALL OF US THAT LOVE HIM!!! GOD BLESS YOU ALL!!! Quote Link to comment Share on other sites More sharing options...
Kasey Posted November 5, 2005 Share Posted November 5, 2005 MANY prayers being offered up for your brother. I am seeing LOTS of wiggle room here for a miracle! That will be my prayer! Kasey Quote Link to comment Share on other sites More sharing options...
kamataca Posted November 5, 2005 Share Posted November 5, 2005 Wow! What an amazing story. I will certainly keep your brother in my prayers. There are miracles happening all the time on this board. I can't see any reason why your brother can't join the ranks! Kelly Quote Link to comment Share on other sites More sharing options...
carolhg Posted November 5, 2005 Share Posted November 5, 2005 God is still in the healing buisiness. Keep looking for a miracle. My prayers are with you and your brother and family. Carol Quote Link to comment Share on other sites More sharing options...
sharyn Posted November 5, 2005 Share Posted November 5, 2005 Your brother is definetely in my prayers. And don't forget to thank God for this gift of time he has given you. Quote Link to comment Share on other sites More sharing options...
eppie Posted November 5, 2005 Share Posted November 5, 2005 Prayers on the way to CA. Hang in there, guys! We're pulling for ya! Quote Link to comment Share on other sites More sharing options...
pammie Posted November 6, 2005 Share Posted November 6, 2005 Will be praying that God will being total healing to your brother. So thankful he is still in the fight. pammie Quote Link to comment Share on other sites More sharing options...
Frank Lamb Posted November 6, 2005 Share Posted November 6, 2005 We will have your brother in our prayers along with you and all your family. Quote Link to comment Share on other sites More sharing options...
Don Wood Posted November 6, 2005 Share Posted November 6, 2005 Prayers comin'. Quote Link to comment Share on other sites More sharing options...
Nushka Posted November 6, 2005 Share Posted November 6, 2005 Prayers are on their way. I hope your brother continues to get better and that his pain etc can be taken care of. Miracles do happen. Nina Quote Link to comment Share on other sites More sharing options...
Carleen Posted November 6, 2005 Share Posted November 6, 2005 I will be praying for God's blessings and miracles for your brother, and for you and your family. Never give up hope and faith; miracles can and do happen every day. PS. I see your brother had whole brain radiation, but have they discussed gamma knife as well. It could at least releive some of the pressure and pain if there is a primary tumor causing the eye pain. Plus depending on the tumors themselves it could be another option. Brain lesions should not be a death sentence. My husband was told he had over 13 brain lesions, and that was over 1 year ago. He had WBR, but his doctors also said if that did not work, and they started growing, Gamma Knife was always a second line defense option. And if that didn't help that we could try another thing called Tomo-(something or other). Keep looking and keep fighting, your brother can still beat this thing. Quote Link to comment Share on other sites More sharing options...
MilliBr1 Posted November 6, 2005 Share Posted November 6, 2005 Prayers for your brother. Quote Link to comment Share on other sites More sharing options...
Don M Posted November 6, 2005 Share Posted November 6, 2005 You and your brother have my prayers. Don M Quote Link to comment Share on other sites More sharing options...
Fall54 Posted November 6, 2005 Share Posted November 6, 2005 I would just like to add my prayers for you're Brother and family that you amke many many more memories. God Bless you all, Jane Quote Link to comment Share on other sites More sharing options...
slinaresholz Posted November 6, 2005 Share Posted November 6, 2005 Best wishes for you and your brother. Prayers and hugs for both of you. I have been worried about my cancer spreading to my brain every time I have a headache. It may be from my blood pressure pills. It seems to happen as soon as I take them. Within twenty minutes I get the headache. I'm glad they're doing something to help your brother. Hope the new treatment helps. Sharon Quote Link to comment Share on other sites More sharing options...
J.C. Posted November 6, 2005 Share Posted November 6, 2005 Prayers for your brother are on the way, That each day may be better. J.C. Quote Link to comment Share on other sites More sharing options...
Ellen B. Posted November 6, 2005 Share Posted November 6, 2005 Prayers for you and your brother! Ellen. Quote Link to comment Share on other sites More sharing options...
RandyW Posted November 6, 2005 Share Posted November 6, 2005 Praying For Recovery In North Carolina Quote Link to comment Share on other sites More sharing options...
Leslie221 Posted November 6, 2005 Share Posted November 6, 2005 Sending you, you brother, and all your family lots of caring thoughts and strength. See, most of the time prognosis is only a guess. Hope your brother responds well to the Tarceva (I'm a big fan) and will have many good days ahead of him. Leslie Quote Link to comment Share on other sites More sharing options...
Kaffie Posted November 7, 2005 Share Posted November 7, 2005 More prayers on the way and never forget Miracles DO happen. Kathy Quote Link to comment Share on other sites More sharing options...
shineladysue Posted November 7, 2005 Share Posted November 7, 2005 My prayers coming for your brother and your family. Sue Quote Link to comment Share on other sites More sharing options...
bunny Posted November 7, 2005 Share Posted November 7, 2005 I am glad to hear your brother is still with it and in your life. keep the faith, and we will keep both of you in our prayers. xoxo amie Quote Link to comment Share on other sites More sharing options...
Ann Posted November 7, 2005 Share Posted November 7, 2005 I will certainly keep you and your brother in my prayers. Thanks for giving us an update. Always keep believing in miracles! Quote Link to comment Share on other sites More sharing options...
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