bunny Posted November 28, 2005 Share Posted November 28, 2005 so suki goes back to the surgeon on Monday, where she'll have an x-ray, first. I am very curious why no PET/CT but she's happy to not have to do it, so I'm not pushing. I guess the x-ray is primarily to monitor her remaining lung. she still has not really regained her speaking voice since she was on a vent. for the pericardial window surgery. having checked everything else out, her doctors now attribute it to a shocked and confused diaphragm and weakened chest muscles. she's doing physical therapy, pulmonary therapy and will actually start voice lessons - like, singing - soon. let's all say a prayer for a sound-proof room. she told me she did 3/4 of a mile on the treadmill this morning, and she's weaning off the O2 when she's resting (obviously, uses it to exercise, etc.) she told me this morning she is starting to feel like she is "in the world" again, having some success at her business, and so on. here's her website, just for fun: http://www.sukidesigns.com/ oh, and she's been on Tarceva for 2 months now and has almost no side effects. just some dry skin. the nurses at her oncs office assured us that there is no correlation between side effects and effectiveness, so I am glad she's not suffering and I trust it's doing what it's supposed to. so that's it, that's the latest on Suki, the One-Lung Wonder. xoxo bunny Quote Link to comment Share on other sites More sharing options...
cindi o'h Posted November 28, 2005 Share Posted November 28, 2005 Go Suki! You got a fan club here! Cindi o'h Quote Link to comment Share on other sites More sharing options...
hopeandstrength Posted November 28, 2005 Share Posted November 28, 2005 Good job, Suki! I like the idea of voice lessons...I could use some myself! Cathy Quote Link to comment Share on other sites More sharing options...
melindasue37 Posted November 28, 2005 Share Posted November 28, 2005 Yippeeeee......so glad to hear that Tarceva is working! Sending you lots-a-luck for a clean x-ray....and even MORE luck on the singing lessons. But, heck, as long as she is enjoying herself who really cares that she is breaking all the windows and glasses in the house. Isn't that what they make plastic and paper plates for anyway??? Warm Hugs, Melinda Quote Link to comment Share on other sites More sharing options...
kimblanchard Posted November 28, 2005 Share Posted November 28, 2005 Sounds GREAT!!!! Is wonderful to hear that she is feeling like the living again....good sign. Luv jim Quote Link to comment Share on other sites More sharing options...
Shar Posted November 28, 2005 Share Posted November 28, 2005 It all sounds good to me, lucky I am in Oz and can't hear the singing!!!!! Great news though!!! Sharon Quote Link to comment Share on other sites More sharing options...
Patkid Posted November 28, 2005 Share Posted November 28, 2005 Awesome!!!! Hugs to Suki. P Quote Link to comment Share on other sites More sharing options...
MilliBr1 Posted November 28, 2005 Share Posted November 28, 2005 What a great post! So happy to hear your mom is doing so well! Quote Link to comment Share on other sites More sharing options...
shineladysue Posted November 28, 2005 Share Posted November 28, 2005 Bunny, this is a wonderful report on Suki. Tell her she is in our prayers and you are, as well. I hope you know that.. Love, Sue Quote Link to comment Share on other sites More sharing options...
Geri Posted November 28, 2005 Share Posted November 28, 2005 Good news about your mom's health. Enjoyed the website, what creative work. Geri Quote Link to comment Share on other sites More sharing options...
daggiesmom Posted November 29, 2005 Share Posted November 29, 2005 Boy, I'm so glad to hear you're feeling better. And that treadmill is a great idea! Now, soon, you'll be singing OPERA! Well, that goes right along with your "creativity" gene you've got. What great work you do! God bless you, keep goin'!!! Joanie Quote Link to comment Share on other sites More sharing options...
dadstimeon Posted November 29, 2005 Share Posted November 29, 2005 Aime-- So glad everything is going well for your mom and you. Rich Quote Link to comment Share on other sites More sharing options...
Connie B Posted November 29, 2005 Share Posted November 29, 2005 Good Job Suki! The treadmill did the trick for me in helping me to rebuild my lung capacity. Glad to hear things are starting to look up for you. It's been a long time a coming! Thanks Bunny for the good update. I'm really happy to hear the Treceva is doing it's job! That's REALLY GREAT NEWS! Now could you turn that treadmill south west and get a running start and help me to my closets??? Loved the website! Hugs to you and mom, Connie Quote Link to comment Share on other sites More sharing options...
Leslie221 Posted November 29, 2005 Share Posted November 29, 2005 Hi Bunny! I went to your mom's website - WOW!! I'm really impressed by someone who has a talent and actually uses it. Does she make house-calls in NE Colorado? Hope Suki will be talking at full-volume soon. She seems like such a determined woman, I'd be surprised if she let any of this stand in her way. (Although, there is a part of me that thought, "Hmmmm, a mom who can't talk too much. This is a problem?" ) Leslie Quote Link to comment Share on other sites More sharing options...
Ann Posted November 29, 2005 Share Posted November 29, 2005 Bunny and Suki...it sounds like everything is going great! Bunny...don't kid yourself. I know you would be absolutely thrilled for your mom to belt out a song for all the world to hear! Heck with a sound proof room! Suki, just keep up this great progress!! Quote Link to comment Share on other sites More sharing options...
LynneH Posted November 29, 2005 Share Posted November 29, 2005 Wonderful news Suki! My, could you lend her out to me as My Mother for a Day? Do tell, are your closets as wonderful as the closets on your Mom's website? She is one talented lady! Quote Link to comment Share on other sites More sharing options...
bunny Posted November 29, 2005 Author Share Posted November 29, 2005 Lynne, I don't let my mother NEAR my closet. she'd disown me if she saw it. Quote Link to comment Share on other sites More sharing options...
missyk Posted November 30, 2005 Share Posted November 30, 2005 YEAH Suki!!!! Wonderful to hear! And so glad she's not having any of the "bad" side effects on the Tarceva!!! Quote Link to comment Share on other sites More sharing options...
kamataca Posted December 1, 2005 Share Posted December 1, 2005 Suki rocks! She's going to have to stay far away from my closet as well. Glad to hear she's doing so great. The website is fabulous, too. Kelly Quote Link to comment Share on other sites More sharing options...
Maryanne Posted December 1, 2005 Share Posted December 1, 2005 SUUUUUUUKI SUUUUUUUUKI, she rules the roost. Great news Bunny, Keep it coming!!! Maryanne Quote Link to comment Share on other sites More sharing options...
Don M Posted December 2, 2005 Share Posted December 2, 2005 Bunny: it is great to see that Suki is doing better. don M Quote Link to comment Share on other sites More sharing options...
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