Flowergirlie Posted February 21, 2007 Share Posted February 21, 2007 Hello to all! I am still here but times have been so tough. My husband finished his 6 rounds of chemo January 4 and we had the CT just a week ago to show the progress. It was not what we had hoped for. The cancer has progressed to the other lung but he is feeling pretty good and we are thankful for every day he feels good. He does not want to know his prognosis still and has decided he is still alive because he doesn't know he is supposed to be dead. He said he wants to keep it that way. Well, that is one way to look at it and I respect his wishes, so long as they do not affect him adversely in any way. It is hard to balance everything and also to stay positive but I do the best I can. I feel so overwhelmed and I have nightmares nightly but just hang in there and do the best I can with a smile on my face as much as possible. Quote Link to comment Share on other sites More sharing options...
Suzie Q Posted February 21, 2007 Share Posted February 21, 2007 Good to see you post, though I wish it were with better news. Keeping both of you in my thoughts and prayers. BTW, is there a new plan in place, in light of the dz progression? ~Karen Quote Link to comment Share on other sites More sharing options...
Flowergirlie Posted February 21, 2007 Author Share Posted February 21, 2007 Oncologist would like to wait until the last minute to do any additional treatment (chemo). Since it is not curative, quality of life is important. Quote Link to comment Share on other sites More sharing options...
Suzie Q Posted February 21, 2007 Share Posted February 21, 2007 You guys hang in there! Your husband sounds like a very determined man (with a VERY determined wife at his side)! Quote Link to comment Share on other sites More sharing options...
Heather_T Posted February 21, 2007 Share Posted February 21, 2007 I was thinking of you the other day wondering how everything was. I to wished for better news. Hang in there my thoughts and prayers are with you. Quote Link to comment Share on other sites More sharing options...
terriep Posted February 21, 2007 Share Posted February 21, 2007 Prayers continue for your family. Quote Link to comment Share on other sites More sharing options...
Don Wood Posted February 21, 2007 Share Posted February 21, 2007 I know this is a difficult time for you. Hang in there. Thanks for giving us an update. Don Quote Link to comment Share on other sites More sharing options...
pewjumper Posted February 21, 2007 Share Posted February 21, 2007 Flowergirlie, I've thought of you and your husband often and I'm so sorry you didn't get the news we'd all hoped for. Hang in there. Mitchell Quote Link to comment Share on other sites More sharing options...
carolhg Posted February 21, 2007 Share Posted February 21, 2007 I am so sorry that you did not get better results from treatment. My prayers for the both of you for comfort and strength. Carol Quote Link to comment Share on other sites More sharing options...
wendyr Posted February 21, 2007 Share Posted February 21, 2007 So sorry you didn't get the result you were hoping for. I pray they will come up with the right chemo cocktail for your husband. Hang in there wendy Quote Link to comment Share on other sites More sharing options...
Mendy Posted February 21, 2007 Share Posted February 21, 2007 I was just thinking about you this morning and wondering how it was going for your husband. Like everyone else, I am sorry that your news is not better. How are your kids holding up? I admire you for being so strong and brave. Keep staying positive and enjoy your time together. Mendy Quote Link to comment Share on other sites More sharing options...
hockeyma Posted February 21, 2007 Share Posted February 21, 2007 Hi I was thinking and wondering about how you guys were making out too. My husband does not know any of his updated prognosis either., it is harder on me as I am sure it is harder on you in that aspect too. Stay strong - that is the big thing. We have no idea as to what to expect in the future - it is like a big roller coaster ride. Quality is important. All the best, Heather Quote Link to comment Share on other sites More sharing options...
TracyD Posted February 21, 2007 Share Posted February 21, 2007 I had been wondering about you lately. I am sorry that you didn't get the news you were hoping for. You and your husband are in my thoughts and prayers. Tracy Quote Link to comment Share on other sites More sharing options...
laban Posted February 21, 2007 Share Posted February 21, 2007 You are so strong and brave. I know what you are going through as my husband has refractory sclc that has returned to his bones. It's so sad to see someone so young and vibrant go through this. It's not fair. You are your husband are such a lovely young couple and should have many happy years together. This helps me when I am really down. God grant me the Serenity to accept the things I cannot change; Courage to change the things I can; and Wisdom to know the difference Quote Link to comment Share on other sites More sharing options...
needhope Posted February 21, 2007 Share Posted February 21, 2007 Flowergirlie, I was wondering how your husband was doing. I am sorry that the disease has progressed but it is good to know that your husband is feeling fine. I pray that the next plan provides the two of you with more hope. Rochelle Quote Link to comment Share on other sites More sharing options...
lc46 Posted February 21, 2007 Share Posted February 21, 2007 Hi I'm sorry to hear the results were not what you were hoping for. My Mom also has Small Cell Extensive. I have read all of your posts and feel so bad for your family. I am hoping because he is young and healthy otherwise that he can beat this!! Stay positive-I know that has done wonders for my Mom and I. Take it one day @ a time and hopefully it will stay stable for awhile and then you can start some new chemo that will shrink it some more. Dar Quote Link to comment Share on other sites More sharing options...
trish2418 Posted February 21, 2007 Share Posted February 21, 2007 You're amazing! Your husband is so lucky to have you. Trish Quote Link to comment Share on other sites More sharing options...
Don M Posted February 21, 2007 Share Posted February 21, 2007 I am sorry you did not get better news, but as you say, your husband still feels good and that is something. I hope the next treatment brings good results. don m Quote Link to comment Share on other sites More sharing options...
ma's kid Posted February 21, 2007 Share Posted February 21, 2007 You and your husband remain in my thoughts and prayers. Libby Quote Link to comment Share on other sites More sharing options...
asmakis Posted February 21, 2007 Share Posted February 21, 2007 I just wanted to tell you that I admire your positive attitude. There are so many days that I am so darn negative because I'm letting my dad's cancer bring me down. I hope that you are your husband continue to stay positive. Sending prayers your way. Warmly, Amanda Quote Link to comment Share on other sites More sharing options...
Chanwit Posted February 22, 2007 Share Posted February 22, 2007 My wife never knew what the doctor was writing in his reports and what the rumors were in the office and on the hospital floor. She never knew they were saying weeks and then months. I think that is why she is still alive today 1 year and counting after DX and start of treatment. Take care of yourselves - happily - Chanwit Quote Link to comment Share on other sites More sharing options...
ztweb Posted February 22, 2007 Share Posted February 22, 2007 Stay strong! We are here for you. Jen Quote Link to comment Share on other sites More sharing options...
teriw Posted February 23, 2007 Share Posted February 23, 2007 I've been looking for an update from you. Your story has always touched me since I came on the board. Our hubbies were diagnosed around the same time. I'm sorry that you didn't get the results you hoped for. You've all been through so much. But I can hear the strength in your words -- you stay strong and know there are lots of people out here thinking of you all the time. For what it's worth, I think your hubby has the right attitude. Quote Link to comment Share on other sites More sharing options...
kamataca Posted February 23, 2007 Share Posted February 23, 2007 When I saw your subject line, it made me think of Langston Hughes's poem "I'm Still Here" I been scared and battered. My hopes the wind done scattered. Snow has friz me, Sun has baked me, Looks like between 'em they done Tried to make me Stop laughin', stop lovin', stop livin'-- But I don't care! I'm still here! Sound familiar? I love that one. I love the simple defiance of still being here, despite the odds. Stay strong! You are in my prayers. Kelly Quote Link to comment Share on other sites More sharing options...
Flowergirlie Posted February 24, 2007 Author Share Posted February 24, 2007 Thank you! That was so thoughtful and appropriate! Quote Link to comment Share on other sites More sharing options...
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