spicysashimi Posted March 2, 2007 Share Posted March 2, 2007 Hi everybody, Had an MRI of my spine today since I have been complaining about sciatica-type pain and discomfort and I have been worrying about spinal cord compression. I have a doctor/friend/oncologist who always gets the reports before my doctor does, so she called me up. No spinal cord compression and nothing that needs urgent treatment. I have disease in T11, L3(?) which I already knew about, but also in S1 and S2, which is apparently my butt bones - no wonder! Also, noticed disease in illium and right hip bone. She also said one tumor in the back bone is "heading out," but apparently, its heading anteriorly (towards the inside of my body [away from spine]). While I am happy that there is nothing pressing against my spine, I fear I may have progressed. I am trying to hold off the anxiety until my doctor, who has more experience and access to all my old scans, can give it to me straight, but I don't remember anything in my tailbone and I've been hoping a) for some residual chemo effect and tarceva might shrink some disease. aaron Quote Link to comment Share on other sites More sharing options...
Jyoung20 Posted March 2, 2007 Share Posted March 2, 2007 ((Aaron)) Praying for some good results. God Bless!! Jamie Quote Link to comment Share on other sites More sharing options...
Ry Posted March 2, 2007 Share Posted March 2, 2007 Crossing my fingers for you Spicy and hoping all is well. Quote Link to comment Share on other sites More sharing options...
Kasey Posted March 2, 2007 Share Posted March 2, 2007 My wish.............only the most positive of results. Kasey Quote Link to comment Share on other sites More sharing options...
trish2418 Posted March 2, 2007 Share Posted March 2, 2007 Hi Aaron, I'm sending out all kinds of good thoughts for good results. Take care. Trish Quote Link to comment Share on other sites More sharing options...
mary colleen Posted March 2, 2007 Share Posted March 2, 2007 Aaron, Thanks for letting us know. I'm glad that you followed up pretty quickly. You will be in my thoughts and prayers as you sort through this. I was in NYC last week and thought of you! Aaron, don't give up or become too discouraged! Next year, or the year after, You are going to be telling others how you managed through this successfully. Hang in there! Quote Link to comment Share on other sites More sharing options...
Heather_T Posted March 2, 2007 Share Posted March 2, 2007 Hope you get the goods news from doc. My thoughts are with you and hope everything is ok. Quote Link to comment Share on other sites More sharing options...
sharonjo Posted March 2, 2007 Share Posted March 2, 2007 Aaron, I'm praying that your onc says everything is A-ok! God Bless, Sharon Quote Link to comment Share on other sites More sharing options...
wondermom Posted March 2, 2007 Share Posted March 2, 2007 I hope you get good results! Praying... Quote Link to comment Share on other sites More sharing options...
spicysashimi Posted March 3, 2007 Author Share Posted March 3, 2007 Talked to the Doc. He said "well, we knew you had some spots in your bones. you had a back mri back in august. the one today was taken at a different place and its difficult to match both up perfectly, but I don't really see a difference." Long of the short of it: Doesn't seem to be any new disease. My doc also was glad that the pain I had, which prompted this whole scan, has subsided by itself. So, I am taking this as status quo and I am, perhaps optimistically, hoping that the fleeting pain indicates a response from the Tarceva. My doc said that some people have "incredible" responses to Tarceva and he hopes that I'm in that group. I should have told him that I've met a bunch of them on LCHELP! all my best, aaron Quote Link to comment Share on other sites More sharing options...
Judy-OK Posted March 3, 2007 Share Posted March 3, 2007 Aaton, That is good news and thank you kindly for directions to this part of the forum I had never stumbled this way before. My best wishes and prayers for you ... you seem like a great guy!!!! Quote Link to comment Share on other sites More sharing options...
trish2418 Posted March 3, 2007 Share Posted March 3, 2007 Stable is always good news around here, Aaron. Hopefully the Tarceva will knock the stuffing out of any remaining tumors. Trish Quote Link to comment Share on other sites More sharing options...
Kaffie Posted March 3, 2007 Share Posted March 3, 2007 Stable is good Quote Link to comment Share on other sites More sharing options...
Heather_T Posted March 3, 2007 Share Posted March 3, 2007 That will work for now... Quote Link to comment Share on other sites More sharing options...
sharonjo Posted March 3, 2007 Share Posted March 3, 2007 That is good news Aaron! Hopefully the Tarceva is working! God Bless, Sharon Quote Link to comment Share on other sites More sharing options...
wendyr Posted March 3, 2007 Share Posted March 3, 2007 Hi Aaron: after just 6 weeks on tarceva & avastin my husband's ct scan showed disease stable and a slight reduction. Side effects were real bad joint & body pain. Most days he couldn't get out of bed. Hang in there. The treatment is tough but I hope & pray it's worth it for you. Good Luck & God Bless wendy Quote Link to comment Share on other sites More sharing options...
ztweb Posted March 3, 2007 Share Posted March 3, 2007 Cancer is such a booger. Prayers continue you for you spicy! Jen Quote Link to comment Share on other sites More sharing options...
Maryanne Posted March 3, 2007 Share Posted March 3, 2007 Hi Aron, I hope the Tarceva puts you into the catagory where the numbers are successful. Fingers crossed for this to work for you. Stay optimistic as that is the type of person you. I am proud to know. Hang strong! Maryanne Quote Link to comment Share on other sites More sharing options...
mary colleen Posted March 3, 2007 Share Posted March 3, 2007 Aaron, that is great. Very happy for you. Quote Link to comment Share on other sites More sharing options...
barbara5452 Posted March 3, 2007 Share Posted March 3, 2007 Sounds good to me Aaron, I too have a friend Dr. that gives me heads up on scans and reports, because I dont like wondering for a week....keep us posted... Quote Link to comment Share on other sites More sharing options...
hockeyma Posted March 3, 2007 Share Posted March 3, 2007 Aaron I glad to see after the initial discussion that the doctor felt you were stable. Stable is a nice word! All the best - keep in touch on the tarceva and side effects - my husband is on tarceva alone...just started two weeks ago. Heather Quote Link to comment Share on other sites More sharing options...
Kasey Posted March 3, 2007 Share Posted March 3, 2007 May you continue to show even more improvement, Aaron. Hope your spirits are raised by this news. Kasey Quote Link to comment Share on other sites More sharing options...
Don M Posted March 3, 2007 Share Posted March 3, 2007 Sounds good Aaron. I vote for tarceva pain. don M Quote Link to comment Share on other sites More sharing options...
carolhg Posted March 3, 2007 Share Posted March 3, 2007 That is good news Aaron. Praying that the tarceva gets the job done. Carol Quote Link to comment Share on other sites More sharing options...
Nushka Posted March 4, 2007 Share Posted March 4, 2007 It sounds like good news Aaron. Stable is always good. Hope the tarceva kicks butt and that you are over all of your back pain. Nina Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You can post now and register later. If you have an account, sign in now to post with your account.