kamataca Posted April 14, 2007 Share Posted April 14, 2007 OK, so I'm really not that superstitious, but Mom is back in the hospital. Even with daily, 3-hour hydration, she is not doing well with her esophagus problems due to the radiation. She is barely able to choke food and her meds down (she drank "one whole can" of Ensure the other day--and that took all day), and they often "get stuck" and come right back up. Even drinking water gives her grief. Thrush is developing in her mouth and throat. Hopefully she will only be in for a few days. I know that this problem will pass, and they are trying to keep her numbers up until it does. She was able to keep down a spoonful of mashed potatoes and some applesauce yesterday at the hospital, partly due to some new meds she is getting. I just hate seeing her like this. She fights so hard and is so strong, but it is really starting to take its toll. She hasn't had a break from chemo since last July, and they are thinking of giving her one now. I am afraid that it is because her last scans showed no improvement, even with the radiation and chemo. There was no progression either. Trying to look on the bright side. Prayers, as always, are appreciated. Kelly Quote Link to comment Share on other sites More sharing options...
Kasey Posted April 14, 2007 Share Posted April 14, 2007 Oh so sorry, Kelly. I had LOTS of esophagus trouble.....had it stretched about 4 times. I don't know if that is an option for you guys or not. Anyone talk about a feeding tube? Remember Jamie had one and felt it was a godsend.......just a thought. Thoughts and prayers for all of you, Kelly. It's hard to remain strong and positive when you get slapped down like this, but you are a remarkably strong young woman........not that you really want to hear that, I know. And no progression....good for sure. Kasey Quote Link to comment Share on other sites More sharing options...
gail Posted April 14, 2007 Share Posted April 14, 2007 Sorry you are having such troubles. Have you tried water ice? gail Quote Link to comment Share on other sites More sharing options...
trish2418 Posted April 14, 2007 Share Posted April 14, 2007 So sorry your mom is having these problems. I'll certainly send lots of prayers. Take care. Trish Quote Link to comment Share on other sites More sharing options...
Tom K Posted April 14, 2007 Share Posted April 14, 2007 I am so sorry to hear your Mom is having so much difficulty. I second the suggestion that you ask her doctor about a feeding tube. My doctor’s told me the majority of patients who get radiation to the esophagus will need one. Quote Link to comment Share on other sites More sharing options...
Calintay Posted April 14, 2007 Share Posted April 14, 2007 I am soo sorry. My prayers are with your mom that she will be relieved of her pain and be home again and able to eat and drink okay. My prayers that she will have major shrinkingage soon. Much love and support to you and family. Heidi Quote Link to comment Share on other sites More sharing options...
Treebywater Posted April 14, 2007 Share Posted April 14, 2007 Kelly--Many, many prayers for you and your Mama. Keep us posted. Quote Link to comment Share on other sites More sharing options...
sharonjo Posted April 14, 2007 Share Posted April 14, 2007 Kelly, My son had a feeding tube. It was a godsend! I believe it kept him alive until the cancer overwhelmed him. It was the only way we could get any food into him to maintain his weight! I would definitely ask your mom's doc about it. Good Luck! Sharon Quote Link to comment Share on other sites More sharing options...
shineladysue Posted April 14, 2007 Share Posted April 14, 2007 Kelly, Prayers are on the way for you , your family and your mom. She has been such a fighter. It's such a helpless feeling to see the ones we love suffering like that. Sorry she is in the hospital , but hope that they can help her and get her built up. A feeding tube could be an option. Sue Quote Link to comment Share on other sites More sharing options...
MilliBr1 Posted April 14, 2007 Share Posted April 14, 2007 Kelly, I also feel you should see about a feeding tube. My mom also had these problems, but she didn't want a feeding tube. We all can't help but wonder if we would have insisted she get one she might still be here today. Instead, even though she tried very hard to eat and drink enough, she got very dehydrated and very very sick. While she was in the hospital for that she slipped and fell and developed a hematoma on the brain, then needed brain surgery. Well she just never really recovered after that. You mom is in my prayers. Quote Link to comment Share on other sites More sharing options...
fillise Posted April 14, 2007 Share Posted April 14, 2007 I'm so sorry your mom is not doing well. Prayers for your mom and for you! Susan Quote Link to comment Share on other sites More sharing options...
carolhg Posted April 14, 2007 Share Posted April 14, 2007 I am so sorry that your mom is having such problems. I continue to keep her in my prayers. Carol Quote Link to comment Share on other sites More sharing options...
mamasbabygirl Posted April 14, 2007 Share Posted April 14, 2007 Oh Kelly, some of my mom's worst pain was from the the radiation. Even water hurt my mom. It did subside, but it took a month or so after her radiation had ended. I pray it subsides quciker for your mom, but it sounds like a feeding tube may be a quick patch until she can eat again. Prayers my dear! Quote Link to comment Share on other sites More sharing options...
Don M Posted April 14, 2007 Share Posted April 14, 2007 I hope your mom feels better Kelly. Don M Quote Link to comment Share on other sites More sharing options...
Judy-OK Posted April 14, 2007 Share Posted April 14, 2007 Hi Kelly you hang in there. I am sending prayers straight up the expressway to heaven as well as the Oklahoma expressways to help your moms pain and to comfort you. Quote Link to comment Share on other sites More sharing options...
Nova Posted April 14, 2007 Share Posted April 14, 2007 Hope your Mom is feeling better now. I read in your post that she has Crohn's Disease. That will effect her esophagus also, if it happens to be flaring up ..... Poor thing.... Having Crohn's is bad enough-(I have it, and it's rotten!), but to have cancer too. She must be a very strong lady. Bless her heart ! Take Care, Nova Quote Link to comment Share on other sites More sharing options...
barbara5452 Posted April 14, 2007 Share Posted April 14, 2007 Prayers your way for mom to get better and feel more comfortable, and for you to stay as stress free as possible until mom gets better. Quote Link to comment Share on other sites More sharing options...
peacelover Posted April 14, 2007 Share Posted April 14, 2007 Hey Kelly- I am sorry your mom is having trouble with this-I know it is painful. We made popsicles from carrot and apple juice for my mom when she could not swallow and they just sortof melted in her mouth without her having to 'swallow' much... the doc also gave her some miracle mouthwash that has benzocaine and maalox-told her to swallow it and this 'numbed' her enough to get some liquid in her. The pharmacist can make it for you. Sending lots of prayers your way Blessings Melissa Quote Link to comment Share on other sites More sharing options...
ma's kid Posted April 14, 2007 Share Posted April 14, 2007 Kelly, Praying things turn around for your mom Love, Libby Quote Link to comment Share on other sites More sharing options...
myagle2 Posted April 15, 2007 Share Posted April 15, 2007 Kelly, My husband did not want to talk about a feeding tube, no way. But we had to, and ya know what? There is nothing to it, and at least he is getting nurishment. Good luck to you! Mary Quote Link to comment Share on other sites More sharing options...
daggiesmom Posted April 15, 2007 Share Posted April 15, 2007 Praying that your Mom gets some relief soon. I remember it being soooo hard to swallow. It was just torture some days. ((())) Joanie Quote Link to comment Share on other sites More sharing options...
laban Posted April 16, 2007 Share Posted April 16, 2007 Kelly, So sorry your mom has to endure this suffering. My husband had very severe problems during chemo/radiation and ended up unable to swallow which was because of an esophageal stricture. He had dilatations (stretching open)of his esophagus 8 times. He now eats anything he wants. He refused a feeding tube (Peg tube) but many do very well with them. Prayers for your mom. She is so strong. Laurie Quote Link to comment Share on other sites More sharing options...
daddyslittlegirl Posted April 16, 2007 Share Posted April 16, 2007 I'm so sorry you and your mom are going through this. I will be praying for rapid improvement. Quote Link to comment Share on other sites More sharing options...
hockeyma Posted April 16, 2007 Share Posted April 16, 2007 I hope your mom gets past this bump in the road. I wish you all the very best. Gerald was on puree'd food for a while - but a feeding tube was mentioned. Whatever it takes....no progression is a plus. Heather Quote Link to comment Share on other sites More sharing options...
dscherer Posted April 16, 2007 Share Posted April 16, 2007 Kelly, I came here to post my concerns for my mom but your story was so close to mine. My mom is currently in the hosptal. The pain to her esophagus was just to much. She couldn't even swallow water without being excruciating. SHe is getting IV pain meds and hydration. They also have given her two different liquids that she takes to numb her throat. She can then take in some water and eat a few popcicles. I too know this will pass but when?! I know how hard and frustrating this is first hand. My thoughts and prayers go out to you. Please, if you find something that works pass it on to me and I will do the same. And thank you to all the reply's any advise or suggestions help. Dana Quote Link to comment Share on other sites More sharing options...
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