spicysashimi Posted October 3, 2007 Share Posted October 3, 2007 hi all, pet scan indicates new tumors in liver and growth of old ones. Also shows tumors in brain. So.... MRI on friday and doc wants to start single agent taxol on Monday for three weeks. Fourth week, radiation to head and eyes. Now convinced that chemotherapy will do nothing, I am calling all over the country for a clinical trial that might be useful, know any? aaron Quote Link to comment Share on other sites More sharing options...
Treebywater Posted October 3, 2007 Share Posted October 3, 2007 Aaron, What crappy, crappy news. I'm praying somebody will have the perfect information for you for a clinical trial and that whatever move you make next will be the one to kill the cancer dead. Quote Link to comment Share on other sites More sharing options...
wendyr Posted October 3, 2007 Share Posted October 3, 2007 Hi Aaron, sure hate to hear this news. Hope you have great success finding just the right trial for you. Good Luck & God Bless wendyr Quote Link to comment Share on other sites More sharing options...
fight Posted October 3, 2007 Share Posted October 3, 2007 Aaron, I'm am so sorry to hear this news....stupid cancer. This is not the way it is supposed to be. I'm not up on clinical trials so I don't have any advice to offer other than I'm praying for you and your new bride to have some much needed good news soon. Hang in there. Take Care, Rachel Quote Link to comment Share on other sites More sharing options...
sharonjo Posted October 3, 2007 Share Posted October 3, 2007 Crap Aaron. That just sucks! I hope you find something that works for you. I have been on Taxotere for several months now and it is keeping my tumors stable, maybe it will work for you too. I am also receiving complimentary therapy (IV Vitamin C and oral supplements)which I have been on since diagnosis and I feel have greatly helped me. I understand that there are some very good CAM doctors in NY if you should decide to go that route too. I will keep you in my thoughts and prayers. Hang in there and stay strong! God Bless, Sharon Quote Link to comment Share on other sites More sharing options...
tkelley Posted October 4, 2007 Share Posted October 4, 2007 Hi Aaron, I'm sorry for the sucky news...my dad is about to start a clinical trial at NIH/NCI. Its under the new treatments/clinical trial forum. He is stage 4 and has had so many treatments that he is kicked out of many clinical trials. I don't know what is available with the brain mets, as far as we know he is clear there. Most of the major cancer hospitals, Sloan, MD Anderson, Dana Farber, Hopkins, have been great if you call them they take your info and call you back pretty quickly for what you might be eligible for. Feel free to pm me and I would happy to send you some specific numbers we might already have. Randy would be a great source of info for you, he is really up on this stuff. Again, hoping something will kick this crap for you. Sending thoughts and prayers. Tammy Quote Link to comment Share on other sites More sharing options...
Ry Posted October 4, 2007 Share Posted October 4, 2007 Crap. Not exactly what you wanted for a wedding present was it? I hope you find something that will give you good results soon. Quote Link to comment Share on other sites More sharing options...
raneyf Posted October 4, 2007 Share Posted October 4, 2007 I'm interested in a vaccine trial at Mary Crowley for Stage 4 patients. I'm looking into it, but haven't called yet. Maybe it's worth calling about? Sorry about the progression. Of course there's also the dca thing I suppose. Raney Quote Link to comment Share on other sites More sharing options...
mary colleen Posted October 4, 2007 Share Posted October 4, 2007 Aaron - I'm ticked off for you, and I'm holding back on my language. You are a trooper, don't lose heart. Please e-mail Dr. West. Mary Colleen Quote Link to comment Share on other sites More sharing options...
carolhg Posted October 4, 2007 Share Posted October 4, 2007 Aaron I came across this web site. Hope it helps. http://www.ecancertrials.com/ Carol Quote Link to comment Share on other sites More sharing options...
Nushka Posted October 4, 2007 Share Posted October 4, 2007 Aaron, Boy, this is sure not the news you need right now..newly weds and all. When I was looking into trials I called MD Anderson's number and talked to their research department head. He sent me a long list of trials but it turned out that I didn't fit most of them. I agree Dr. West might be the best one to help you with this. Aaron, know that we are all praying for you. How are you feeling? Nina Quote Link to comment Share on other sites More sharing options...
dadstimeon Posted October 4, 2007 Share Posted October 4, 2007 Aaron, Very sorry to hear this. Below are some links I hope will help. Prayers for the best. Rich http://www.cancer.gov/clinicaltrials http://www.cancer.org/docroot/ETO/ETO_6.asp http://www.centerwatch.com/patient/trials.html Quote Link to comment Share on other sites More sharing options...
Jyoung20 Posted October 4, 2007 Share Posted October 4, 2007 Prayers for you Aaron!!! Hang in there: I know you will find the trial that works!! God Bless!! Jamie Quote Link to comment Share on other sites More sharing options...
Kasey Posted October 4, 2007 Share Posted October 4, 2007 Oh geez, Aaron, You know I'm devastated to read this news. There are trials out there........but I know it's difficult to sort through everything. Is there a patient advocate where you're being treated to perhaps help with that? I'm sending many prayers and all my best to you and Julia. Let us know what you find. Kasey Quote Link to comment Share on other sites More sharing options...
Don M Posted October 4, 2007 Share Posted October 4, 2007 I'm really sorry Aaron Quote Link to comment Share on other sites More sharing options...
trish2418 Posted October 4, 2007 Share Posted October 4, 2007 I'm so sorry to hear this Aaron. I'm sending lots of prayers for strength for you and Julia and that you hit on a successful treatment plan quickly. Hang in there. Trish Quote Link to comment Share on other sites More sharing options...
fillise Posted October 4, 2007 Share Posted October 4, 2007 Aaron--HATE the news, but LOVE your fight! I hope you find the trial that will kick this cancer on its a&&! Susan Quote Link to comment Share on other sites More sharing options...
Dollfinn Posted October 4, 2007 Share Posted October 4, 2007 Keep your "A" game on. When the wind blows and the rains come down, shine your light. I also would ask Dr. West on Onctalk.com. That web site has a 5 min. survey to see if you fit into any trials in the country. You will miss 100% of the shots you dont take. Go for it, we're here with you~ Mary Quote Link to comment Share on other sites More sharing options...
wondermom Posted October 4, 2007 Share Posted October 4, 2007 How frustrating. I hope you are feeling okay and not having any symptoms from the new mets. Taxol was my mom's first line of treatment and it worked quite well for her. Also, the whole brain radiation took care of the brain mets completely. Don't loose hope. Best wishes for you in your search for a trial. Take care, Jill Quote Link to comment Share on other sites More sharing options...
Welthy Posted October 4, 2007 Share Posted October 4, 2007 Oh Aaron, this sucks big time. I'm so sorry. Has your Doc considered Navelbine? That actually worked pretty far into Tony's cancer and was easy. We're always on the hunt for a clinical trial that would accept him, so I'll pm if I run across one. Hugs and take it one day at a time. I hate this disease. Welthy Quote Link to comment Share on other sites More sharing options...
enyaw061032 Posted October 4, 2007 Share Posted October 4, 2007 Aaron: I am so sorry to hear your latest roadblock. I don't know about clinical trials, but I do know how to pray and I am praying for you and all of the other "family" members of this savage lung cancer. I am glad to see you are ready to be proactive and fight for your life in the fast lane with cancer. I KNOW the agony you are going through and the unknowns, which makes it worse not to have a definite plan of attack, but I can see you are getting prepared for battle, and that is good. Sending prayers and positive vibes that you will find a good plan of attack on this horrible disease. Barb Quote Link to comment Share on other sites More sharing options...
Heather_T Posted October 4, 2007 Share Posted October 4, 2007 Well I know this sucks!!! I know they will find something to kill this s**t. You and Julia are in my thoughts and prayers. Quote Link to comment Share on other sites More sharing options...
shineladysue Posted October 4, 2007 Share Posted October 4, 2007 (((Aaron))), sorry for this latest news. Hang in there . You've been given good sources for info on clinic trials. Prayers coming your way. Sue Quote Link to comment Share on other sites More sharing options...
ErinC1973 Posted October 4, 2007 Share Posted October 4, 2007 All I can think of is Andrea's immortal words: SUCK A DUCK! You are a fighter in every way, Aaron. You WILL come through this and WIN. Quote Link to comment Share on other sites More sharing options...
ursol Posted October 6, 2007 Share Posted October 6, 2007 Aaron, I'm very sorry to read this news. You and Julia need a better break and hope you get it soon. I am praying immensely for you. Lilly Quote Link to comment Share on other sites More sharing options...
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