jaminkw Posted March 31, 2010 Share Posted March 31, 2010 Here's hoping for the best for you tomorrow. Don't remember how long you wait for results but be sure to check back in when you get them. Don't you just love going to those movies with kids. I go whenever I can with my grandson. What fun being a kid again if even for a little while. Judy Quote Link to comment Share on other sites More sharing options...
fillise Posted March 31, 2010 Share Posted March 31, 2010 Jussi--Hope the scans show major shrinkage tomorrow! Let us know when you find out. In the meantime have fun at the movies! Susan Quote Link to comment Share on other sites More sharing options...
Vesuri Posted April 10, 2010 Author Share Posted April 10, 2010 Hi people, and good people I might add =) Had docs appointment on Thursday and seems that there's some shrinking in both, lung and liver, and also the rest are stable so we are continuing with the taxotere. So good news! Sun is shining and now we go to buy a new bicycle for our daughter! Have a nice and positive weekend! Jussi Quote Link to comment Share on other sites More sharing options...
recce101 Posted April 10, 2010 Share Posted April 10, 2010 That's good to hear, Jussi! Aloha, Ned Quote Link to comment Share on other sites More sharing options...
dianew Posted April 10, 2010 Share Posted April 10, 2010 That is definitely good news. Congratulations. Diane Quote Link to comment Share on other sites More sharing options...
jaminkw Posted April 10, 2010 Share Posted April 10, 2010 Jussi, terrific news! Glad to hear it's working. Judy in KW Quote Link to comment Share on other sites More sharing options...
Muriel Posted April 11, 2010 Share Posted April 11, 2010 That's great news! Glad to hear it. thanks Muriel Quote Link to comment Share on other sites More sharing options...
barbvh Posted April 11, 2010 Share Posted April 11, 2010 Good to hear from you Jussi. Glad that your treatment is working. Enjoy your bicycle shopping:) Quote Link to comment Share on other sites More sharing options...
Joppette Posted April 21, 2010 Share Posted April 21, 2010 Fantastic news Jussi! Very encouraging. Keep in touch, and enjoy that sunshine. It's so beautiful this Spring. Judy in MI Quote Link to comment Share on other sites More sharing options...
Vesuri Posted June 8, 2010 Author Share Posted June 8, 2010 Hi 10th of June - time for some CT results.... Meanwhile a little question... Seems that the radiation therapy to my right hip/pelvis has destroyed normal lymph activity -> my right thigh and foot has swollen. I've read something about lymph therapy massage... Is it any good? Is there anything else that can be done? Jussi Quote Link to comment Share on other sites More sharing options...
jaminkw Posted June 9, 2010 Share Posted June 9, 2010 Jussi, sorry I don't know a thing about lymph therapy massage or even any connection between lymph activity and swelling. I do want to say good luck with your upcoming CT and be sure to post us the results. Judy in KW Quote Link to comment Share on other sites More sharing options...
Vesuri Posted June 10, 2010 Author Share Posted June 10, 2010 Hi people saw my oncologist today about ct results and seems that all is stable more or less! Some lung nodules have grown a bit, some shrunk a bit. Liver met shrunk significally and bone mets remain stable. So, i'm a happy man and it's June people! Next taxotere in 5 weeks. I go to some lymph therapy also to release the swelling in the thigh/ ankle. Jussi Quote Link to comment Share on other sites More sharing options...
dianew Posted June 10, 2010 Share Posted June 10, 2010 I've been stable for just over a year - I love stable - stable is GREAT!!! Enjoy your summer. Diane Quote Link to comment Share on other sites More sharing options...
jaminkw Posted June 10, 2010 Share Posted June 10, 2010 So happy for you--stable is great! Have a fun-filled summer with your daughter. Judy in KW Quote Link to comment Share on other sites More sharing options...
Muriel Posted June 11, 2010 Share Posted June 11, 2010 That's good news. Thanks for the update. Muriel Quote Link to comment Share on other sites More sharing options...
LovesLife Posted June 11, 2010 Share Posted June 11, 2010 Stable is FANTASTIC!!!! June is such a wonderful month with the flowers in bloom and the sun shining on your face. I hope you enjoy watching your daughter bike riding, dancing and whatever else she fancies. I wish you a very speedy reduction of the swelling in your thigh and ankle! I think of you often and I am so happy to see this update from you. Take care Jussi, Linda Quote Link to comment Share on other sites More sharing options...
Bud Baker Posted June 11, 2010 Share Posted June 11, 2010 That's great news! Congrats and enjoy! Quote Link to comment Share on other sites More sharing options...
Patkid Posted June 15, 2010 Share Posted June 15, 2010 Wonderful!!!!! Quote Link to comment Share on other sites More sharing options...
Maryanne Posted June 15, 2010 Share Posted June 15, 2010 Great news.... stable is good! Hope you keep having positive changes!! Maryanne Quote Link to comment Share on other sites More sharing options...
Vesuri Posted August 20, 2010 Author Share Posted August 20, 2010 Good people! It's been a while again. Had taxotere yesterday, and bone mass strengthening drug too (bondronate?). I have 5 week cycle between taxotere infusions now and last couple of rounds I've noticed pain in lower abdomin - like inner muscle pain. Occurs when standing up but gets easier after standing a while. Maybe from taxotere or maybe not.... Well, I ask about it in next doc's appointment..... I don't know what type of weather you guys have had this summer but in Finland it has been absolutely scorching! We had new record high in late July.... I don't mind though - since we have so long and dark winters... All the best to you all!!! Jussi Quote Link to comment Share on other sites More sharing options...
jaminkw Posted August 20, 2010 Share Posted August 20, 2010 Good to see you Jussi. I do know about those niggling pains that are just enough to put you a little on edge. The radiologists (not oncologists) are saying they think they see something in my abdomen. Now every gastro distress makes me worry just a little. We will definitely be waiting for your update after your next appointment. Record high temps around the US this year too. But then, we had some record cold in the winter also. I'm traveling with my husband on business. We are in Portsmouth Ohio and the weater is grand. Warm in the afternoon, cool in the mornings/evenings. However, it could change here on a dime. They were in the upper 90s here just before we came. Take care and try not to worry too much. Famous last words lol. Judy in KW Quote Link to comment Share on other sites More sharing options...
Vesuri Posted September 1, 2010 Author Share Posted September 1, 2010 Good People! Just came from my oncologist and he gave the CT results... seems that the liver mets have grown a bit, and blood values indicate same thing... But seems that the lung tumor has some dead cells inside (necrosis i think is the term he used...?) and this might be a positive thing since this hasn't shown in previous CT's. Liver status might be because of 5 week taxotere cycle instead of previous 3 week cycle. Or then again, it might be not. So he decided to go back to 3 week regime and check later if the Taxotere still has the punch. So, I guess it was kind of good news/ bad news -visit? I don't know... Did some cancer registry browsing yesterday and seems that, when looking at time period 2004-2008 in 30-34 year old men in Finland (about 170 000 men), I'm the o n l y one diagnosed with NSCLC. That is 0.0006% chance. O, Lucky me! All the best! Jussi Quote Link to comment Share on other sites More sharing options...
Vesuri Posted September 1, 2010 Author Share Posted September 1, 2010 Thanks Katie! The LUNGevity facebook page is very good! And although I have some "logistics"'issues in participating the events I'm there in my heart and thoughts! Keep up the good work guys!!!! -Jussi Quote Link to comment Share on other sites More sharing options...
jaminkw Posted September 1, 2010 Share Posted September 1, 2010 Yes, Jussi, always good to see you. Yes, it is a mixed bag but I'd go with the glass have full view. It must be a drag going back to 3 wk infusions. I know, I've never gotten off them lol. Let us know how the next scan goes. And how is that sweet little girl of yours? Judy in KW Quote Link to comment Share on other sites More sharing options...
Vesuri Posted September 7, 2010 Author Share Posted September 7, 2010 Hi good peoples =) Went for a round of Taxotere (actually it is called something else, but it's the same drug so I call it that) and bumped into my doc in the hall, she told me that she had gotter reply from genetics lab concerning my question about the ALK gene mutation. And apparently I wasn't eligible. Well, it was worth the shot anyway! Never leave any stones turned! Jussi Quote Link to comment Share on other sites More sharing options...
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