Rower Michelle Posted July 25, 2019 Share Posted July 25, 2019 All good news to report, before the doc closed the door, he said, everything is looking good. My brain MRI is normal, the CT shows continued shrinkage, the spinal mets are healing quite nicely. Docs literal words were "so we stay the course". Next scan in three months, this time, my scheduler has the scan the day before the appointment, so NO WAITING. Thanks for helping me get through this one. I still have this ridiculous headache, so Flonase can finally get going. Rowing for me this afternoon! Woo hoo! Link to comment Share on other sites More sharing options...
Tom Galli Posted July 25, 2019 Share Posted July 25, 2019 Michelle, Wonderful news! And, the heat wave has waned meaning a good day on the river for you. Indeed... Stay the course. Tom Link to comment Share on other sites More sharing options...
Steff Posted July 25, 2019 Share Posted July 25, 2019 Great work Michelle! Row away! Link to comment Share on other sites More sharing options...
Barb1260 Posted July 25, 2019 Share Posted July 25, 2019 I was looking for this post fellow brain scanner. Glad your results are the same as mine!! Yay!!! Link to comment Share on other sites More sharing options...
Rower Michelle Posted July 25, 2019 Author Share Posted July 25, 2019 Thanks Barb- gotta say after last summer and the armament of allergy meds I was prescribed, I’m not a fan of any more Flonase but enough is enough with this stupid headache! So up the shoot it will go! Link to comment Share on other sites More sharing options...
Lisa L Posted July 25, 2019 Share Posted July 25, 2019 Glad to hear my friend. Link to comment Share on other sites More sharing options...
Isabelle49 Posted July 26, 2019 Share Posted July 26, 2019 So happy for you Michelle!!! Blessings. Link to comment Share on other sites More sharing options...
Deb W Posted July 26, 2019 Share Posted July 26, 2019 Great news Michelle! Link to comment Share on other sites More sharing options...
Moonbeam Posted July 26, 2019 Share Posted July 26, 2019 Great news Michelle!!!! So glad to see this. Sending lots of love XX Link to comment Share on other sites More sharing options...
Denise C Posted July 26, 2019 Share Posted July 26, 2019 Awesome news! So happy for you. Link to comment Share on other sites More sharing options...
PaulaC Posted July 26, 2019 Share Posted July 26, 2019 Awesome news Michelle! I’m going through the waiting again. I had a bone scan done a couple of weeks ago and CT is scheduled for Monday the 29th. I’ll get results August 5th. It’s been a tough time waiting. Link to comment Share on other sites More sharing options...
Rower Michelle Posted July 26, 2019 Author Share Posted July 26, 2019 Paula- will keep praying for your continued NED. It’s so nerve wracking the waiting! I’m trying to talk myself into this process being “normal”. There are some of my ALK peer who are ten years since diagnosis. So that’s ten years of scans every three months! I suppose the “good news” is that we can plan around these scans as they’re “predictable” Today I’m booking a trip to Maine. I’m already thinking about Florida this winter too. Hugs to you! Link to comment Share on other sites More sharing options...
PaulaC Posted July 26, 2019 Share Posted July 26, 2019 1 hour ago, Rower Michelle said: Paula- will keep praying for your continued NED. It’s so nerve wracking the waiting! I’m trying to talk myself into this process being “normal”. There are some of my ALK peer who are ten years since diagnosis. So that’s ten years of scans every three months! I suppose the “good news” is that we can plan around these scans as they’re “predictable” Today I’m booking a trip to Maine. I’m already thinking about Florida this winter too. Hugs to you! I’m trying to keep busy and not think about it! We’re cruising August 18th the first time since this began. Hello beaches and relaxing on the water. ⚓️🏖 Link to comment Share on other sites More sharing options...
Terri L Posted July 26, 2019 Share Posted July 26, 2019 I just loved reading this post! Link to comment Share on other sites More sharing options...
Tomm Posted July 28, 2019 Share Posted July 28, 2019 Michelle, It's great to read your wonderful news!! you went from a headache to continued shrinkage to a day of Rowing. I'm sure your positive attitude has a big influence on your progress. Link to comment Share on other sites More sharing options...
LouT Posted July 29, 2019 Share Posted July 29, 2019 Michelle, You brought a big smile to my face with this news. I couldn't be happier and love to hear that things are going well on all fronts. Now, take that Flonase so you can get rid of those terrible headaches. Lou Link to comment Share on other sites More sharing options...
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