nancy c Posted June 14, 2005 Posted June 14, 2005 Mike got home Monday evening about 730 per ambulance. Hospice has been here and he is on a morphine pump -which they increased the dose today. He is trying to walk--and it takes his cane and sometimes two people. Tomorrow I return to work and I have someone to come in and stay with him everyday--until or if he gets stronger. My daughter is off work this week so she is helping alot. Mike told me he knows hospice is here because he is dying --and I did tell him they are here for his comfort. Dr. said the end is coming but it could be slow?? whatever the hell that means?? This is no way for anyone to live, and it is not fair. He is on oxygen as needed and he usually uses it on and off during the day with activity. Both of his arms,hands have large amount of lymphedema and the hospice nurse is checking into treating that with some type of wraps?? Both his feet and ankles are so swollen he has trouble balancing himself. He can't use his fingers because they are so swollen. This is so pitifull and if it gets worse---it will be pure hell on him. I'm still watching the site and praying for all of you--just might not get to write as much now. Take care and god bless,Nancy C Quote
Don Wood Posted June 14, 2005 Posted June 14, 2005 Nancy, so glad Mike is home. Hope some normalcy will return to you all. Don Quote
Connie B Posted June 14, 2005 Posted June 14, 2005 Nancy, I'm sorry to hear that Mike is not doing well. It just shouldn't be that way. I know what your feeling, but I have no words to make you feel better. Our bodies are a mystery. Lots of TLC to you both. Quote
Kasey Posted June 14, 2005 Posted June 14, 2005 Nancy, Praying for the strength and courage needed to help you through this very rocky road right now. Am also praying that Mike will be comfortable and perhaps show some signs of improvement. This disease is merciless and dastardly and we all HATE it. If the will of all of us could destroy it .....well, what a wonderful world it would be. My heartfelt prayers go out to you, Nancy. Please come here often to cry, scream, vent, or whatever it is you need to do. We ALL are here to offer cyber hugs to try to make you feel better. You are strong and courageous!!!! You are also a very loving wife. Mike is a lucky man! Kasey Quote
Guest Lensiedel Posted June 14, 2005 Posted June 14, 2005 Nancy, I am praying so very, very hard for you and Mike. Wendy Quote
Ry Posted June 15, 2005 Posted June 15, 2005 I hope the hospice is able to make him comfortable and be of help to you. Quote
gail p-m Posted June 15, 2005 Posted June 15, 2005 Nancy I'm so very sorry to read about the tough time Mike (and you and your family) are having right now. I wish I had the words to make it better. I send my prayers out that Mike improves and you have the strength to deal with this very difficult situation. Gail p-m Quote
bbays Posted June 15, 2005 Posted June 15, 2005 Nancy, I am so sorry. My prayers are with you both. God bless you. Barb Quote
Leslie221 Posted June 15, 2005 Posted June 15, 2005 Hope Hospice helps you all make it through this rough time. You and Mike are in my thoughts. Quote
DianeR Posted June 15, 2005 Posted June 15, 2005 Nancy, You and your family are in my thoughts. Diane Quote
Nushka Posted June 15, 2005 Posted June 15, 2005 Nancy, It makes me sad that things are going the way they are right now. I will keep praying for you and Mike. I know you need strength and courage for the next few months. I hope something can be done for the swelling soon. Mike must be terribly uncomfortable right now. Nina Quote
gerbil runner Posted June 15, 2005 Posted June 15, 2005 I'm so sorry things are not going well right now. Hopefully hospice will get Mike comfortable soon, and you can have some good time together. Quote
J.C. Posted June 15, 2005 Posted June 15, 2005 Nancy, Wish that home care will help your husband. Sending prayers for both. Take care. J.C. Quote
stand4hope Posted June 18, 2005 Posted June 18, 2005 Hi Nancy, I'm sorry I'm so late in responding. How has Mike done this week? Have they tried Lasix for the swelling? Both my mom and dad had to have large amounts of Lasix when they were so sick because of water retention and tremendous swelling. It worked really well. We've PM'd, but I wanted you to know that I am sending you extra hugs tonight. Love, Peggy Quote
nikkala Posted June 18, 2005 Posted June 18, 2005 Hi Nancy, I've been thinking of you and Mike and keeping you both in prayers. Hope things are going as good as possible. Quote
Maryanne Posted June 18, 2005 Posted June 18, 2005 Oh Nancy, Mike has been through so much. I pray the hospice makes him comfortable and pain free, My prayers go out to him and you. Maryanne Quote
cindi o'h Posted June 19, 2005 Posted June 19, 2005 Nancy, Prayers that Mike is finding relief from the morphine, swelling is going down, and home care can help him. love, cindi o'h Quote
elnodel Posted June 20, 2005 Posted June 20, 2005 Dear Nancy, I'm so sorry that Mike has to go through all this -- it's so unfair...but that's the way this awful disease works, I'm afraid. I'm hoping that Mike is more comfortable now that he's home and that hospice is helping him -- and you -- and making it all much easier for you all. Will be thinking of you and hoping that someone will come up with a way to make him more comfortable. Love, Ellen Quote
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