Treebywater Posted July 12, 2005 Share Posted July 12, 2005 Mom is too weak to be a candidate for the Perifosine trial. Hospice comes tomorrow. I've been thinking of it as 'the H word' because I didn't want to get to it... but we're here now. The help would be good. So... that's where we are. Quote Link to comment Share on other sites More sharing options...
Cindy RN Posted July 12, 2005 Share Posted July 12, 2005 Life is a journey. Sometimes we have to go down paths that we do not want to go on. The 'H' word is one of those. Prayers for your mom and family. The nures with hospice are usually very good. Cindy Quote Link to comment Share on other sites More sharing options...
Treebywater Posted July 12, 2005 Author Share Posted July 12, 2005 Oh please know that I know the folks who do Hospice are wonderful... It's not that. It just feels so much better to be able to be fighting, and we've passed that point and that's hard. I'm grateful that hospice is an option. I just wish it didn't have to be OUR option now. Val Quote Link to comment Share on other sites More sharing options...
ginnyde Posted July 12, 2005 Share Posted July 12, 2005 Val, I am sorry. Quote Link to comment Share on other sites More sharing options...
lilgna Posted July 12, 2005 Share Posted July 12, 2005 I am so sorry, for you... But the fight is never over.. You have been an inspiration, as well as your Mom, please, remember all things are possible. Blessings, gina Quote Link to comment Share on other sites More sharing options...
bunny Posted July 12, 2005 Share Posted July 12, 2005 I'm sorry, Val. you are so good at rolling with the punches here with your mom's LC, this one must be especially difficult. keep the faith, and know that I (we) are thinking of you and praying. xoxo amie Quote Link to comment Share on other sites More sharing options...
Addie Posted July 12, 2005 Share Posted July 12, 2005 Val~~ I'm so sorry you're at this point...but entering Hospice isn't necessarily the final chapter. Sometimes people improve enough to no longer need Hospice. It's possible. Perhaps not probable, but possible. A little bit of hope to hang onto. I'm sorry, honey. I know this must be hard for you as you want your adorable little one to know her gramma. Store up as many memories (and photos) as you can. Know you and your mom are in my best thoughts and wishes. Quote Link to comment Share on other sites More sharing options...
shineladysue Posted July 12, 2005 Share Posted July 12, 2005 ((((Val)))), Keeping you and your family in my prayers. Wish I could give you that hug in person. I can never find the words, but I feel your pain. God be with you. Love and Prayers, Sue Quote Link to comment Share on other sites More sharing options...
cindi o'h Posted July 12, 2005 Share Posted July 12, 2005 Val. I am sorry to hear that Mom is at this point. I know this must be a tough point in her/your journey. No one should ever be without her Mom. You two are so good for each other. Stay close to her. You need each other now more than ever. love, Cindi o'h Quote Link to comment Share on other sites More sharing options...
Don Wood Posted July 12, 2005 Share Posted July 12, 2005 Rats! Quote Link to comment Share on other sites More sharing options...
Fall54 Posted July 12, 2005 Share Posted July 12, 2005 Val, I am so sorry that your Mom is in need of hospice now. I remember back to when we needed to bring them in for my Brother. It's sad, It hurts and it makes you feel that it's over, but it's not and she may do well and not need them anymore at some point, again like someone said possible but maybe not probable. Look at it as a helping hand, not only in Mom's care but in what ever emotions she or you are going through. Hospice has been with my kids Grandfather now since his DX and they wonder why they are there sometimes he was doing so well. Things have changed some now but that was 6 months ago. Make some great memories, get things said that you have always wondered about your Mom and things you need to say to her. Do take lots of pictures with that sweet Daughter of yours and her Grandma. My heart hurts for you both and you are in my prayers. God Bless You, Jane Quote Link to comment Share on other sites More sharing options...
Ry Posted July 12, 2005 Share Posted July 12, 2005 I am so sorry to read this Val. I know this is hard but you will be happy for the help and they will be able to keep her comfortable. Quote Link to comment Share on other sites More sharing options...
Connie B Posted July 12, 2005 Share Posted July 12, 2005 I to am sorry to hear things have taken the (H) turn. Prayers for you and your family. Quote Link to comment Share on other sites More sharing options...
tnmynatt Posted July 12, 2005 Share Posted July 12, 2005 Val, So sorry. I did have an uncle that "graduated" from hospice...he lived considerably longer after that with pancreatic cancer. Praying for you and your mom and her friends and other family members. Take care. Quote Link to comment Share on other sites More sharing options...
Andrea Posted July 12, 2005 Share Posted July 12, 2005 Val I don't know what to say I do hope that hospice provides some relief for your mom. Keep hugging that little baby of yours. Quote Link to comment Share on other sites More sharing options...
Geri Posted July 12, 2005 Share Posted July 12, 2005 So sorry that you've come to this turn in the road, maybe the H will give you time to just "be" with your mom instead of taking care of her. Enjoy whatever time you have with her, it could be a lot longer than either than you think. Always remember what a wonderful relationship you have and how much your mom loves you and appreciates what you do for her. Take care Geri Quote Link to comment Share on other sites More sharing options...
karenl Posted July 13, 2005 Share Posted July 13, 2005 Hi Val We are at a similar point ourselves. Mum was discharged from hospital yesterday, and today hospice is coming to do an initial assessment to determine what assistance we require. I understand how you are feeling - its so hard to believe we are at this point.....but I am hopeful that we will see an improvement! Thinking of you, love Karen Quote Link to comment Share on other sites More sharing options...
gail p-m Posted July 13, 2005 Share Posted July 13, 2005 I am so sorry that it is time to call in Hospice. I can't begin to imagine what you are feeling right now. My prayers go out to all of you. Gail p-m Quote Link to comment Share on other sites More sharing options...
Wendy Posted July 13, 2005 Share Posted July 13, 2005 Val, Prayers during this difficult time are coming your way, Wendy Quote Link to comment Share on other sites More sharing options...
NancyT Posted July 13, 2005 Share Posted July 13, 2005 I am so sorry that your Mom is not doing well. I really understand how you feel, I had to talk to my Dad last weekend about hospice, we may be nearing that point also. This entire journey is so difficult Know my thoughts are with you NancyT Quote Link to comment Share on other sites More sharing options...
pritchie Posted July 13, 2005 Share Posted July 13, 2005 Val, I am so sorry. I have known some people that improved so much that they no longer needed Hospice. I will pray that your Mom will be able to tell them she doesn't need them anymore. Pamela Quote Link to comment Share on other sites More sharing options...
stand4hope Posted July 13, 2005 Share Posted July 13, 2005 Dear Val, I know this is hard - real hard! I will be hoping and praying that you have lots and lots of fun and memorable days, weeks and months with your mom. You will. Try to have as much fun and laughter around her as you can. We did that with both my mom and my dad, and to this day, we all laugh about some of the funny things that happened and were said. We really do. Laughter is such good medicine. God bless you, honey! Love, Peggy Quote Link to comment Share on other sites More sharing options...
Maryanne Posted July 13, 2005 Share Posted July 13, 2005 Hi Val, You poor girl, there is so much going on all at once. Your emotions all mixed up. I pray for your mom to feel better. Hospice is wonderful and will be a great help. So sorry this is where you are at right now. My heart breaks for both of you. Maryanne Quote Link to comment Share on other sites More sharing options...
dadstimeon Posted July 13, 2005 Share Posted July 13, 2005 Very sorry to hear that Val. Prayers for the best. Rich Quote Link to comment Share on other sites More sharing options...
MelanieLR Posted July 13, 2005 Share Posted July 13, 2005 Dear Val, I'm so sorry. Just keep in mind that this is not an end but another beginning. Since I've been on hospice, my pain & symptom management has been incredible. I know how hard it is to be at the point when the fight ends but the comfort level is truly a blessing. I pray that God be with you all & bring comfort to everyone in the family. Hugs & prayers, Melanie Quote Link to comment Share on other sites More sharing options...
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