kamataca Posted December 8, 2005 Share Posted December 8, 2005 Leslie, I'm climbing onboard late, here, but I just have to add my support. You have been here so many times for many of us, and we love you. We'll walk this with you. This must be really tough for you and Mark right now. You are certainly in my prayers. Kelly Quote Link to comment Share on other sites More sharing options...
Sheri Posted December 8, 2005 Share Posted December 8, 2005 Leslie, Yes, you have received some dreadful news. You have to give yourself some time to absorb the news, there is no way to get around that. There are people who have survived brain mets, some reside right here on this board. My Dad used to tell me, "if someone else in the class can get an A, you can too!" From your posts I can tell you are a great researcher. Edit: I posted before I read your update. I know you can beat this Leslie, good luck. I'm glad you now have Mark back and remember, it's doable! Sheri Quote Link to comment Share on other sites More sharing options...
Kaffie Posted December 8, 2005 Share Posted December 8, 2005 Will be praying for yu and look forward to your Friday update Kathy Quote Link to comment Share on other sites More sharing options...
Cindy RN Posted December 8, 2005 Share Posted December 8, 2005 Well Leslie-Mark should be in by now. I just got on this PM and saw your post. I HATE THIS!!!!!!!!!!!!! Just keep on typing, don't worry about next year right now. Do what it takes to get this under control and time will take care of itself. Love Cindy Prayers and (((HUGS))))) Quote Link to comment Share on other sites More sharing options...
Lisa O Posted December 8, 2005 Share Posted December 8, 2005 @#%$#@!! Now with that out of the way, I know many people who have lived WELL with brain mets for years. It is not the end. You can get your treatment and continue to fight this! We are here for you. Lisa Quote Link to comment Share on other sites More sharing options...
Darci Posted December 8, 2005 Share Posted December 8, 2005 Oh you poor thing...having to get this news is shocking on its own, but having to hear it while your husband is out of town. Thank goodness you have such wonderful friends, and everyone here. And I am sure that all your furbabies are there for you to hold and to hug as well...pets are so good for just being there for us, even if they don't understand why we are sad. Hang in there, we will be praying for you. Quote Link to comment Share on other sites More sharing options...
TAnn Posted December 8, 2005 Share Posted December 8, 2005 Leslie, Oh my dear, I know exactly what you are going through. I remember that feeling of hopelessness when my doctor called to tell me that I had 6 brain mets. Then my husband reminded me about all the people here that had successfully treated their brain mets and it gave me hope. My WBR was for 10 days. Once you are on the table and they have you all lined up, it literally takes 30 seconds on one side of your head and 30 seconds on the other. (I'm sure you're finding this out today!) The hardest part of WBR for me was having to get up and go to the hospital every day. I was very tired and had some short term memory problems, BUT..... now those 6 brain mets can't even be seen on my MRI! The worst of my symptoms were definately from the decadron. So Leslie, think about all of your friends here that made it through and know that you can do this. You are strong and this is just another one of those "bumps in the road" that we have to endure with this disease. Good luck, TAnn Quote Link to comment Share on other sites More sharing options...
Joe B Posted December 8, 2005 Share Posted December 8, 2005 Hi Leslie, Praying for the wbr to work for you and for you to be comforted during this hard time in your journey. Quote Link to comment Share on other sites More sharing options...
hopeandstrength Posted December 8, 2005 Share Posted December 8, 2005 Leslie, You have been an inspiration to me since I first read your posts! You are a fighter and have a great attitude! I will, as always keep you in my thoghts! Cathy Quote Link to comment Share on other sites More sharing options...
Kel M Posted December 8, 2005 Share Posted December 8, 2005 Hang in there, Leslie. You and your husband are in my thoughts and prayers. Kel Quote Link to comment Share on other sites More sharing options...
Andrea Posted December 8, 2005 Share Posted December 8, 2005 Leslie, I am sooooo sorry you have to go through this Like others said, many have survived it!!!!! I believe our Karen535 had successful treatment done. Here is to safe prayers for your hubby's return home. Quote Link to comment Share on other sites More sharing options...
Addie Posted December 8, 2005 Share Posted December 8, 2005 Leslie, honey....hang in there. I hope Mark is home now. I'm on my 2nd round of brain mets....and I'm still here!! Hand over that pork chop...and we'll do the worryin'....okay? Quote Link to comment Share on other sites More sharing options...
flwrjunke Posted December 9, 2005 Share Posted December 9, 2005 Leslie, I'm so sorry to hear this news. Hang in there and keep fighting. Also, know that you and Mark are in my prayers. Patty Quote Link to comment Share on other sites More sharing options...
Don M Posted December 9, 2005 Share Posted December 9, 2005 Leslie: I am glad to see you are feeling a little more upbeat now and are embracing your tretment. I know it would take me more than a few days to recover from the shock and fear of having brain mets, yet I know that lots of people deal effectively with them, as I am sure you will. Meanwhile some advances are being made in developing drugs that will pass the blood-brain barrier. Here is a link about work that MD Anderson is doing in a phase one study. http://www.medicalnewstoday.com/medical ... wsid=33753 Quote Link to comment Share on other sites More sharing options...
Maryanne Posted December 9, 2005 Share Posted December 9, 2005 My dearest Leslie, I just never thought I would be answering this distressing post from you. I am completely torn by this news. Lately, I have not been on too much and for some reason missed your post. I am so sorry, but at least I know that Mark is now home with you. And now you have added strength and comfort in your corner. You know how I feel about you, and I am devastated for all the mental pain and anguish you and Mark are facing. The hardest part is that I feel so helpless here, but you know that mega prayers have gone out to you from all over. I am adding my Leslie candle to my other ones who have been burning for healing others on here. But I will say this; I know you will get through this. No doubt in my mind. You are a fighter and just because there is this detour in your way it will just take a little more time to get around it and put you back on the right road. That road called recovery. It is out there waiting for you. No detour is going to stop that from happening. I know I do not have to tell you to keep a positive "additude" as you are one of the most motivated positive people on this board. I love when you answer people’s posts. You have a knack for finding the right webpage links to help people who ask questions about anything. You always seem to do online research and find the right links for them to view. I always look forward to reading your responses and you always make me smile with your sincerity and that keen wit you have. You are a winner, and you will not lose this battle. Trust me, I just know it!! Besides your beloved Mark, I insist you use us anytime to vent and keep letting those feeling out like you have been doing. That is the best medicine as you are not keeping it bottled up inside. You are sharing your feelings and I hope you know how much we love you and care for you and want to help and support you through this. It is time for us to give back to you what you have given so many on here. This is round one my friend, and we are all in your corner rooting you on and chanting your name...Leslie...Leslie...Leslie.. You can do this...and this too shall pass. Love ya, Maryanne Quote Link to comment Share on other sites More sharing options...
Frank Lamb Posted December 9, 2005 Share Posted December 9, 2005 Leslie,sorry I'm late with this,but want you know I'm very much in your corner with you along with everyone else. Quote Link to comment Share on other sites More sharing options...
cindi o'h Posted December 9, 2005 Share Posted December 9, 2005 Now I have to go to confession, as I have been saying some very very bad words for a couple days.. Now that those words are all out, now I can post along with the rest. I am coming toward acceptance of these new findings. And, like with everyone else, I have faith that you and your medical team will be able to beat this back. I also know that you will be able to make all the right treatment choices for Leslie. You haven't been doing all this work for nothing, you know. TAnn, I told you is a level-headed mets fighter. Look to her for advice and inspiration. We are all here for you Leslie! We are your pound puppies who adore you! love, Cindi o'h Quote Link to comment Share on other sites More sharing options...
Debi Posted December 10, 2005 Share Posted December 10, 2005 Leslie, I don't have anything to add to all the posts before me but just wanted you to know that I'm thinking of you too.. Quote Link to comment Share on other sites More sharing options...
gerbil runner Posted December 10, 2005 Share Posted December 10, 2005 Leslie, I know I'm late here, but you can certainly beat this. My mom had WBR, and it wasn't that big a deal. Short-term memory problems, but not bad at all. And she STILL has all her personality. Gamma knife could also be used if some of those mets are too stubborn for WBR. Mom had gamma knife for regrowth. And don't let her story faze you - sclc moves much faster. Your cancer has been easily controlled up to now, so hopefully the WBR will fry the boogers into oblivion. Quote Link to comment Share on other sites More sharing options...
berisa Posted December 10, 2005 Share Posted December 10, 2005 Your husband and friends are the wonderful supports for you, I am so touched that love is just around you and you are so cherished. Don't think too much and hope the weather is getting better there and your WBR works perfectly to kill the mets. You have my thoughts!! Quote Link to comment Share on other sites More sharing options...
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