Patkid Posted December 23, 2005 Share Posted December 23, 2005 This may make no sense. I am now 72 hours w/ no sleep. Bri is in horrible pain. This is new and it is very weird. His right shoulder is aching horribly. He has 'belly pain' to the right of his navel and radiating. He said the pain is so bad that he can't tell if it is like pulled muscles or ????????????? He can't get comfortable in bed and he can't move about at all. When he walks to the bathroom he is nearly doubled in half w/ the pain. When he lies still and flat on his back w/ no pillow he can tolerate it. The pain meds are not touching it. We are not set up w/ hospice yet and so have to get hold of our onc. Bri would not let me call last night be cause he said he hurts so badly he is not able to 'go' anywhere.................He is in agony. I am just so glad we have today before the holiday, at least I feel like we have a chance to get him cared for............. How much can one human being suffer???? Please don't stop praying. P Quote Link to comment Share on other sites More sharing options...
Kel M Posted December 23, 2005 Share Posted December 23, 2005 Prayers coming, Pat!!! Hopefully you'll be able to get in touch with your Onc first thing and Brian's pain can be better managed. If you aren't currently using localized pain patches (morphine), this might be something to consider. Kel Quote Link to comment Share on other sites More sharing options...
Geri Posted December 23, 2005 Share Posted December 23, 2005 I'm hoping that Brian - and you - can get the help you need, holiday or not. Geri Quote Link to comment Share on other sites More sharing options...
Ann Posted December 23, 2005 Share Posted December 23, 2005 Pat and Brian....We will never stop praying for you. Quote Link to comment Share on other sites More sharing options...
joanie55 Posted December 23, 2005 Share Posted December 23, 2005 Sending soooo many prayers to you both. Quote Link to comment Share on other sites More sharing options...
Ry Posted December 23, 2005 Share Posted December 23, 2005 Pat, I hope the onc can do something about his pain today. I really think you need to call hospice today -- not to come--I know you want to wait till after the holiday. I think you need to call and have it set up to start on Monday. Hospice nurses are excellent with pain management and keeping someone comfortable. I think you need the help. Please post later and let us know how he's doing. Quote Link to comment Share on other sites More sharing options...
Jyoung20 Posted December 23, 2005 Share Posted December 23, 2005 Pat and Brian, I'm so so sorry ya'll are having to go through this. I Pray that today will be better. GOD BLESS!! Jamie Quote Link to comment Share on other sites More sharing options...
ginnyde Posted December 23, 2005 Share Posted December 23, 2005 Pat, I agree with Rochelle, you can't do this yourself. Hospice can offer Brian the help he needs to control this pain. I am praying so hard that Brian gets some relief. Please keep us posted. Quote Link to comment Share on other sites More sharing options...
Leslie221 Posted December 23, 2005 Share Posted December 23, 2005 (((Pat and Brian))) All the good recommendations for action have been made by others. This would be almost beyond endurance if you were rested, but with no sleep, it's more like enduring torture. I am so, so sorry this is your experience right now. Sending all prayers that help will arrive and Brian's pain will go away. Leslie Quote Link to comment Share on other sites More sharing options...
Ann Posted December 23, 2005 Share Posted December 23, 2005 Pat, please take Ry's advice and call today. Brian needs to be pain free and you need to get some rest. If you get sick, who will care for Brian? Honey, I know it is hard to make the call to begin Hospice. They may have to work you into their schedule. Maybe if you call today, they can be there for you on Monday. They also have to order meds. In our case, the meds were shipped directly to our house. They could get a lot of the necessary things done ahead of time and be ready to start next week. Honey, please remember to take care of yourself. Quote Link to comment Share on other sites More sharing options...
ma's kid Posted December 23, 2005 Share Posted December 23, 2005 ((((Pat & Brian))))) Praying that Brian gets some relief, please take care of yourself, Pat...please Libby Quote Link to comment Share on other sites More sharing options...
gail p-m Posted December 23, 2005 Share Posted December 23, 2005 Pat and Brian -- My prayers continue for both of you. gail p-m Quote Link to comment Share on other sites More sharing options...
dchurchi Posted December 23, 2005 Share Posted December 23, 2005 (((((PAT))))) So many prayers your way. In fact I think a trip to chapel is in order and I will make a special trip for you and Brian. Quote Link to comment Share on other sites More sharing options...
Guest Lensiedel Posted December 23, 2005 Share Posted December 23, 2005 Pat, I am so sorry to hear of Brian's pain. Bruce was in excruciating pain toward the end. He was on extremely high doses of pain killers and they weren't touching it. He began taking valium, and that seemed to help. He had a large tumor near his liver. He described it as having charlie horses in his stomach. It seemed to be muscle spasms. The spasms continued, but they became less severe and less frequent. Praying, Wendy Quote Link to comment Share on other sites More sharing options...
melindasue37 Posted December 23, 2005 Share Posted December 23, 2005 Pat, I missed your post until just now..... You need to get help Pat. I can't imagine the mental state you are in without sleep for 72 hours. Not to mention the pain of watching Brian so miserable. I hope you were able to get ahold of someone last night or this morning..and that they have some type of relief for Brian. Please, please let us know how you both are doing. Warm Hugs, Melinda Quote Link to comment Share on other sites More sharing options...
Maryanne Posted December 23, 2005 Share Posted December 23, 2005 Dearest Pat, I know everyone has been telling you how wonderful hospice is. Well, they are and that could help you tremendously. There are different hospices for your particular needs. Take a little time today to call around to get help on Monday. I am so worried for you as you have not slep and that certainly is not good. You must somehow get some rest so you can be refreshed to help Brian. I know you are trying to have a good Xmas for the kids and that is fine, but you must let the children help you through this. I know that is what they would want to do. You cannot keep doing this on your own and you must get sleep. I pray today they can get Brian the meds that will work. No one should be in that much pain, they have to control this. Keep that faith in G-d and let him lift you up. I am going to do a special mediatation pray for Brian now. Please know we are all around you giving you hugs and strength which you desperately need. Maryanne Quote Link to comment Share on other sites More sharing options...
jdjenkins Posted December 23, 2005 Share Posted December 23, 2005 Praying you find an answer to the pain. Denise Quote Link to comment Share on other sites More sharing options...
Fall54 Posted December 23, 2005 Share Posted December 23, 2005 Pat, Just another voice chimming in to suggest you call hospice right away! They will take care of his pain. You need to rest so you can be there for him and he needs the relief ASAP. Waiting until after the holidays just may mean he is in this sort of pain all through the holidays. Please, please call them right away. You are both in my prayers God Bless you, Jane Quote Link to comment Share on other sites More sharing options...
J.C. Posted December 23, 2005 Share Posted December 23, 2005 Pat, Special prayers for relief of pain and candle burning. Hugs Jackie Quote Link to comment Share on other sites More sharing options...
Kasey Posted December 23, 2005 Share Posted December 23, 2005 ((((Pat)))), I do think the time is right to ask for some help. You KNOW all our prayers are with you and for you at this time. I am certain I speak for just about everyone here when I say I wish I were closer to offer you respite for some much needed rest. May your faith and trust sustain you...and may you receive the assistance so needed at this time. So much love and so many prayers are in my heart and on my lips at this time. Love, Kasey Quote Link to comment Share on other sites More sharing options...
hopeandstrength Posted December 23, 2005 Share Posted December 23, 2005 More prayers for you. love, Cathy Quote Link to comment Share on other sites More sharing options...
KC Posted December 23, 2005 Share Posted December 23, 2005 Pat, Praying hard for a resolution to Brian's pain. My Dad had the same pain, the pain med's couldn't touch it either. The only relief came from a Dilaudid shot, given in the hospital every three hours. None of the pain pills nor the patch nor morphine helped, but the Dilaudid shot did. Please call hospice today. They can help with the pain and Brian deserves to be pain free. Much love to you. Karen Quote Link to comment Share on other sites More sharing options...
mamasbabygirl Posted December 23, 2005 Share Posted December 23, 2005 Stop praying? Never!!! Quote Link to comment Share on other sites More sharing options...
bunny Posted December 23, 2005 Share Posted December 23, 2005 Pat, oh, honey. I just saw this and I am lost. you HAVE to get some help, for Brian and for you. I pray his pain gets under control sooner, rather than later. Pat, let your family there, friends, whoever, rally around you (or MAKE them). you HAVE to get some rest. we will never, ever stop praying. I just wish I could do something. I can only imagine how helpless and lost you feel. we love you both, and are at your side. make sure Brian knows, too. xoxo amie Quote Link to comment Share on other sites More sharing options...
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