joanie55 Posted July 5, 2006 Share Posted July 5, 2006 Went for an MRI on my spine because I've been having pain in my right leg. I had recently been given great results on my CT scan of lung (Stable). It seems that the metastisis to my sacrum has grown and is pressing on nerves, sending lots of pain down my leg. I saw the radiologist today and will be doing 10 days of radiation and then off to the oncologist to decide either on a new round of chemo or a clinical trial. They are also going to radiate a spot on my spine that grew very slightly. This also means no more Avastin. Oh well, maybe this time I won't lose my hair??? I finally had my first haircut! Thanks for listening. Joan Quote Link to comment Share on other sites More sharing options...
EastCoastLadi Posted July 5, 2006 Share Posted July 5, 2006 Joan, I'm sorry that the news wasn't good, but it sounds like whatever path you go on treatment is going to happen relatively soon (which is a good thing!). I wish you all the best... Grace Quote Link to comment Share on other sites More sharing options...
Don Wood Posted July 6, 2006 Share Posted July 6, 2006 Joan, sorry about the new wave. Lucie found that radiation on bones giving pain always brought relief,and I hope you will find this true, too. Don Quote Link to comment Share on other sites More sharing options...
Connie22 Posted July 6, 2006 Share Posted July 6, 2006 Wishing you the best Joan. I will diffentally say extra prayers. Hugs and prayers Connie Quote Link to comment Share on other sites More sharing options...
bunny Posted July 6, 2006 Share Posted July 6, 2006 I hate to hear this. please let me know what I can do. I just hate it. Quote Link to comment Share on other sites More sharing options...
Debi Posted July 6, 2006 Share Posted July 6, 2006 Joan, Sorry you have to go through this. Hang in there!! It sounds like you've got a plan, just keep putting one foot in front of the other.... Quote Link to comment Share on other sites More sharing options...
Geri Posted July 6, 2006 Share Posted July 6, 2006 I'm hoping that you get some pain relief with the new tx. Good luck Geri Quote Link to comment Share on other sites More sharing options...
Kasey Posted July 6, 2006 Share Posted July 6, 2006 Aw Joan ....................sorry about this for sure. Hopefully radiation will take care of this for you and your hair can stay intact. There's so many clinical trials abvailable, I sure hope there is one to benefit you. Will keep you close in thought and prayer, Joan. Kasey Quote Link to comment Share on other sites More sharing options...
Nushka Posted July 6, 2006 Share Posted July 6, 2006 Joan, I hate that you got this kind of news. Praying that the radiation stops the pain and that the next treatment will be the one for you. Nina Quote Link to comment Share on other sites More sharing options...
Connie B Posted July 6, 2006 Share Posted July 6, 2006 (((((((((((((((((((((JOAN)))))))))))))))))))))) Hang in there kiddo! At least they are working on a game plan. I know it's easier said then done when I say, "hang in there"! Holler if you need an ear and know that we're here for you if you need to vent, or whatever! Quote Link to comment Share on other sites More sharing options...
Treebywater Posted July 6, 2006 Share Posted July 6, 2006 Well... Just... Bleh... Praying for you. Keep us posted on the game plan. We're cheering you on and here to support you! Quote Link to comment Share on other sites More sharing options...
shineladysue Posted July 6, 2006 Share Posted July 6, 2006 Joan, Sorry to hear the news and about the pain, but I'm praying for good results from the radiation. God Bless, Sue Quote Link to comment Share on other sites More sharing options...
Ry Posted July 6, 2006 Share Posted July 6, 2006 I am sorry it wasn't the best news Joanie. I hope you get good results with the next chemo- have you been on Tarceva? Quote Link to comment Share on other sites More sharing options...
joanie55 Posted July 6, 2006 Author Share Posted July 6, 2006 Thanks for all the good wishes. Ry, Tarceva is one of the chemos that my doctor mentioned. I know that it usually works better if you are a "never smoked" person, which is not me, so I don't know?? He's also mentioned altima, gemzar and vinorelbine as possibilities. Never heard of the last one. Joan Quote Link to comment Share on other sites More sharing options...
Jyoung20 Posted July 6, 2006 Share Posted July 6, 2006 Hey Joanie, This is not the news that I wanted to hear. But, I know this is just a little bump in the road and will pass. Hang in there and know that I am praying for you everyday. GOD BLESS! Jamie Quote Link to comment Share on other sites More sharing options...
Ann Posted July 6, 2006 Share Posted July 6, 2006 (((((((((((Joan))))))))))))) I'll be saying lots of prayers for you while you under go treatment. Please keep us posted on your progress. Quote Link to comment Share on other sites More sharing options...
dchurchi Posted July 6, 2006 Share Posted July 6, 2006 Joan, So sorry about this news sounds like you have a good Dr. that has mapped out what to do. Keeping you in our prayers for relief of your pain. Quote Link to comment Share on other sites More sharing options...
dadstimeon Posted July 6, 2006 Share Posted July 6, 2006 Sorry for your set back but glad you have options. Quote Link to comment Share on other sites More sharing options...
marym Posted July 6, 2006 Share Posted July 6, 2006 Joan, Sorry about the news - but the radiation should alleviate the pain. I have already had it for lower spine with leg pain and for the clavicle. Now I am undergoing it (started yesterday) for another spot on my mid spine. I have been in pain for almost 2 months - while they tried to find the cause. When they finally did - the pain seems to have stopped on it's own. I do know that it will be back and that there is a tumor on my spine - so I want to complete the radiation. I have been on Gemcitibine combined with carboplatin. No hair loss, just a little thinning. My blod counts did poorly, but I felt fine and had about 10 cycles. I then went to Alimta for 3 cycles. That's the one that has shown the most success in female non smokers. It didn't work for me. Now he has me going to Taxotera - it's given once a week for 3 weeks then a week off. That allows for few side effects (including no hair loss). I had to stop while getting the radiation, but my first treatment was uneventful. I was also offered Tarceva. Many people have had success with this according to the board. My problem was the serious rashes that are part of the treatment. Apparently they are suffered by close to 100% of the folks and are at the point of pain and needing antibiotics. I guess the combination of my vanity and comfort demands made me tell the doctor to try something else. I have since been advised that I should reconsider this. If the current regimen is not effective, I might try Tarceva. My nurse suggests that working to treat the side effects would be smarter than just not taking the drug. She also said that there may soon be a study that relates the greatest success of Tarceva in the cases where the rash was most severe. Good luck with your treatment. Mary Quote Link to comment Share on other sites More sharing options...
MilliBr1 Posted July 6, 2006 Share Posted July 6, 2006 Sorry to hear this. You are in my prayers. Quote Link to comment Share on other sites More sharing options...
flwrjunke Posted July 6, 2006 Share Posted July 6, 2006 Joanie, I'm so sorry your test result came back as they did. Please know I'm saying extra prayers for you and I hope radiation treatments gets your pain under control. Patty Quote Link to comment Share on other sites More sharing options...
Don M Posted July 7, 2006 Share Posted July 7, 2006 Joan; I hope the bone mets are dealt with sucessfully and you cacn get on to another chemo soon. don M Quote Link to comment Share on other sites More sharing options...
Welthy Posted July 7, 2006 Share Posted July 7, 2006 Joan, So sorry to hear about this new set-back. Remember TWO steps forward and only ONE step back is the rule!! I don't know a darn thing about bone mets, but I've heard the name of the drug zometa bandied about the oncs office. Is this for bone mets? If so, could they use this on you? (Just curious.) My best to you for speedy change in the pain. Welthy Quote Link to comment Share on other sites More sharing options...
trish2418 Posted July 7, 2006 Share Posted July 7, 2006 Joanie, Sorry to hear about the test results -- you're in my thoughts and prayers. By the way, I quit smoking the day I was diagnosed (one year ago), and am currently taking Tarceva. I'm happy to say that I've never felt better. It's definitely worth thinking about taking Tarceva. Hugs, Trish Quote Link to comment Share on other sites More sharing options...
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