Nancy B Posted November 2, 2006 Share Posted November 2, 2006 This may be alittle long, so I apologize. I finished 6 weeks of radiation along with 6 weekly chemos of Cisplatin. After 3 weeks I started on Navelbine and Gemzar. Chemo No. 2, blood counts were down so got only a half dose of Gemzar with the Navelbine. Did not get #3 as blood counts are awful. The next week I have extreme SOB and pain in the chest area. No chemo once again, sent for a ct scan and put on 30 mg of Predisone daily. This was yesterday, feel much better today, til the doctor called. They are concerned as there is something in the airway that is blocking the air to what is left of my left lung and causing it to deflate. I am seeing a surgeon tomorrow and they will do a bronchoscopy and use a laser or put in a stent to open this up. Not sure when this will happen. There is always a chance that it is a tumor, could be radiation scarring or ???? I am really nervous about this - this is my 3rd time around for lc. Has anyone been through this? Thanks for "listening" and know that all of you are in my prayers every day. Nancy B Quote Link to comment Share on other sites More sharing options...
Kasey Posted November 2, 2006 Share Posted November 2, 2006 (((Nancy))), Praying for you, friend. I haven't been through lc 3 times and sure am sorry this is happening to you. Here's to the hope that it isn't cancer and the stent will be the remedy. Guess with the low counts you haven't been feeling so great, huh? So I won't even ask that. Know you're in my thoughts and I'm sending special delivery all the good 'stuff' I got. Kasey Quote Link to comment Share on other sites More sharing options...
chloesmom Posted November 2, 2006 Share Posted November 2, 2006 Hi Nancy, I've been wondering how you were doing, and am sorry to hear that you've got some low counts and sob and all that. I had Gemzar and I did have SOB during my chemo. That is a side effect of the gemzar, but I don't have any knowledge of airway obstructions. I had a bronchoscopy and they did it while I was under general anesthesia for my lobectomy, so I can't tell you anything more about it except that I spit up dry blood a little bit for a couple of days after surgery and that's what I was told it was from. I didn't have a sore throat or any other side effects that I can recall. I think scarring from radiation is always a possibility when you've had radiation to the chest. Good luck, and I'll be giving you all my best thoughts. Cindy Quote Link to comment Share on other sites More sharing options...
Ry Posted November 2, 2006 Share Posted November 2, 2006 Nancy- You've been through a lot -- just want to say I am thinking of you and wishing you well. I hope the procedure will help. Quote Link to comment Share on other sites More sharing options...
tnmynatt Posted November 2, 2006 Share Posted November 2, 2006 You might want to discuss brachytherapy with them, which is internal radiation just to the one area. They can tell by doing the bronch if it is feasible. It may have less risk than a stent. Prayers for you and all involved. Take care. Quote Link to comment Share on other sites More sharing options...
Andrea Posted November 2, 2006 Share Posted November 2, 2006 No experience with it, just wanted to say I have been thinking of you! Quote Link to comment Share on other sites More sharing options...
KatieB Posted November 2, 2006 Share Posted November 2, 2006 (((Nancy))) I've got you in my prayers everyday. I wish I could add something to help with what you're experiencing, but I have prayers that things begin to get better and more encouraging news is on the way. Please keep us posted. We will be here for you Quote Link to comment Share on other sites More sharing options...
Don M Posted November 2, 2006 Share Posted November 2, 2006 Hi Nancy. I am on my 3rd cancer too. But "lucky" for me I guess, I just get it a little bit. I hope the procedure goes well and it is just a scarring feature. Don M Quote Link to comment Share on other sites More sharing options...
ernrol Posted November 2, 2006 Share Posted November 2, 2006 Nancy, We will be praying for you. Ernie Quote Link to comment Share on other sites More sharing options...
Treebywater Posted November 2, 2006 Share Posted November 2, 2006 ((((Nancy)))) Thank you for the update. I sure wish things were going better for you. I won't stop praying! Quote Link to comment Share on other sites More sharing options...
Nushka Posted November 2, 2006 Share Posted November 2, 2006 Nancy, I have been thinking about you and wondering how you were. It sounds like you have been busy with all the wrong things. I am sorry about all the problems with chemo and now this obstruction. Hope it turns out to be scar tissue and can be stented for an easy fix. Keeping you in my prayers. Hope that soon you will be feeling like a vacation instead of another hospital visit. Nina Quote Link to comment Share on other sites More sharing options...
Frank Lamb Posted November 2, 2006 Share Posted November 2, 2006 over and over here over and over here too.Kent member how mant times here. Hang in with us. Quote Link to comment Share on other sites More sharing options...
cindi o'h Posted November 2, 2006 Share Posted November 2, 2006 okay, Nancy. Was wondering how things were going for you. You have been a strong minded and busy girl. So proud of you for hunkering down for this one too. 'Course I haven't an idea of what comes ahead for you, but I am here to wish you the best outcome with the least amount of discomfort. Go Nancy! Go! (that's a hot car!) love, Cindi o'h Quote Link to comment Share on other sites More sharing options...
mamasbabygirl Posted November 2, 2006 Share Posted November 2, 2006 You are such a fighter, a true inspiration to so many people who don't know if they can do it. I am praying for you that the Dr. can find a fix so you can breathe and enjoy the holidays. Prayers and hugs for you!!! Quote Link to comment Share on other sites More sharing options...
dchurchi Posted November 2, 2006 Share Posted November 2, 2006 Nancy, everytime Alan and I watch the drag races I think of you (actually more often than that). I am sorry you are having a rough go, I do not have any info, just wanted you to know Alan and I are praying for you. Quote Link to comment Share on other sites More sharing options...
Patkid Posted November 2, 2006 Share Posted November 2, 2006 I AM SO HAPPY TO SEE YOU POST. Nancy, it is okay to be scared and angry. I am too I love you, racing friend. And I care more than I can say. I have you in prayer, by name, every single day. Love Pat Quote Link to comment Share on other sites More sharing options...
Maryanne Posted November 2, 2006 Share Posted November 2, 2006 Hi Nancy, So sorry to see this post. I was also wondering how you were doing, I just wish there was much better news. I feel so bad for all you are going through. You are a very brave lady. Just keep hanging in there, I know this will all work out with positive (good) results. I am sending prayers for them to get this deflated lung thing taken care of so you can continue on with your chemo. And yes, it could very well just be scarring tissue. Please Nancy keep us informed. Maryanne Quote Link to comment Share on other sites More sharing options...
gail Posted November 2, 2006 Share Posted November 2, 2006 Don't have any words of wisdom, just glad to hear from you. Hoping things improve gail Quote Link to comment Share on other sites More sharing options...
karen335 Posted November 2, 2006 Share Posted November 2, 2006 Nancy, Glad to see your post. Sorry you are having these problems. Broncoscopy, have had two, done by Pulmonary doctor under anesthesia no problems. Can a CT or PET show what is blocking the airway? have you considered Cyberknife if it's a tumor? I just had it to the brain in San Diego. San Diego Cberknife. Great doctors there, Don M is familiar with this treatment... Saying prayers for you each day! You are a strong woman, Jesus loves you and so do I. Keep on fighting and as Lance Armstrong says "Live Strong"... God Bless and gentle hugs, Karen Quote Link to comment Share on other sites More sharing options...
sharyn Posted November 2, 2006 Share Posted November 2, 2006 Dear Nancy, Just know I am praying..... Quote Link to comment Share on other sites More sharing options...
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