mary colleen Posted April 16, 2007 Share Posted April 16, 2007 As I have mentioned in a previous recent post, my husband is having some severe vision problems. They reached a new peak this morning. He is scheduled for a brain MRI this afternoon, and we should get the results today. I feel like this is probably not brain mets, but please add us to the prayer efforts. (Teri W, I haven't forgotten you guys today, and I'm still praying for the best for you.) Quote Link to comment Share on other sites More sharing options...
fillise Posted April 16, 2007 Share Posted April 16, 2007 Done! Please be sure to let us know. Quote Link to comment Share on other sites More sharing options...
trish2418 Posted April 16, 2007 Share Posted April 16, 2007 Sending my prayers. Good luck. Trish Quote Link to comment Share on other sites More sharing options...
Tanner Posted April 16, 2007 Share Posted April 16, 2007 You are in my thoughts and prayers today. Be gentle with yourselves. I would like to add tho, that having been thru this day myself - brain mets is NOT the end of the world. We thought that it was - and we were wrong. You can get throught this. Keep us posted. Tanner Quote Link to comment Share on other sites More sharing options...
ernrol Posted April 16, 2007 Share Posted April 16, 2007 Will keep you in prayer. Stay positive, Ernie Quote Link to comment Share on other sites More sharing options...
mary colleen Posted April 16, 2007 Author Share Posted April 16, 2007 Maybe someone can tell me - has anyone maybe experienced severe vision problems as a chemo after-effect? If you have, please let me know. Thanks Quote Link to comment Share on other sites More sharing options...
mary colleen Posted April 16, 2007 Author Share Posted April 16, 2007 Well, I guess in my heart, I knew this one; my husband has a 3cm tumor in the occipital lobe of his brain. We have some appointments in the upcoming few days (CT scans of his chest, liver, adrenals...neurosurgeon, radiologist) to determine what the next steps are. The onc thought that we are probably looking at standard brain surgery rather than cyber knife, but it sounds as if surgery will not be done if there is any evidence of additional mets elsewhere. I'm somewhat in shock, and heartbroken that I have to tell our kids this. One is away at school, and the other is in the Army. I think I am partly stunned simply because it has been only 10 weeks since his first line chemo ended - I always knew that something like this could happen, but I guess I thought that if it did, there would be a longer remission period. Thanks to all of you for being here. mc Quote Link to comment Share on other sites More sharing options...
Shelley (MLC) Posted April 16, 2007 Share Posted April 16, 2007 I am so very sorry about your news. Hold onto your hope and faith. I will be praying for good results everywhere else, so they can go ahead and take care of this! Shelley Quote Link to comment Share on other sites More sharing options...
Nushka Posted April 16, 2007 Share Posted April 16, 2007 I am so sorry about your news. Praying that the rest of the tests will be negative and that surgery will be the answer you need. Keeping you in my prayers. Nina Quote Link to comment Share on other sites More sharing options...
alexan Posted April 16, 2007 Share Posted April 16, 2007 A lot of faith, and prayers are on your way a hug bucky Quote Link to comment Share on other sites More sharing options...
Tanner Posted April 17, 2007 Share Posted April 17, 2007 My mantra - it's ok, it's ok, it's ok. There are many things they can do to from surgery to cyber knife to whole brain radiation. Don't give up yet. It's OK. Keep us posted on the next round of test results and the next steps. Tanner Quote Link to comment Share on other sites More sharing options...
MEA Posted April 17, 2007 Share Posted April 17, 2007 Prayers going up! Mary Quote Link to comment Share on other sites More sharing options...
mamasbabygirl Posted April 17, 2007 Share Posted April 17, 2007 Oh man! I will say a prayer for you. Quote Link to comment Share on other sites More sharing options...
beatlemike Posted April 17, 2007 Share Posted April 17, 2007 Prayers going out for you from a fellow Nebraskan,Lexington here. Hope and pray the best for your family. I also was stage 2b. Quote Link to comment Share on other sites More sharing options...
Heather_T Posted April 17, 2007 Share Posted April 17, 2007 Prayers going up for you and your family. Quote Link to comment Share on other sites More sharing options...
dadstimeon Posted April 17, 2007 Share Posted April 17, 2007 Prayers all goes well. Quote Link to comment Share on other sites More sharing options...
wendyr Posted April 17, 2007 Share Posted April 17, 2007 Prayers for a good outcome on all the other tests. Good Luck & God Bless wendyr Quote Link to comment Share on other sites More sharing options...
Welthy Posted April 17, 2007 Share Posted April 17, 2007 Mary, Sorry about the news -- hang tough and keep the faith. I know how much it hurts to see new areas pop up. Many hugs for you. My husband's brother had 3 brain tumors including one in the occipital lobe. They did standard surgery on one. He did well with the surgery. High hopes for good news on the other tests. Welthy Quote Link to comment Share on other sites More sharing options...
Don M Posted April 17, 2007 Share Posted April 17, 2007 Mary Colleen, I am sorry you got such bad news. you all have my prayers. Don M Quote Link to comment Share on other sites More sharing options...
carolhg Posted April 18, 2007 Share Posted April 18, 2007 I hate the results that you got. You both are in my prayers. Carol Quote Link to comment Share on other sites More sharing options...
hockeyma Posted April 18, 2007 Share Posted April 18, 2007 Frig - I am so sorry that they found this....however in a positive light - it is found and they can work with him. Good luck in the rest of the tests. All the best, Heather Quote Link to comment Share on other sites More sharing options...
asmakis Posted April 18, 2007 Share Posted April 18, 2007 I remember when we found out that my dad had a brain met. We were devestated and then someone posted and said "brain met, brain schmet" or something like that. Well anyway they were right, after 10 radiation treatments, it was 99% gone. He never experienced anymore awful headaches. My thoughts are with you. Warmly, Amanda Quote Link to comment Share on other sites More sharing options...
trish2418 Posted April 18, 2007 Share Posted April 18, 2007 Sending prayers your way. Stay strong. Trish Quote Link to comment Share on other sites More sharing options...
teriw Posted April 20, 2007 Share Posted April 20, 2007 MC, I'm so sorry -- I just saw your post. This is very frightening news I'm sure, and I know it must have been such a shock to all of you. But you must not forget that there are a lot of people on here who have had brain mets successfully treated. I will be praying for your hubby for 100% successful treatment, and for your family that your anxiety be eased. Please keep us updated on the other scans. Much love, Quote Link to comment Share on other sites More sharing options...
mary colleen Posted April 20, 2007 Author Share Posted April 20, 2007 Thanks all; consult with the radiologist was today, new CT and PET scans are tomorrow, as well as an appointment with a neurosurgeon. For reasons I cannot quite grasp, the Dr. today had to repeat emphatically at least 4 times during out visit that "this is no longer curable" and that "this development certainly changes the survival outlook". WHY would he think that my husband needed to hear that? I just don't get that. What is the purpose of such rambling? One more time, and I think I would have had enough adrenaline to toss him out into the hallway. I'm usually a calmish, objective, coping type under tough conditions, but I actually began to feel physically agitated. My husband is beginning to show depression, sadness, anger and fear, and this guy didn't help. He didn't help at all. Vic (my husband) even mentioned to the doc...in an attempt to find some glimmer of hope...that I had told him that Lance Armstrong had brain mets and recovered well. The doctor had to say that Lance had a germ cell tumor, which is very different from LC, and that we could not expect results like that. NICE. Thanks, Doc.) I just do not understand why anyone would feel the need to grind into the bones of a struggling cancer patient that his outlook is not statistically favorable - I really don't. OK - rant completed, at least for now. Thanks for listening. We have whole body PET and CT scans tomorrow. Hopefully, I'll be a little more cheerful after that, and hopefully I will not have found the doctors car and let the air out of all 4 tires:) Again, thanks to all of you for being here. Quote Link to comment Share on other sites More sharing options...
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