ginnyde Posted July 15, 2004 Share Posted July 15, 2004 Today marks one week that Earl has been home under hospice. The hospital bed is in the family room and he is the center of our world. The hospice health aide comes in daily to attend to his personal needs. The nurse comes in about every 5 days, I thought it would me more often. I have hired a terrific LPN who comes for 5 hours on the days I work. Our daughters take over after she leaves until I get home. Earl has no pain. His appetite is fine. His cognitive thinking is great. He has been coughing more than before but the biggest problem is weakness, unbelievable weakness. We have been getting him up into his recliner each day to give him a change of scenery. He is an excellent patient. I sleep on the couch next to him and I get up more often during the night than he does. I am having a short procedure tomorrow at the hospital so I am having more help tomorrow and hopefully over the weekend. This is the hardest thing I have ever done. My eyes are always floating in tears. Earl told hospice he gets very sad when he sees me cry since he can't do anything to help. See he always looks out for me. So we all try very hard to not cry, to talk about normal things alot and to keep his spirits up. I love you all and so appreciate your kind words of support and caring. Quote Link to comment Share on other sites More sharing options...
shirleyb Posted July 15, 2004 Share Posted July 15, 2004 Ginny, You and Earl are always in my thoughts and prayers. I hope things go well for you today. It is heartbreaking to watch our loved ones go like this. We try not to cry. Randy was the same way with me crying...it seemed like as soon as I was out of his sight the floods came on. That way I could be with him and not cry in front of him. My heart goes out to you all. I wish there was more I could do. Much love, Shirleyb Quote Link to comment Share on other sites More sharing options...
J.C. Posted July 15, 2004 Share Posted July 15, 2004 Ginny, All is well, for you and Earl, as far as the hospice is concerned. It is hard to keep smiling for Earl, and hide your tears, when your heart is breaking. But it is necessary for both of you. Prayers are always on the way for both of you. Hugs J.C. Quote Link to comment Share on other sites More sharing options...
karenl Posted July 15, 2004 Share Posted July 15, 2004 Hi Ginny I am glad to hear that things are going well at home and that Earl is not in any pain. I do so admire your strength in dealing with this, and at the same time you show such caring and compassion for other members of this community who are also having a difficult time. I am thinking of you both. Karen Quote Link to comment Share on other sites More sharing options...
Ry Posted July 15, 2004 Share Posted July 15, 2004 Ginny, This is the sadest chapter... I am so sorry Earl is so weak. I am glad you found someone good to help you. Rochelle Quote Link to comment Share on other sites More sharing options...
DollyPardonMe Posted July 15, 2004 Share Posted July 15, 2004 Ginny, I'm so sorry to hear your husband is so weak. I feel you holding back tears in front of Earl is for the best. I know this is breaking your heart but always know we are here for you. God bless you and Earl & your entire family. Theresa Quote Link to comment Share on other sites More sharing options...
shelliemacs Posted July 15, 2004 Share Posted July 15, 2004 my eyes are swimming as well Ginny. Earl is one remarkable man. I am sorry this is happening, I wish I could wave a wand and make it all better. Quote Link to comment Share on other sites More sharing options...
brm1949 Posted July 15, 2004 Share Posted July 15, 2004 Ginny, my prayers and compassion go out to the two of you. Glad there is no pain. Sorry it has to be this way. Quote Link to comment Share on other sites More sharing options...
gail Posted July 15, 2004 Share Posted July 15, 2004 I wish it could all be changed for you and Earl, but please know we are with you. Your depth of your courage and love is so clear. gail Quote Link to comment Share on other sites More sharing options...
Frank Lamb Posted July 15, 2004 Share Posted July 15, 2004 Ginny, I'm sorry Earl is so weak,yet glad he is eating and not in any pain.Good luck with your procedure tomorrow. Quote Link to comment Share on other sites More sharing options...
Remembering Dave Posted July 15, 2004 Share Posted July 15, 2004 Ginny, Earl is a very lucky man to have you in his life. It is great that you have things unde control with his care. I could not imagine not cying in your situation. Good luck with your proceedure at the hospital. You and Eal ae in my payers always. David C Quote Link to comment Share on other sites More sharing options...
berisa Posted July 15, 2004 Share Posted July 15, 2004 Ginny, you are very strong, your love to Earl is endless. You both are always popped in my thought. Quote Link to comment Share on other sites More sharing options...
Elaine Posted July 15, 2004 Share Posted July 15, 2004 My best to Earl and you. Your courage, love and faith will see you through. Keep making memories. elaine Quote Link to comment Share on other sites More sharing options...
gail p-m Posted July 15, 2004 Share Posted July 15, 2004 Oh Ginny, I sit here with tears in my eyes. I am so sorry for what both of you are going through. The mutual love came through in your post. I teared up when I read about Earl feeling helpless unable to cheer you up when you had tears in your eyes. What can I say? I'm so sorry. Thoughts and prayers to you both. Gail Quote Link to comment Share on other sites More sharing options...
Margaret Posted July 15, 2004 Share Posted July 15, 2004 Ginny, It was not possible to read your post without tears. This is such a difficult chapter...all those emotions right on the surface. The compassion, understanding and love shine through and it is wonderful to know that Earl is out of pain and surrounded by love. I hold you close during this time and always. Margaret Quote Link to comment Share on other sites More sharing options...
Snowflake Posted July 15, 2004 Share Posted July 15, 2004 Ginny, I'm sorry your Earl is so weak. Glad to hear he has an appetite, are you bringing home favorites as take-out occassionally? Still having meals together? Try some candlelit dinners so if the tears sneak out, he doesn't see them AND you have some romance for both of your souls... My thoughts are with you, Ginny, not sure where I put my thoughts, but they're with you... xxoo, Becky Quote Link to comment Share on other sites More sharing options...
TAnn Posted July 15, 2004 Share Posted July 15, 2004 Ginny, I am so sorry that you and Earl are going through this. May God be with you and bless you with the strength that you will need. You have a wonderful husband who loves you and he has a beautiful wonderful wife. You both are both blessed. My prayers are with you both. TAnn Quote Link to comment Share on other sites More sharing options...
bluebayou Posted July 15, 2004 Share Posted July 15, 2004 Ginny, The tears just flow and I cant do anything. I'm so very sorry. Love, Francine God Bless us All Quote Link to comment Share on other sites More sharing options...
Tiny Posted July 15, 2004 Share Posted July 15, 2004 ginny- life is unbearably hard right now,,,your tears are understandable. HOW i wish there were no need for them. prayers for the two of you and family. Quote Link to comment Share on other sites More sharing options...
Fay Posted July 15, 2004 Share Posted July 15, 2004 Ginny, I am in awe of the relationship you two have. Truly a love story. Prayers for comfort for you both. Faylene Quote Link to comment Share on other sites More sharing options...
Don Wood Posted July 15, 2004 Share Posted July 15, 2004 You two continue in my prayers. Don Quote Link to comment Share on other sites More sharing options...
karen335 Posted July 15, 2004 Share Posted July 15, 2004 Ginny, You and Earl are always in my prayers and thoughts. Praying strength for Earl and a miracle. God Bless you both... Lots of prayers and gentle hugs, Karen Quote Link to comment Share on other sites More sharing options...
angelb Posted July 15, 2004 Share Posted July 15, 2004 Hi Ginny, {{{{{{{{{{{hugs}}}}}}}}}}} I am so sorry that you and Earl and the rest of your family have to go through this. Your posts sound so much like my mom when she would call me and give updates about my dad. I pray each day for you and everyone else on this board. God Bless you! Angela Quote Link to comment Share on other sites More sharing options...
Candy Posted July 15, 2004 Share Posted July 15, 2004 I am so sorry for your pain Ginny. I wish there was more I could do. Quote Link to comment Share on other sites More sharing options...
Andrea Posted July 15, 2004 Share Posted July 15, 2004 Ginny, I can envision your pain. i am teared up right now, I don't know what to say except that i am thinkign of you Quote Link to comment Share on other sites More sharing options...
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