Ry Posted February 25, 2006 Share Posted February 25, 2006 Well so far it does not feel like Alimta is our friend. I am hoping John's scan proves us wrong and that it is working and all the side effects he is experiencing are worth it. The second treatment has really knocked him down with extreme fatigue and flu like symptoms. He also has a terrible cough that seems to be worse at night and keeps him up most of the night. Just when he begins to feel better it's almost time for the next treatment. His scan is scheduled 2 days before treatment #3. He told the nurses he wanted the results prior to the treatment because if its not working he's not doing #3. So we're hanging in there. Quote Link to comment Share on other sites More sharing options...
tnmynatt Posted February 25, 2006 Share Posted February 25, 2006 Ry, Has John been checked for pneumonitis? The coughing could indicate pneumonitis, which would require prednisone to clear up. Charlie's coughing has now stopped after being on the prednisone for a couple of weeks. He was coughing all the time and was uable to sleep. If John's treatment ends up changing, I highly recommend trying to get Avastin as a part of his treatment. It has been a wonder drug for Charlie! My thoughts and prayers are with you both. Take care. Quote Link to comment Share on other sites More sharing options...
Frank Lamb Posted February 25, 2006 Share Posted February 25, 2006 We will be hoping and praying here that the Alimta does help and that John's next scans turn out good. Quote Link to comment Share on other sites More sharing options...
Connie22 Posted February 25, 2006 Share Posted February 25, 2006 Rye, I hope everything is fine. You and John have been such an inspiration to me and my mom, beings John is so similar to her diagnosis. You two have really given us hope and encouragement. Our prayers are going upr for you two. Keep us posted. Hugs & Prayers Connie Quote Link to comment Share on other sites More sharing options...
jorja Posted February 25, 2006 Share Posted February 25, 2006 Ry, I don't have any advice but do have prayers. Praying that the scans results show good results. love, jorja Quote Link to comment Share on other sites More sharing options...
dadstimeon Posted February 25, 2006 Share Posted February 25, 2006 Rochelle, My thoughts and prayers are with you, John and the kids for the best as always. Richard Quote Link to comment Share on other sites More sharing options...
Kasey Posted February 25, 2006 Share Posted February 25, 2006 Let's hope that all the side effects are indicative of Alimta WORKING!!! So sorry this has John knocked down. How many rounds is he to have, I forget? Thinking of you both, Rochelle. May John be treated kinder with the future treatments. That's my hope, anyway. Kasey Quote Link to comment Share on other sites More sharing options...
Don Wood Posted February 25, 2006 Share Posted February 25, 2006 Ry and John, Lucie just got her second round of Alimta yesterday. She has not had a bad cough, but she has had aching all over from time to time. As posted elsewhere, her eyes tear a lot. We are keeping the nausea down with Reglan and snacks. We will probably not get a scan until the 4th round. Hang in there. Don Quote Link to comment Share on other sites More sharing options...
Snowflake Posted February 25, 2006 Share Posted February 25, 2006 Always good thoughts for you guys, RY. Quote Link to comment Share on other sites More sharing options...
CharlieD Posted February 25, 2006 Share Posted February 25, 2006 Sounds like John's experience with the Alimta is the same as mine. After the 2nd treatment, results of CT were stable and then the big improvements were a 30% shrinkage after the 4th one so he might want to hang in there after the 2nd if improvement isn' noted. Good Luck with it John. CharlieD Quote Link to comment Share on other sites More sharing options...
francesbean Posted February 25, 2006 Share Posted February 25, 2006 Hi Ry, My prayers that the results of John's upcoming scan be great... Love, Frances Quote Link to comment Share on other sites More sharing options...
bunny Posted February 25, 2006 Share Posted February 25, 2006 Hi Ry I wish he felt better, but I do hope the scans show that the Alimta is going what it's meant to. xoxo amie Quote Link to comment Share on other sites More sharing options...
luvmydog2 Posted February 25, 2006 Share Posted February 25, 2006 Hope the next scans turn out ok. You bothg have been an inspiration to me as I travel this journey. Quote Link to comment Share on other sites More sharing options...
Patkid Posted February 25, 2006 Share Posted February 25, 2006 Ry, thank you for the update on John. John, hang in there, hopefully all the misery is not without good results. I am praying. Love Pat Quote Link to comment Share on other sites More sharing options...
gail Posted February 25, 2006 Share Posted February 25, 2006 Here's hoping for only the BEST!!! gail PS Taking ativan all day with my last chemo for breast made it one very happy day Quote Link to comment Share on other sites More sharing options...
gail p-m Posted February 25, 2006 Share Posted February 25, 2006 Hoping John's scans show that Alimta is doing what it is supposed to be. Prayers. gail p-m Quote Link to comment Share on other sites More sharing options...
karen335 Posted February 25, 2006 Share Posted February 25, 2006 Ry, Sending prayers for you and John... Always every day! Please keep us posted, You are both very special peeps... Karen Quote Link to comment Share on other sites More sharing options...
daggiesmom Posted February 26, 2006 Share Posted February 26, 2006 Ry and John,prayers for you both. ((())) Joanie Quote Link to comment Share on other sites More sharing options...
Geri Posted February 26, 2006 Share Posted February 26, 2006 I'm hoping that everything's working and John feels better real soon. You're both in my thoughts. Geri Quote Link to comment Share on other sites More sharing options...
Connie B Posted February 26, 2006 Share Posted February 26, 2006 Oh Ry and John, I am sorry to hear the Alimta isn't that magic bullet we had all hoped it would be. I do admire John for giving this some thought in that if it's NOT working then stop doing it. I think that is a wise choice. But, in the mean time, I am going to hope and pray there is something coming down the medical drug pike that will work for John and can be a new game plan for him. Your both in my thoughts and prayers. ((((((((((((ROCHELLE & JOHN)))))))))))) Quote Link to comment Share on other sites More sharing options...
MilliBr1 Posted February 26, 2006 Share Posted February 26, 2006 You both are in my prayers. Quote Link to comment Share on other sites More sharing options...
Carleen Posted February 26, 2006 Share Posted February 26, 2006 Prayers for John and Ry! Keith also had lots of exhaustion and flu like symptoms with the Alimta. I pray that regardless of these terrible side effects that the Alimta is also hard on those cancer cells and is destroying them like fire. Quote Link to comment Share on other sites More sharing options...
Maryanne Posted February 26, 2006 Share Posted February 26, 2006 Hi Ry, This is the last post that I was viewing before I wwnt to bed. This is not what I want to hear when I'm about to go to sleep. But it seems to me that there, very possibly, can be light starting at the end of that tunnel. It seems you need to take more treaments before works. What Charlie told us about his experience with Altima sounds just like John's. And he received such a positive result. Also, all our members who wrote to you. So those positive responses to you. I pray for John's test to show good results, but if not there is always time. This will work! I know your scared, Ry, wish I could give you a hug.((((RY)))) Your right ya know, wouldn't it be wonderful if Cindi's Pub was real. The strength we would get from seeing each other. Anyway, this is the next best thing. Letting everyone know that we care. We really do. I have you in my prayers also, Rochelle, Your friend, Maryanne Quote Link to comment Share on other sites More sharing options...
Debi Posted February 26, 2006 Share Posted February 26, 2006 Ry, You know my thoughts are always with you and John- you are two of my favorite people. I know you'll keep us posted. IF you need anything, I'm here.. Quote Link to comment Share on other sites More sharing options...
karen335 Posted February 26, 2006 Share Posted February 26, 2006 Nice Avatar!!! What a handsome couple... Sending prayers for good scan results. Karen Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You can post now and register later. If you have an account, sign in now to post with your account.