melindasue37 Posted August 30, 2006 Share Posted August 30, 2006 I never realized what this disease would finally do to my Mom. God, it hurts so bad to see her like this. She can no longer get out of bed. She is so weak. She doesn't even have the strength to suck anything out of a straw. The hospice nurse is coming in tomorrow so hopefully she will have some ideas of something that we can do. I always feel like there is something I should be doing, saying. I just don't know what. I'm back at home this week. I took my two children to see her this past weekend which was nice. I have lost all hope and am so numb I can't seem to cry. I try to get the thought of her leaving this world out of my mind but it pops into my mind within seconds and hits me like a brick emotionally. My older sister is there with my stepdad helping take care of her. I just got off the phone with her and she said this has been the worst day so far. My Mom is getting very irritable and her mind is going. I talked with her on the phone for a few seconds to tell her I loved her and she started talking about something I couldn't understand. My sister told me that she couldn't remember her name during the day today. She doesn't like taking medication so I know it isn't the drugs making her talk such jibberish. My sister told me that when she does get some of the Ativan in her (you can't tell her she is taking it) that it calms her down a little bit. She still is fighting and hasn't given up. She keeps saying she has to get better. I don't know if she will ever let us tell her how much we are going to miss her. I'm heading down on Friday to spend the long weekend with her. I hope this week goes by quickly. Warm Hugs, Melinda Quote Link to comment Share on other sites More sharing options...
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