Jyoung20 Posted February 10, 2009 Share Posted February 10, 2009 Hey Friends!! I wanted to share with you guys the news from my scan and onc. appointment yesterday. The scan results were great and my onc. told me that I was his longest Tarceva survivor. 4 years and counting. I was wondering if any of you know what happens after 5 years on Tarceva.. Do you just continue to take it? He said he may wean me off of it, but that scares me a little.. Your opinions would be greatly appreciated. Love and God Bless!! Jamie Quote Link to comment Share on other sites More sharing options...
Bruce u Posted February 10, 2009 Share Posted February 10, 2009 Sorry Jamie I cannot answer your question but CONGRATULATIONS on the good news. You are such an inspiration on here for everyone. From all your advocacy work, willingness to help others, to your positive attitude. It is so great to see you get these results. Quote Link to comment Share on other sites More sharing options...
Kasey Posted February 10, 2009 Share Posted February 10, 2009 What awesome news, Jamie. I know nothing about Tarceva, but do understand your trepidation about stopping it. How wonderful it would be to wean off of it and remain NED indefinitely! Wow.....what a thought. Kasey Quote Link to comment Share on other sites More sharing options...
Barb73 Posted February 10, 2009 Share Posted February 10, 2009 Hey, Jamie, Your news is fantastic, terrific, wonderful, and every lovely adjective - imaginable. As to your question, I don't know anything too much about Tarceva. We're presently doing it for Bill after four years of having received a few other regimens. My human, layperson's thinking would be: That the first thing, and every thing thereafter, would be to research through to see how many were weaned, and how they did with that. I am sure Dr. West would have insight into that. You are truly blessed with your results, Jamie, dear, and it is music to my eyes to see them. I love seeing good news. It does my heart good. Love you, Barbara Quote Link to comment Share on other sites More sharing options...
LovesLife Posted February 10, 2009 Share Posted February 10, 2009 Jamie - sorry I can't offer any information re: Tarceva, but I sure can let out a big "whoopie" at the great news of another good scan. You are definitely an inspiration to all of us here. Let us know if you get any answers to your Tarceva question. Linda Quote Link to comment Share on other sites More sharing options...
Flyman35 Posted February 10, 2009 Share Posted February 10, 2009 Way to go Jamie!! WOO HOO!!!!! Denise Quote Link to comment Share on other sites More sharing options...
jaminkw Posted February 10, 2009 Share Posted February 10, 2009 Jamie, four years NED is awesome news. I can understand your questioning "what next?" It's hard to consider changing what's working. Judy in Key West Quote Link to comment Share on other sites More sharing options...
Patti B Posted February 10, 2009 Share Posted February 10, 2009 Jamie- CONGRATULATIONS!!! YOU DEFINITELY ROCK!!!!!! I have no idea about the Tarceva question but am absolutely thrilled by your good news. Keep up the good work - let us know if you find the answer to your question!! Hugs - Patti B. Quote Link to comment Share on other sites More sharing options...
shineladysue Posted February 10, 2009 Share Posted February 10, 2009 Jamie, Your news is wonderful. I am so very happy for you. Hope you can find the answers you need about the Tarceva. In the meantime, you are a real inspiration to so many. Hugs, Sue Quote Link to comment Share on other sites More sharing options...
Bud Baker Posted February 10, 2009 Share Posted February 10, 2009 Congrats, Jamie! I, too, cannot answer your tarceva question, but I suspect you are navigating uncharted waters. Quote Link to comment Share on other sites More sharing options...
MsC1210 Posted February 10, 2009 Share Posted February 10, 2009 Jamie CONGRATS!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!! Hugs Christine Quote Link to comment Share on other sites More sharing options...
JB Posted February 10, 2009 Share Posted February 10, 2009 That's great news Jamie. I would say that if you are the doctor's longest patient on Tarceva, you've got a good shot at being LCSC's longest poster on Tarceva..lol.. It seems to be similar to Colleen's Zometa, as she's reached the point where the studies stop... They're all good things. CONGRATS!! Quote Link to comment Share on other sites More sharing options...
Janet B Posted February 10, 2009 Share Posted February 10, 2009 WOW! - WOW! - WOW! I AM SO HAPPY FOR YOU!!!!!!! You are such an incredible inspiration to me and everyone here !!!!! I can not tell you how much this news means to me as a tarceva user - such hope! As JB says - you are charting new territories - so I have no idea about your tarceva question - I always assumed I would stay on it as long as it continued to work. I am so so happy for you - Peace - Janet Quote Link to comment Share on other sites More sharing options...
SandraL Posted February 10, 2009 Share Posted February 10, 2009 Congratulations on those most awesome results Jamie. I think it would be a scary decision to go off the Tarceva but unfortunately a decision where there is no black and white answer. Best of luck with your decision and continued best wishes. Sandra Quote Link to comment Share on other sites More sharing options...
tkelley Posted February 13, 2009 Share Posted February 13, 2009 Jamie! What fantastic news! I am so happy for you! Quote Link to comment Share on other sites More sharing options...
famograham Posted February 13, 2009 Share Posted February 13, 2009 WOW! That is some fantastic, AWESOME news!!! xoxo Linda Quote Link to comment Share on other sites More sharing options...
beatlemike Posted February 13, 2009 Share Posted February 13, 2009 AWESOME news Jamie! Quote Link to comment Share on other sites More sharing options...
chloesmom Posted February 13, 2009 Share Posted February 13, 2009 Jamie, I'm a little late here, but congratulations on your good results! Cindy Quote Link to comment Share on other sites More sharing options...
Sis Posted February 13, 2009 Share Posted February 13, 2009 YAHOOOOO JAMIE!!! So happy to hear your great report. You are such a wonderful inspiration to all. Congrats! Ellie Quote Link to comment Share on other sites More sharing options...
barbvh Posted February 13, 2009 Share Posted February 13, 2009 Great news Jamie. Congratulations!! Barb VH Quote Link to comment Share on other sites More sharing options...
Tiny Posted February 14, 2009 Share Posted February 14, 2009 Happy, happy, happy! As a new Tarceva user, this does my heart a world of good! Sorry I don't have any help regarding your specific question. Carry on! Quote Link to comment Share on other sites More sharing options...
RandyW Posted February 14, 2009 Share Posted February 14, 2009 According TO Debs Oncologist, Tarceva was designed to be a maintenance drug. Its function was basically to control the cancer much like Insulin is given to control Diabetes. If this is the case you would be a poster candidate for the Treatment Plan... Oh and so I dont forget.......... WOOOOOOOOOOHHHHHOOOOOOOO Quote Link to comment Share on other sites More sharing options...
Nushka Posted February 14, 2009 Share Posted February 14, 2009 Jamie, Great news!!! Celebrate. Wooooohoooo. Nina Quote Link to comment Share on other sites More sharing options...
Geri Posted February 19, 2009 Share Posted February 19, 2009 Great news, feels good to be a poster child for survival doesn't it! Take care Geri Quote Link to comment Share on other sites More sharing options...
Maryanne Posted February 20, 2009 Share Posted February 20, 2009 Jamie, your whole case from when you first came on until now is amazing. I know so much of this is contributed to you. You are so special and you give so much of yourself in fighting this horrible disease. You're "fighting for a cause" and winning. I'm so proud of you and so glad you have your docs baffled with your progress!!! A SUPPER BIG CONGRATS TO YOU!!!! 4 smilies beaming for 4 years. Maryanne Quote Link to comment Share on other sites More sharing options...
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