Lin wilki Posted October 27, 2020 Share Posted October 27, 2020 So this site has been very helpful and all you you guys are great saw my oncologist today. Besides my cancer I have severe interstitial lung disease. After my PET they see the cancer has moved into these breathing spaces. The last month has been very difficult and oxygen isn’t really helping. So it was decided to end treatment. I believe it is the right thing to do since I really couldn’t handle more treatment I may still creep on here and see how everyone is doing Link to comment Share on other sites More sharing options...
LexieCat Posted October 27, 2020 Share Posted October 27, 2020 I'm so sorry, Lin, that the options have run out for you. Still, when that's the situation, it's courageous to do what's best for you under all of the circumstances. Will you be receiving care at home, or staying at an inpatient hospice? I hope you are comfortable and able to continue to check in with us. Sending a hug. Link to comment Share on other sites More sharing options...
Lin wilki Posted October 27, 2020 Author Share Posted October 27, 2020 I’ll be at home and of course the plan is comfort!! I’ve been so miserable pretty much through this whole thing Nonody wants their time so short but I sure did try Link to comment Share on other sites More sharing options...
LUNGevityKristin Posted October 27, 2020 Share Posted October 27, 2020 I'm so sorry, Lin. Please let us know if there is anything we can do. Link to comment Share on other sites More sharing options...
LexieCat Posted October 27, 2020 Share Posted October 27, 2020 40 minutes ago, Lin wilki said: Nonody wants their time so short but I sure did try You sure did. And I really have come to dislike the metaphor of a patient's "battle" against cancer--where you can wind up a "winner" or a "loser." I guess there's a tendency to want to believe if we "fight" hard enough, we'll "win" the battle. It just doesn't work that way. Link to comment Share on other sites More sharing options...
LouT Posted October 27, 2020 Share Posted October 27, 2020 Lin, I'm so sorry that the options are no longer there for you. You will be in my prayers and I can only hope that you'll find some of the comfort you richly deserve that you gave up to go through the treatments. I agree with Lexie, we don't win or lose this battle, we just do the best we can to survive it for as long as possible. Please know that there are folks here who truly care for you in a deep way. Lou Link to comment Share on other sites More sharing options...
Rower Michelle Posted October 27, 2020 Share Posted October 27, 2020 Hi Linda, I’m very sorry to hear about this, given what you’ve been through I would make the same decision. I will pray for your peace and comfort in the days ahead. Michelle Link to comment Share on other sites More sharing options...
SamGirl50 Posted October 27, 2020 Share Posted October 27, 2020 I am so sorry. My prayers are with you. Link to comment Share on other sites More sharing options...
Jennedy Posted October 28, 2020 Share Posted October 28, 2020 I'm sorry to hear this. You are very brave. Hugs, thoughts & prayers. Jenny Link to comment Share on other sites More sharing options...
TJM Posted October 28, 2020 Share Posted October 28, 2020 Very sad news. I am sure all survivors contemplate reaching the point you are at. I know I do. Please post occasionally. Maybe inform on what palliative care works, which dont and anything else you think may help others who will confront the same. I was with my brother his last month but caregiving is not the same as being the patient. I have often wondered what my brother experienced in that last month. I may find out. It was over 20 years ago and I still remember him daily. Hoping for a miracle, but rest assured you will be missed. Peace Tom Link to comment Share on other sites More sharing options...
Lin wilki Posted October 28, 2020 Author Share Posted October 28, 2020 Thanks. I will post for awhile. My PA said lacking treatment I may feel better in a few weeks. Hope that’s the case Link to comment Share on other sites More sharing options...
Tom Galli Posted October 28, 2020 Share Posted October 28, 2020 Lin, I do hope you feel better. You've been through a slug of treatment. I know what that feels like. I also know about decisions to stop treatment. When we were failing 4th line treatment, we were in that decision zone. I can't offer a solution; I have no magic bullet. I will pray for your peace, and that you close around your family and friends. Stay the course. Tom Link to comment Share on other sites More sharing options...
Lisa Haines Posted October 29, 2020 Share Posted October 29, 2020 My heart goes out to you. I know this is something we all may have to face in our cancer journey. It's something that I have thought about and is very difficult. I hope you are at peace and will be in total comfort. I'll also hope for a miracle. Sending a huge tender hug ❤️ Link to comment Share on other sites More sharing options...
MarieE Posted November 2, 2020 Share Posted November 2, 2020 So sorry, Lin. I do understand the point you are at, as my husband and I have talks pretty much every day about whether continuing any future treatment is worthwhile. His health has deteriorated so significantly and he is in so much pain that there is not much he can do anymore other than watch TV or sleep. We will be talking with his oncologist this week about next steps (if any), based on his recent PET scan. I will be keeping you in my thoughts, and hoping that you feel better without the treatment. Link to comment Share on other sites More sharing options...
JamesB Posted November 2, 2020 Share Posted November 2, 2020 You are in my prayers and I wish you comfort. Link to comment Share on other sites More sharing options...
GaryG Posted November 2, 2020 Share Posted November 2, 2020 Lyn: No words can describe how sorry I am. I wish you the best. Link to comment Share on other sites More sharing options...
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