DeanCarl Posted June 27, 2004 Share Posted June 27, 2004 As some of you might have noticed I haven't been posting as much as I used to (though I still log on and read messages a couple of times a day). This lack of posting is mainly due to the changes that have been going on with me and my illness lately. A couple of weeks ago I noticed a major drop in my energy level and in my over all body strength. I can no longer do much of the things I used to and, in fact, had to give up driving as of last week (anybody interested in a really nice 1994 Mercury Grand Marquis LS? ). At the same time I started experiencing some pretty nasty bone pain just below my left knee. This necessitated an upage in my pain meds (Vicodan) which lowered my energy level even more and added the ol' "foggy head" syndrom to the list of "things I really don't like about this disease". Add that to the "sick" feeling I get in the evenings and it all pretty much wipes out a good portion of my day as far as actually doing anything is concerned. I still DO have a few hours each day where I'm in fairly good shape and try to get outside as much as I can during those hours. Sometimes I'm just too tired but, so far, I've been able to get out at least every other day, even if it's just a 15 minute "scoot" to the post office and back. So what happens is that when I get on this board I'm often not in a place mentally or physically where I can post much. Either I'm too tired from the day or my mind is in la-la land from the pain meds. I will continue to post as I can as time goes on. I'm taking the time to post this tonight because, for some reason that I don't need to analyze) I'm feeling pretty good this evening. All this is not unexpected and I accept what is happening to my body as just one more step in this journey I'm on. I still take the time (and always will) to notice the new flowers in my garden and laugh at the dumb stuff my two cats can come up with. There's still enough energy to give Gay a hug whenever one is needed (like ALL the time) and to enjoy my new obsession with NYPD Blue (did you know that show is on 3 times a day around here? ... EVERY day?! If I stick around long enough I can catch up on all the old episodes I wasn't able to watch 'cause I worked nights for so long! ). I still cry when I read the sad things that happen here and cheer for the good. Mostly I still live my life as well as I can, one day at a time. As for tomarrow? Well, I'll figure that out when I get there. Dean Quote Link to comment Share on other sites More sharing options...
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