dchurchi

I save some, usually just the ones I get from Alan. I did save some of the ones offering hope and encouragement when Alan was 1st dignosed.

Judy, I will not begin to know what you are going through, but I do know what it is like to care for someone with this dreaded disease. My husband has been battling now for over 3 years, and we have fought the beast as a TEAM. Recently Alan said he was sorry he was such a burden on me. I told him if he ever said that to me a again I would not be a very happy with him. When I took those wedding vows I meant every word of them. Better for worse, sickness and health. We don't pick and choose what vows we want to live by, we live by all of them. Yes by the end of the week I am tired from working and taking care of Alan, but at the same time I couldn't imagine being anywhere else in the world. You have a fight on your hands, no one is going to argue that, but you fight and you live. Many prayers are headed your way.

we were just talking about this very subject yesterday. As much as I would love to travel with my own pillow, I have a fear of leaving it behind. So I will "suffer" for a few days rather than chance not having my beloved pillow for the long duration.

Lots of clouds here in Cali, so did not get a good look, but put the effort in to try and see it.

We have a bottle of it at home. The scary thing for me is in very small print the bottle states it contains shell fish. I am very very allergic to all shell fish. I shudder to think what would have happened if I didn't read the lable very carefully (thinking of what would interact with Alan's medication) and taken a drink of this stuff made with shell fish myself I take all these "miracle" potions with a grain of salt.

Betty, My husband Alan had some swallowing issues with radiation. He could not really eat anything that was too cold, like ice cream. Soft foods worked best with Alan, scrambled eggs, mashed potatoes ect. Foods like toast, when there could be "sharp" edges hurt him to swallow. You will probably just have to experiment and then again your mom may have no issues at all. That is what I will pray for.

My prayers for your Dad and you. Wish I could offer more.

Well in our house it is "SHEBREWS", Alan may need a refresher course

Dar, I do not travel with any pets, but I do not like anyone cleaning my room during a hotel stay, I just put the do not disturb sign on my door and get towels from the maid as I need them. I am just funny that way. So far my requests have been honored and I have been doing this for years. Maybe this approach would work for you.

JB, I started playing ice hockey at age 36!!!! Never skated in my life. Took an 8 week class to learn how to skate, then jumped right into playing in a league. Alan will not come watch me play as there are no women's leagues in my area so I play with the men. Makes him even more nervous because I play defense so I am right in the middle of the action. I love it !!!!!

I actually had computer issues at home. According to AT&T the "highspeed" internet in my area was down. Sorry I missed everyone.

Lyris, Sorry to hear of your mom's diagnosis. My husband was DX with ED SCLC over 3 years ago. He also had brain mets. Alan has had both Chemo and Radiation and his Drs never ever gave him a prognosis. Neither his medical oncologist or radiation oncologist believe in giving a "number" on how long Alan had to live. Alan has not had an "easy" time of things and his cancer has once again come back, but he has battled and continued to live his life. I would be seeking another opinion right away. I too live in So. Ca. and would consider my husband's dr. the best. Do not give up hope

that is just too funny!!!

Well as Alan is having a "good" day today, its Friday and month end is over this is a wonderful sunny day for me

I think I replied to another post, but please read my husband's profile. Alan is a 3 year survivor of ext SCLC also with brain met.

Lots of Garlic

Hi, I am sorry you need us, but glad you found us. Please read my husband Alan's profile and you will see, that although this disease is a beast, it is possible to live a good quality of life for a number of years. I am going to assume your Mom would be considered extensive SCLC as SCLC is either limited or Extensive. My husband was dignosed Jan 10,2005, had mets to the brain in July 2005 and although he has gone through a few recurrances is still with us today, 3 years later. Do not believe the statistics you will read on the internet, your mom is not a statistic, she is a person full of hope. My prayers go out to you and your mom

It would depend on the comment. If it was something that brought my integrity or values into question,I would absolutely confront this "friend". If it was a minor issue, probably just let is slide off my back. More important issues going on in my life.

I have a collection I Irish CD's that when I put in the CD player just have me bouncing around and tapping my feet. The Irish know how to have a good time

Jennifer, My husband Alan had 1 large brain met back in july 2005. Surgery was not an option for Alan, so he had WBR and 15 IMRT treatments. Alan does have some minors issues with memory, hearing and his balance is off a bit, but at the same time his MRI's have been clear ever since which is 2.5 years now. Prayers that whatever the treatment is it will be successful.

Welcome to this world Jude Matthew

Ann, I can't wait to see pictures of your second little one how much joy he or she will add to your life. As for bath and bed time I only have experiences with my nieces. One was no problem the younger one always turned on the drama tears at bed time and cried for mommy. It was just part of the process. When she was older I told her they didn't work on me anymore and she would give up and go to sleep

Judy, Alan has not had an experience with a bone biopsy, but please know we are praying for you.

No, but I have been lucky. I also have 24 hour roadside assistance so that gives me peace of mind.

I am almost ashamed to admit I have never even been on Ebay