cathyr Posted January 24, 2005 Share Posted January 24, 2005 I don't mean to sound so negative, but I swear if I didn't have bad luck, I wouldn't have any luck. As some of you know, I have been busy doing tests to try to qualify for the GVAX clinical trial at U.C. Davis in Northern California. I have had an ekg, echocardiogram, pet scan, cat scan, pulmonary lung function test and a VQ test. I found out Thursday a.m. that I am not going to be accepted because I only scored a 48% on one of the tests and needed to score 50%. I am devastated by this news. Esentially, I have been on nothing for 3 months because Iressa did not work for me and the cancer is spreading quickly. I have numerous nodules in both lungs, lymph nodes and adrenal glands are also affected. I have pain that is getting worse in my left lung area. The onc. says it is either referral pain or caused by scarring that is impinging on nerves. Anyway, it requires me to have to take my pain medication (percodan 10mg.) every 4 hours. I am going to try to get into the City of Hope for a clinical trial, but I am really feeling very discouraged at this point. This is the first time in a long time I just want to cry . I am praying for all of us. CathyR Quote Link to comment Share on other sites More sharing options...
Justakid Posted January 24, 2005 Share Posted January 24, 2005 CathyR- Hang in there, I know about the luck thing! But I had good news (today) finally after 8mths of sitting around and having everything go wrong. Keep your chin up, something good has to happen! Quote Link to comment Share on other sites More sharing options...
chloesmom Posted January 24, 2005 Share Posted January 24, 2005 Cathy, I feel terrible that you were turned down for that trial, but I hope that something good comes along for you real soon. Like Justa said, she had her first good piece of news in 8 months today, so good news might be right around the corner. I hope so. Cindy Quote Link to comment Share on other sites More sharing options...
TAnn Posted January 24, 2005 Share Posted January 24, 2005 Cathy, I am so sorry about the trial. I know from experience they are very specific about the criteria for trials and stick with the protocol no matter what. Don't give up. They will find something for you. Have you asked about Alitma? TAnn Quote Link to comment Share on other sites More sharing options...
SBeth Posted January 24, 2005 Share Posted January 24, 2005 Cathy, I just wanted you to know that I'm thinking about you and praying that you get some relief and good news quickly. Love and prayers, Quote Link to comment Share on other sites More sharing options...
Roseymac Posted January 24, 2005 Share Posted January 24, 2005 Cathy, Don't get discouraged there are lots of trials going on out there, you are sure to qulify for one of them. Research! Research! Research! Rosemary Quote Link to comment Share on other sites More sharing options...
shelliemacs Posted January 24, 2005 Share Posted January 24, 2005 Kathy, I am so so so very sorry about this. I can not imagine the emotions your feeling right now. please dont give up or in. You have to fight. I don't know how to tell you to, you just have to do it. I am sending god a very special request for you. Quote Link to comment Share on other sites More sharing options...
lilgna Posted January 25, 2005 Share Posted January 25, 2005 Cathy, I can only add how sorry I am you did not qualify for the trial... BUT.. there are so many out there, do the research and just contact a bunch at once until someone gets you in. I know you must be down, keep your chin up , if you can, good news is right around the corner. Blessings. gina Quote Link to comment Share on other sites More sharing options...
Jana_W Posted January 25, 2005 Share Posted January 25, 2005 I am sorry that things didn't work out for you and this trial but am hoping a better one is just waiting for you around the corner. with best wishes Jana xx Quote Link to comment Share on other sites More sharing options...
stand4hope Posted January 25, 2005 Share Posted January 25, 2005 Cathy, I ditto Shellie's response. I know it's hard to not be discouraged, but just give yourself a day or two to get a grip on this, and you'll be back out there fighting. Many prayers for you! Love, Peggy Quote Link to comment Share on other sites More sharing options...
BeckyCW Posted January 25, 2005 Share Posted January 25, 2005 Me, too, praying hard for something else to come up that will help you. Thinking positive thoughts. City of Hope is a great place, let's see what they come up with for you. BeckyCW Quote Link to comment Share on other sites More sharing options...
karenl Posted January 25, 2005 Share Posted January 25, 2005 Hi Cathy I am sorry that you received such disappointing news. But there are SO many clinical trials out there - I am sure there is one that is just right for you. Keep looking!!! Karen Quote Link to comment Share on other sites More sharing options...
Ry Posted January 25, 2005 Share Posted January 25, 2005 Cathy, I know there is something out there for you...wish you all the best. Quote Link to comment Share on other sites More sharing options...
Fay A. Posted January 25, 2005 Share Posted January 25, 2005 Cathyr, There just has to be something out there for you. Call City of Hope tomorrow. The number is (626) 359-8111 and ask for new patient services/appointments. http://clinicaltrials.coh.org/asp/speci ... &frmexact= Hang in there, Cathy. Quote Link to comment Share on other sites More sharing options...
cindi o'h Posted January 25, 2005 Share Posted January 25, 2005 Hi Cathyr... I am with the rest.. I am sorry all of that turned up nothing. There will be something that will present itself and will work! Please stay hopeful and stay on it. cindi o'h Quote Link to comment Share on other sites More sharing options...
Frank Lamb Posted January 25, 2005 Share Posted January 25, 2005 Cathy,so sorry to hear this and that your discouraged.Praying that something can be done soon that will help.Hang in there. Quote Link to comment Share on other sites More sharing options...
lindseysmom Posted January 25, 2005 Share Posted January 25, 2005 Cathy, I'm so sorry that you were not accepted in that trial. Keep checking to see if you can find another one that you may qualify for. Best Wishes, Dee Quote Link to comment Share on other sites More sharing options...
mhutch1366 Posted January 25, 2005 Share Posted January 25, 2005 Cathy, I'm sorry you weren't accepted into the GVAX trial. I am hoping that a better trial is just around the corner for you! XOXOXOXOX Prayers, always, MaryAnn Quote Link to comment Share on other sites More sharing options...
Treebywater Posted January 25, 2005 Share Posted January 25, 2005 ((((hugs)))), prayers, and all my best thoughts to you. I'm sorry you didn't get into the trial. Quote Link to comment Share on other sites More sharing options...
kimblanchard Posted January 25, 2005 Share Posted January 25, 2005 Thinking of you, Cathy. Sure am glad you have more things to check out, maybe the next one will be the right one. Margaret Quote Link to comment Share on other sites More sharing options...
Wendy Posted January 25, 2005 Share Posted January 25, 2005 Aw shucks, sorry that the ride has been bumpy. I will keep my fingers crossed that somethng better shows up on the horizon. Wendy Quote Link to comment Share on other sites More sharing options...
cathyr Posted January 26, 2005 Author Share Posted January 26, 2005 Thank you all so much for your support. It's been a tough couple of weeks to say the least. I feel a bit better today ( maybe the new pain meds are working better). Yesterday I was very tearful. The City of Hope e-mailed me that they don't currently have any clinical trials available for stage 4 lung cancer. I still am going to have my onc. speak to them directly. He's out of town til the 31st. I am checking into other trials and will let you guys know if I find anything. It's just so hard to sit everyday not doing anything except waiting for this to get worse (which unfortunately, it is). I don't know how I would ever get by without you all. This site is such a blessing and although there have been controversy at times, there are more times that it brings out the best in people. Hugs to all of you, CathyR Quote Link to comment Share on other sites More sharing options...
paddy Posted January 26, 2005 Share Posted January 26, 2005 So very sorry Cathy, this must be such an awful let down after all those tests. Best if luck with the City of Hope. Prayers and positive thoughts going out to you, Paddy Quote Link to comment Share on other sites More sharing options...
dadstimeon Posted January 26, 2005 Share Posted January 26, 2005 So very sorry to hear this Cathy, prayers that something will come up for you. Rich Quote Link to comment Share on other sites More sharing options...
Don M Posted January 26, 2005 Share Posted January 26, 2005 Aww.. I am sorry you did not get in Cathy. I know how hard it is not to do something. Keep on trying to get in one, ok? Quote Link to comment Share on other sites More sharing options...
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