mamasbabygirl Posted February 15, 2006 Share Posted February 15, 2006 Hello family. We got the results from mom's MRI yesterday and unfortunately the 2 old brain tumors that were previously treated with stereotactic radiosurgery have doubled in size in 1 month since her last brain surgery. So, her neurosurgeon recommends that he remove them surgically and implant brachytherapy seeds bc she survived the first surgery. He believes that the reason she was not making progress in rehab is bc of these two tumors. One of them is in the area that controls mobility, so.... Mom has decided she wants to do it. I just said over an over that I am so thankful that she can make this decision and I support her decisions. Her neurosurgeon said there is an article getting ready to be published about this type of aggressive treatment. I am going to try to get a copy and post it here if I am allowed. It may help someone else. Apparently average life expectancy is 1 year after these surgeries for her, which is more hope than what the reahb Dr. told us, which was basically bring her home to die bc her prognosis was so poor. I made sure to speak up to the neurosurgeon and let him know that if he is going to do this aggressive treatment on my mom (and others) that he needs to be SURE that the rehab Drs. are educated as to what the expectations are. The therapy afterward is so important. So, mom signed the consent forms and the next surgery is being performed at UC (University of Cincinnati) by Dr. Robert Warnick on February 27th. Tell me she ain't a ball of fire and definitely fighting the good fight. I am still so proud. P.S. The new rehab place has a bath tub that they hoist mom into. We are total bath girls, so for her to be able to bathe again is simply wonderful. She told me she felt sooooo good and human again. Quote Link to comment Share on other sites More sharing options...
Carleen Posted February 15, 2006 Share Posted February 15, 2006 I am so overjoyed to hear that your mom is still in there fighting and is getting such aggressive treatment and attention from her doctor. I will be praying that all goes well. And from one bath girl to another, I am happy mom is able to bathe again and enjoy another perk of her new surroundings. God bless, and hope mom is feeling much better real soon. Quote Link to comment Share on other sites More sharing options...
trish2418 Posted February 15, 2006 Share Posted February 15, 2006 Hi Lori: Praying that everything goes according to plan. Hope your mom enjoys the baths! Maybe you could smuggle in some decadent bath oils or beads. Tris Quote Link to comment Share on other sites More sharing options...
Kasey Posted February 15, 2006 Share Posted February 15, 2006 What a boost to hear this news this morning, Lori. I will be hoping the best for your Mom and praying all goes well on the 27th. Glad she is fighting and making her decisions! Just GREAT news. Kasey Quote Link to comment Share on other sites More sharing options...
dadstimeon Posted February 15, 2006 Share Posted February 15, 2006 So glad for you and your mom Lori. Prayers all goes well. Take care. Rich Quote Link to comment Share on other sites More sharing options...
ginnyde Posted February 15, 2006 Share Posted February 15, 2006 Lori, great news for your Mom. I hope they let her keep adding hot water to the bath and that she comes out looking like a prune with a smile. Quote Link to comment Share on other sites More sharing options...
Connie B Posted February 15, 2006 Share Posted February 15, 2006 Oh Kiddo, I'm soooo sorry to hear about the brain tumors being back. As we all know WE HATE LC. I'm so GLAD to hear she got to take a bath. I KNOW JUST HOW SHE FELT & FEELS, I'm a bath person also. Way to go MOM! Still keeping you in my prayers day in and day out. Quote Link to comment Share on other sites More sharing options...
sharyn Posted February 15, 2006 Share Posted February 15, 2006 Your Mom is truly one tough gal.... I am praying the surgery goes extremely well. My mother in law had bracytherapy to her liver when she was diagnosed with liver cancer. They gave her 3 months to live, with the bracytherapy she lived 3 1/2 years.... it is increble what can be done. I pray your Mom sets new records!!!! Love, Sharon Quote Link to comment Share on other sites More sharing options...
MilliBr1 Posted February 15, 2006 Share Posted February 15, 2006 Your mom is certainly a fighter. Prayers that the surgery is a success. Quote Link to comment Share on other sites More sharing options...
J.C. Posted February 15, 2006 Share Posted February 15, 2006 Lori, Glad your mother still have the fight in her. Will keep her in mind on the 27th. Hugs Jackie Quote Link to comment Share on other sites More sharing options...
Ry Posted February 16, 2006 Share Posted February 16, 2006 Your mom absolutely amazes me. She is something else! I hope all goes well with her upcoming surgery. Quote Link to comment Share on other sites More sharing options...
shineladysue Posted February 16, 2006 Share Posted February 16, 2006 Lori, Your mama is amazing and so are you. You have prayers coming to get you through the coming days and the surgery. Love and Prayers, Sue Quote Link to comment Share on other sites More sharing options...
Miami Janet Posted February 16, 2006 Share Posted February 16, 2006 Go Mom Go....Janet Quote Link to comment Share on other sites More sharing options...
Treebywater Posted February 16, 2006 Share Posted February 16, 2006 Your Mama IS SO Amazing, Lori. I'm sorry to hear that the tumors have grown, but this plan seems like a good one and I'm glad your Mom was able to make the decision and wants to fight. Thinking of you!!! Quote Link to comment Share on other sites More sharing options...
Fay A. Posted February 16, 2006 Share Posted February 16, 2006 Wow! Tell her I'm in her Court, Lori! Quote Link to comment Share on other sites More sharing options...
carolhg Posted February 16, 2006 Share Posted February 16, 2006 Prayers for the good fight! Quote Link to comment Share on other sites More sharing options...
jorja Posted February 16, 2006 Share Posted February 16, 2006 Lori, Your mom is truly an amazing woman!!! Prayers will be sent for a successful surgery. love, jorja Quote Link to comment Share on other sites More sharing options...
Suzie Q Posted February 16, 2006 Share Posted February 16, 2006 Lori, I can see where you get your tenaciousness from! It's so refreshing to hear someone counter a response to a doctor on so sbvious an issue, yet one that they might not be aware of or take for granted. Continutiy of the plan and the belief in the good it will bring is essential, and I for one am in awe of your ability to verbalize at the appropriate time! I uaually think of that stuff hours later. Bathing is such a soothing and essential thing! I remember the first shower my dad received after about 4 months. I'm sure the bath was heavenly for your mom! Best wishes that all goes well, and do try to get yor mom to sign durable POA and living will to YOU to be sure her wishes are carried out. You seem to be the one most likely to execute her wishes. God bless you for being you! ~Suz Quote Link to comment Share on other sites More sharing options...
Don M Posted February 16, 2006 Share Posted February 16, 2006 Lori: it sounds like your mom may have a shot at being mobile again. I would have made the same choice. I see you are beng a good coordinator by relaying your concerns to the surgeon about proper rehab. Good job. Your mom has my prayers. Don M Quote Link to comment Share on other sites More sharing options...
Geri Posted February 16, 2006 Share Posted February 16, 2006 Isn't it amazing what a bath and a GOOD doctor can do for a persons soul! Way to go Mom. Geri Quote Link to comment Share on other sites More sharing options...
gail p-m Posted February 16, 2006 Share Posted February 16, 2006 Your mom is quite the fighter. Glad your mom can enjoy the simple things in life like a bath which can mean "so much." Sending prayers that all goes well. gail p-m Quote Link to comment Share on other sites More sharing options...
kamataca Posted February 16, 2006 Share Posted February 16, 2006 WOW! That's just all I can think of...wow. I would be torn in two if someone told me I had to have brain surgery...AGAIN! Your mom is truly one tough cookie! Kelly Quote Link to comment Share on other sites More sharing options...
bethluvswill13 Posted February 16, 2006 Share Posted February 16, 2006 Lori, your mom is very brave and I think she's gotta be a remarkable person. Good for her. Hugs,Beth Quote Link to comment Share on other sites More sharing options...
mayos Posted February 17, 2006 Share Posted February 17, 2006 I like your mom's attitude...she'll kick the pants off this monster. She's been hrough so much and she's still rockin'. I also like your offer to share so much during these hard times. Those of us still fighting often don't have the strength to search around for new treatments. This board has been a Godsend. Thank you and good luck. Quote Link to comment Share on other sites More sharing options...
daggiesmom Posted February 17, 2006 Share Posted February 17, 2006 Wow, you've got one strong Mom. She is some fighter. Wishing her happiness (and relax in that tub) Ahhhhhhhhh. Joanie ((())) Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You can post now and register later. If you have an account, sign in now to post with your account.