ursol Posted December 11, 2006 Share Posted December 11, 2006 I'm at a loss for words and feel as though God wants me to check out immediately. My oncologist just phoned me with the results of my Brain MRI. He also could not believe it. There are two lesions/tumours in the Brain, one has some swelling. Tomorrow he will call me after speaking with the Neurosurgeons regarding whether Gamma Knife or regular surgery is necessary. I cannot believe this. I don't know what to tell my mother. I hate this, I don't understand why this is happening, why God is punishing me. My family is not prepared for this. Lilly Quote Link to comment Share on other sites More sharing options...
gail Posted December 11, 2006 Share Posted December 11, 2006 hugs hugs and more hugs gail Quote Link to comment Share on other sites More sharing options...
Nick C Posted December 11, 2006 Share Posted December 11, 2006 Gosh Lilly...so sorry. My heart is aching for the way you are feeling. Quote Link to comment Share on other sites More sharing options...
cindi o'h Posted December 11, 2006 Share Posted December 11, 2006 oh Honey, honey.. I just don't know what to say. What a slug in the gut. I know you are lost right now and in shock. I would be too. When the shock wears off a bit, you will know exactly what to do and what to say. Remember there are treatments available. Many here survive after brain mets!!! There is HOPE!!! Get an ativan. (that's what I would do.) And there will be a plan for you. All my caring thoughts to you right now at this very minute. Hang in there, Lilly. cindi o'h Quote Link to comment Share on other sites More sharing options...
Don Wood Posted December 11, 2006 Share Posted December 11, 2006 Believing we have troubles because God is punishing us is a very ancient belief that I don't buy into. It is hard not to feel that way, though. You still have options, so don't throw in the towel yet. Sorry you have this to contend with. Don Quote Link to comment Share on other sites More sharing options...
karenl Posted December 11, 2006 Share Posted December 11, 2006 Lilly I'm so sorry to hear about your results.....Cindi is right though - brain mets are survivable. I was liasing with a radiation oncologist in the States when Mum was sick, and he was very encouraging about treatment for brain mets, and told me that he had several patients that had treatment for brain mets years ago and were doing just fine.....and the treatments are improving all the time. You can do this, and we are here to help you..... Love Karen Quote Link to comment Share on other sites More sharing options...
eppie Posted December 11, 2006 Share Posted December 11, 2006 Prayers!! I hope you and your doc come up with a game plan that kicks this in teh butt! Mad at Cancer....big hugs for you! Eppie Quote Link to comment Share on other sites More sharing options...
Don M Posted December 11, 2006 Share Posted December 11, 2006 Lilly, I am sorry to hear your news. I am no one to speak because I have never had brain mets, but I think they can be easily contained these days. I would go for cyberknife. I just wish it would all go away for you and for all of us. I am not afraid to die,I just don't want to have lung cancer and who would? Don m Quote Link to comment Share on other sites More sharing options...
Nushka Posted December 11, 2006 Share Posted December 11, 2006 Lilly, I am so sorry that you are having to deal with this. I know it doesn't seem fair...its not fair but it is life. Sometimes bad things happen to very good people. I don't believe that God is a vendictive God. I believe He loves us with all of His heart. He will give us strength when we need it the most even though we may not know He is there He is. This disease doesn't just pick on bad folks. It has gotten us all because it is just that..a disease. You'll figure out the best plan for you. Keeping you in my prayers. Nina Quote Link to comment Share on other sites More sharing options...
karen335 Posted December 11, 2006 Share Posted December 11, 2006 Lilly, Sending prayers to yo. Gammaknife or Cyberknife is something to look into for treatmant. Don M. can give you the websites for research. Hang in there and keep the faith, stay strong. God doesn't want to hurt us, he is our healer... God Bless and hugs, Karen Quote Link to comment Share on other sites More sharing options...
TracyD Posted December 11, 2006 Share Posted December 11, 2006 Oh Lilly, I'm sorry to hear this news. Prayers are being sent from my house to yours that the doctors will come up with a good plan and that you will be healed. Although I am not familiar with the treatment of brain mets I am heartened by the many postings here that there are good treatments avabilable. Hang in there. Tracy Quote Link to comment Share on other sites More sharing options...
RandyW Posted December 11, 2006 Share Posted December 11, 2006 Sending Prayers and Big Warm Blankets for comfort and strength. This is treatable and survivable. think Positive thoughts. If I can help with something or anyhting let me know. You are gonna be fine. remember this is a rock in the middle of the road and we will have to move it over and continue on this journey! Quote Link to comment Share on other sites More sharing options...
mamasbabygirl Posted December 11, 2006 Share Posted December 11, 2006 Lilly, I'm sure you're scared as hell right now and that's OK. Once you meet with the neurologist/surgeon, hopefully you can regain your fighting spirit and kick these mets right out the window. You can do this. Hang in there. We are here to support you. Love, hugs and prayers... Quote Link to comment Share on other sites More sharing options...
joanie55 Posted December 11, 2006 Share Posted December 11, 2006 Ursol, I know how scary this is. I'm dealing with a very similar situation. But, I have to believe there is hope. There are lots of brain met survivors here and I do plan to be one of them. I would definitely check out Don's sites on Cyberknife. Like they say..... just breath. Joan Quote Link to comment Share on other sites More sharing options...
Kasey Posted December 11, 2006 Share Posted December 11, 2006 Oh Lilly, what a downer, that is for sure. You have been such a warrior with each blow that has been thrown your way. Time for a reprieve, I would say. Let's be all pi$$ed at lung cancer for today.......then try as best we can to throw our shoulders back and battle on. WE.....meaning you and all of us here. We are with you. This is certainly NOT the choice we would have made, but it is what we've got. If prayers and good wishes could heal us..........EVERYONE here would be cancer free based on what's coming from our house. I am so sorry you have another mountain to climb, but you're not climbing it alone. Kasey Quote Link to comment Share on other sites More sharing options...
nikkala Posted December 11, 2006 Share Posted December 11, 2006 Thinking of you Lilly and sending many prayers. Quote Link to comment Share on other sites More sharing options...
marym Posted December 11, 2006 Share Posted December 11, 2006 Lilly, I'm so sorry you received bad news - no one deserves cancer, but we deal with what we have to. Please know brain mets are not a death sentence. I had my first surgery for brain mets in Jul 2005. Never had a problem, no symptoms, no headache, (I had Radio Surgey - one of the targeted radiation treatments). Then a year later, in July og 06, I had new mets and had them removed. Same result as the July 2005. Sadly, I am now due for a 3rd possible treatment. We are still discussing the options. But, less me stress. I still have no symptoms or pain. I plan to determine what treatment we'll pursue and then get on with it. If you have a few mets, gamma knife, radio surgery , cyber knife are all possible options. And then they just do followup tests every 3 months or so. Hang in there - and know there is the right treatment plan for you. Mary Quote Link to comment Share on other sites More sharing options...
carolhg Posted December 11, 2006 Share Posted December 11, 2006 Lilly, I am so sorry to hear of your MRI results. Do know for sure that brain mets are treatable and survivable. Check into the new technologies and discuss them with your medical team. Prayers for you for good results. Carol Quote Link to comment Share on other sites More sharing options...
dchurchi Posted December 11, 2006 Share Posted December 11, 2006 Lilly, I am sorry you are dealing with this terrible news, but as others have stated brain mets do not mean the end. My Husband is doing very very well after his brain met was discovered more than a year ago. you keep fighting and sounds as if your dr. is on top of things. Prayers coming your way. Quote Link to comment Share on other sites More sharing options...
Ry Posted December 11, 2006 Share Posted December 11, 2006 I don't understand it either...I am so sorry for what you are going through. Quote Link to comment Share on other sites More sharing options...
Don M Posted December 11, 2006 Share Posted December 11, 2006 cyberknife site: http://www.cyberknifesupport.org/forum/default.aspx?c=4 Quote Link to comment Share on other sites More sharing options...
Treebywater Posted December 11, 2006 Share Posted December 11, 2006 (((((Lilly))))) Take your time feeling lost and sad adn confused.... and then when you're ready know that we're all hear behind you to help you fight like the dickens. Let us know what your treatment plan will be. Quote Link to comment Share on other sites More sharing options...
trish2418 Posted December 11, 2006 Share Posted December 11, 2006 (((((Lilly)))))) Trish Quote Link to comment Share on other sites More sharing options...
joanie55 Posted December 11, 2006 Share Posted December 11, 2006 Hi Lilly, I was just recommended to WBR. I have the same fears as you. Wondering what you decide. If you'd like to talk... Joan Quote Link to comment Share on other sites More sharing options...
enyaw061032 Posted December 12, 2006 Share Posted December 12, 2006 Dear Lilly: I am so sorry to hear that you have the brain mets. It seems that we no sooner get over one thing before another one hits us, but we must trust in the Lord, because he does not forsake us. You know, God does not turn his back on us; he loves us and you can turn to him to lift you up when you are weak, because he is strong. Love and prayers sent to you now Barb Quote Link to comment Share on other sites More sharing options...
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