Connie B Posted October 12, 2007 Share Posted October 12, 2007 Hi Friends, First I want to thank all of you for your love and support and prayers. Love to you ALL! Well my news isn't the best. I have numerous heart problems. Sever mitral valve leak is the worst. All the others added to this only make it worse, being a 70% blockage, Pulmonary Hypertention, scar tissue, etc., etc. This all is causing my SOB and as time goes on it will only get worse. Bummer! Long story short I am not a candidate for surgery. There is no easy quick fix. And no meds will help this either. I basically have serious heart disease. My Cardiologists isn't giving up hope just yet, because he wants to see if maybe there is a less invasive surgery I might be able to do, but he has to talk to the surgeon that does it first. That surgeon is out of the Country for 2 weeks so we won't know anything about that until he gets back. The Cardiologist did say this was very serious and the over all picture doesn't look good. Yet he was sooooo kind and sensitive when he was talking to Maurie and I. He held my hand and Maurie's hand and said we will continue to look for a fix, but for now there isn't any. He did say he was going to call my old surgeon at Mayo and he had a couple other doc's he wanted to talk to in Boston and Cleveland. So bless his heart he's a fighter too! I'm doing pretty good. They did go in my neck vien (both sides) to look at my heart as also in my groin. Not fun but not really painful either at the time, but I'm pretty sore now. But, it's very doable. I HIGHTLY RECOMMEND the U of MN if you ever have heart problems. They are fantastic! I'll check back with everyone when I feel a bit better. My Best Wishes to Everyone and my SINCERE THANKS for all your Support. (((((GROUP HUG))))) Quote Link to comment Share on other sites More sharing options...
Don M Posted October 12, 2007 Share Posted October 12, 2007 Thanks for checking in Connie. Take it easy now. don M Quote Link to comment Share on other sites More sharing options...
carolhg Posted October 12, 2007 Share Posted October 12, 2007 Thank you for the update Connie. Your doctor sounds like a winner and the kind of doctor everyone should have. I am praying that when he and the other doctors get their heads together they will come up with a plan for successful treatment for you. Carol Quote Link to comment Share on other sites More sharing options...
Betts Posted October 12, 2007 Share Posted October 12, 2007 Ditto what Carol said. I really hope they'll be able to come up with a solution for you. Feel better! Quote Link to comment Share on other sites More sharing options...
shineladysue Posted October 12, 2007 Share Posted October 12, 2007 (((Connie & Maurie))), This kind of news must be so hard on both of you. All you can do right now is put your faith in God, and hope your doctors can come up with something. Just hard to accept the idea that someone as wonderful as you has to suffer this way. Luv and Prayers, Sue Quote Link to comment Share on other sites More sharing options...
laban Posted October 12, 2007 Share Posted October 12, 2007 Thinking of you Connie and Maurie and continue to pray for you both. Quote Link to comment Share on other sites More sharing options...
Kasey Posted October 12, 2007 Share Posted October 12, 2007 I'm sure sorry your news is not better. But I have hope that there is a fix out there for you, and that this guy is going to work to find it! What about NIH? They may have something????? I can't wait to see what this guy will say in a couple of weeks. In the meantime....... (((((HUGS))))), KAsey Quote Link to comment Share on other sites More sharing options...
trish2418 Posted October 12, 2007 Share Posted October 12, 2007 I'm praying that the docs can come up with a strategy that helps you, Connie. You and Maurie are in my prayers. Trish Quote Link to comment Share on other sites More sharing options...
Ry Posted October 12, 2007 Share Posted October 12, 2007 Connie- I hope you find a good solution. I heard something about a new procedure for mitral valve prolapse. I am wishing you well and thinking of you Connie. Quote Link to comment Share on other sites More sharing options...
RandyW Posted October 12, 2007 Share Posted October 12, 2007 I do Hope and PRAY so vetry hard that they can fix this Connie. Gentle Hugs, Much love and Peace, and strength for both of you right now and always!! Quote Link to comment Share on other sites More sharing options...
ursol Posted October 12, 2007 Share Posted October 12, 2007 Connie, I'm sorry to hear your news and I'm hopeful that your doctor will something they can do. Lilly Quote Link to comment Share on other sites More sharing options...
fillise Posted October 12, 2007 Share Posted October 12, 2007 Connie, I have to say that if I ever hear the news you just got, I'd like my doctor to be just like yours! Knowing that he is going to keep looking has to provide tremendous support even as you take in all that he had to say. What can we do to help you? Susan Quote Link to comment Share on other sites More sharing options...
Nushka Posted October 12, 2007 Share Posted October 12, 2007 Oh Connie, I am so sorry to hear this. I hate the idea of your suffering for breath. You are a wonder girl. You have been here for all of us through many ups and downs. Know that I am praying for you each day and hoping that when the surgeon gets back things will change. Nina Quote Link to comment Share on other sites More sharing options...
wondermom Posted October 12, 2007 Share Posted October 12, 2007 Hi Connie, Praying for a solution. There just has to be something out there that will surface to treat this. I am glad to hear your doctor sounds like he is doing everything in his power to find it. Take care, Jill Quote Link to comment Share on other sites More sharing options...
teriw Posted October 12, 2007 Share Posted October 12, 2007 Thanks for the update, Connie. Thinking of you and praying that your wonderful doctor finds a solution. Quote Link to comment Share on other sites More sharing options...
alexan Posted October 13, 2007 Share Posted October 13, 2007 Dear Connie, the Dr. & the guy upstairs will find the solution, You will be fine. I am still praying for you my friend. love bucky Quote Link to comment Share on other sites More sharing options...
MilliBr1 Posted October 13, 2007 Share Posted October 13, 2007 Connie, sounds like you have a good doctor. I know I have heard good things about Cleveland so hopefully they will have some ideas for you. You are in my prayers. Quote Link to comment Share on other sites More sharing options...
Andrea Posted October 13, 2007 Share Posted October 13, 2007 Love you Connie. Quote Link to comment Share on other sites More sharing options...
Maryanne Posted October 13, 2007 Share Posted October 13, 2007 Thinking of you, get rest and heal. Prayers sent to you my friend. Maryanne Quote Link to comment Share on other sites More sharing options...
blaze100 Posted October 13, 2007 Share Posted October 13, 2007 Connie, I am sorry the news wasn't better on the heart. It really does add to the SOB. As far as the blockage goes...my doc tells me that every day I keep the LDL's below 70, the blockage can actually shrink. And the fish oil in combination with the niacin at night can keep the HDL's over 60 which can reverse artery disease. Salt is really bad on heart and breathing. Every time I eat out I can tell my chest fills with fluid and my lungs start to gurgle. Anyway, I'm sure they told you all this at U of M....the salt, the fish oil, the niacin. I exercise an hour on my stationary bike every night. My blood pressure drops almost immediately after exercising. It is easier to stick to my diet out in California, but it takes the high dive every time I visit family the Midwest. You guys have the tastiest food. So Connie, I'm hoping this note will help jump start you to get hopping on this stuff. We all can make adjustments to help our bodies survive. And it makes me feel better just knowing I'm doing my best to help it along. Hugs and Prayers, Barb Quote Link to comment Share on other sites More sharing options...
fight Posted October 13, 2007 Share Posted October 13, 2007 Connie, Praying that something becomes available that you can try. You have such beautiful, fighting spirit and your doctor sounds like he is working hard to find a solution. Keep the faith! Take Care, Rachel Quote Link to comment Share on other sites More sharing options...
Leela Posted October 13, 2007 Share Posted October 13, 2007 Connie, Sending healing thoughts and wishes. Lisa Quote Link to comment Share on other sites More sharing options...
dadstimeon Posted October 13, 2007 Share Posted October 13, 2007 Prayers Connie things will improve for you. Rich Quote Link to comment Share on other sites More sharing options...
Calintay Posted October 13, 2007 Share Posted October 13, 2007 (((Connie))) Quote Link to comment Share on other sites More sharing options...
Wendy Posted October 13, 2007 Share Posted October 13, 2007 Hugs and prayers to Connie and Maurie, Wendy Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You can post now and register later. If you have an account, sign in now to post with your account.