Carleen Posted March 30, 2004 Share Posted March 30, 2004 Hi everyone, I know this is last minute notice, but I could really use some of that awesome power of prayer from you all. Tuesday morning 9:00 central time, Keith has an oncologist appointment to get the results of his CT scan. His last scan was 12/18, and that showed a slight increase to the primary tumor and stable disease in all surrounding tumors. However, since then Keith has been off of all treatment. His last chemo was 11/28. He was scheduled for chemo in Jan, Feb and Mar, but every month he goes in and we are told that the chemo he is prescribed is on backorder from the manufacturer. So they tell us we will just go ahead with the next scheduled treatment. So, basically he hasn't had chemo now in 4 months. Because of this, we have decided to go ahead with the clinical trial of Indium 111 in New Orleans, and are just waiting to get scheduling information. I am so scared because back in the end of Jan he started having some symptoms that he never had before. He's been having numbness and tingling in his right arm. He has been feeling overall icky and achy. He is feeling chills but at the same time sweating profusely. In fact, he now needs to carry a towel with him wherever he goes because he soaks through his shirts. (anyone ever heard of that or experienced that?). In addition, he is much more exhausted than before. He sleeps a lot now. It seems that each week these symptoms get worse (especially the sweating and chills) I am so afraid that this disease is progressing. Please pray for him that this isn't so. Please pray that the CT scan holds some positives for us even if that positive is just a mere stable result. Thanks Carleen Quote Link to comment Share on other sites More sharing options...
Donna G Posted March 30, 2004 Share Posted March 30, 2004 Always time for a prayer. Hope all goes well in the am. Let us know. Prayers going up. Donna G Quote Link to comment Share on other sites More sharing options...
Melinda Posted March 30, 2004 Share Posted March 30, 2004 Carleen, "every month he goes in and we are told that the chemo he is prescribed is on backorder from the manufacturer." That is so terrible, I can't even begin to fathom it. How can that be???? There is none to be had in the country? You must be losing your mind with worry. Push them to get him scheduled for the clinical trial of Indium 111 in New Orleans ASAP!!! As I am relatively new to this dreaded disease, I'm afraid that I do not have any insight or words of wisdom regarding his new symptoms. However, I will earnestly pray that your next the CT scan shows that he is holding stable, at the very least. In the meantimes, try to remain calm, and don't forget to take care of yourself. Praying as best I am able, Melinda Quote Link to comment Share on other sites More sharing options...
karenl Posted March 30, 2004 Share Posted March 30, 2004 Carleen As always, hoping for nothing but good news from you. All the best to you and Keith. Karen Quote Link to comment Share on other sites More sharing options...
betplace Posted March 30, 2004 Share Posted March 30, 2004 (((Carleen))) Prayers going up for you and fingers crossed that the scan comes back good! Blessings Betty Quote Link to comment Share on other sites More sharing options...
dadstimeon Posted March 30, 2004 Share Posted March 30, 2004 Carleen, My thoughts and prayers are with the both of you for good results. Peace, take care and God Bless. Rich Quote Link to comment Share on other sites More sharing options...
gail Posted March 30, 2004 Share Posted March 30, 2004 Sending good thoughts and prayers your way. Try to breathe deeply. . . gail Quote Link to comment Share on other sites More sharing options...
Angie Daughter of Bill Posted March 30, 2004 Share Posted March 30, 2004 Hi Carleen. First of all, I am glad to see you. I asked a few days ago if anyone had heard from you. I will hold you and Keith up in prayer today. I soooooo hope that their is no disease progression. Now, bring us back some GOOD NEWS!!! Angie Quote Link to comment Share on other sites More sharing options...
gerbil runner Posted March 30, 2004 Share Posted March 30, 2004 Carleen, of course prayers are going out for good scans! I can't fathom waiting 3 months for chemo on "backorder". Hope Keith can get treatment soon. Quote Link to comment Share on other sites More sharing options...
cathy Posted March 30, 2004 Share Posted March 30, 2004 Carleen, Will be praying for good news today.. Quote Link to comment Share on other sites More sharing options...
Connie B Posted March 30, 2004 Share Posted March 30, 2004 Dear Carleen and Keith, Just getting ready to run out the door myself to have my CT scan done. BUT, I just HAD to stop for a minute and let you know I will be saying LOUD PRAYERS all the way down to the Cities here on my way to my scan for a GOOD REPORT for our Keith. (((((Carleen & Keith))))) Much Love and Support, Connie Quote Link to comment Share on other sites More sharing options...
Ry Posted March 30, 2004 Share Posted March 30, 2004 Carleen, Please let you doctor know about the sweating and chills. He may have an infection or something and you should find out before the trial so he is healthy and ready to start. In reading up on this thing I have I read somewhere that chlls indicate the body is trying to fight off something. Best wishes for a good scan report. Rochelle Quote Link to comment Share on other sites More sharing options...
shelliemacs Posted March 30, 2004 Share Posted March 30, 2004 Carleen, I always hope the best for Keith. Today will be no different please tell them about the numbness and tingling too. Quote Link to comment Share on other sites More sharing options...
MO_Sugar Posted March 30, 2004 Share Posted March 30, 2004 Prayers and good wishes being sent your way. God Bless, MO Quote Link to comment Share on other sites More sharing options...
kimblanchard Posted March 30, 2004 Share Posted March 30, 2004 Carleen, Praying for the very BEST news for your dear Keith. Blessings to you both, Peg Quote Link to comment Share on other sites More sharing options...
Guest canuckwebgrrl Posted March 30, 2004 Share Posted March 30, 2004 Carleen, I'm thinking of you & Keith right now - sending positive vibes your way. Quote Link to comment Share on other sites More sharing options...
Frank Lamb Posted March 30, 2004 Share Posted March 30, 2004 CARLEEN and KEITH.Prayers are out there for both of you as well as for CONNIE B.All of you are going to have GOOD RESULTS ON YOUR SCANS. The only time I had those types of symptoms was when I was having an allergic reaction to one of the chemo meds.Mention to dr. soon.They don't belong there. GOOD LUCK TODAY FRANK L. Quote Link to comment Share on other sites More sharing options...
Elaine Posted March 30, 2004 Share Posted March 30, 2004 Carleen, Backorder? That is unfathomable. I am sending loads of good thoughts toward Keith and you, too. Keep us posted. Lots of love, Elaine Quote Link to comment Share on other sites More sharing options...
Hebbie Posted March 30, 2004 Share Posted March 30, 2004 Carleen, You and Keith never stray far from my thoughts and prayers, but I will say an extra prayer today for nothing but good news from this latest round of scans. Fondly, Heather Quote Link to comment Share on other sites More sharing options...
Lisa O Posted March 30, 2004 Share Posted March 30, 2004 adding my prayers.... Quote Link to comment Share on other sites More sharing options...
TheresaKB Posted March 30, 2004 Share Posted March 30, 2004 Carleen, Prayers coming... Theresa Quote Link to comment Share on other sites More sharing options...
karen335 Posted March 30, 2004 Share Posted March 30, 2004 Carleen You and Keith are always in my prayers. I will send up special prayers for him and will await your post with the results. Why is it taking so long for the chemo he needs. That is not right. Does it have to made from some type of special source. This is not acceptable from the doctors. This is his life, not theirs. I would be furious... Hoping it happens soon. Blessings, affection and hugs from So. California, Karen Quote Link to comment Share on other sites More sharing options...
Guest Phyllis Posted March 30, 2004 Share Posted March 30, 2004 Aren't they doing blood tests and exams in the meantime? I knew the last chemo I was on was not working in my own mind, but at least I saw the dotor on a monthly basis with weekly blood tests. That sounds bizarre that they could not get a chemo drug. Glad you are switching doctors. Maybe some of his symtoms are due to stress. I was just a basket case during the last trial I was on thinking it wasn't working and that was about 3-4 months. Once he starts this new clinical trial hopefully he will feel better quickly. Maybe he has just picked up a bug. I hope he feels better soon. Quote Link to comment Share on other sites More sharing options...
Tiny Posted March 30, 2004 Share Posted March 30, 2004 Carleen- Keep holding on tight and searching for any answers everywhere. My heart and prayers reach out to you and Keith. Let us know..... Quote Link to comment Share on other sites More sharing options...
Don Wood Posted March 30, 2004 Share Posted March 30, 2004 Prayers your way. Quote Link to comment Share on other sites More sharing options...
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