Jump to content

Another straw drifts by


Recommended Posts

Well here is where I stand. Met with the ONC today and we both agreed that my case is somewhat unique. My old main tumors have been dormant for about 9 months and only one tumor is active (lymph node). Past two CT scans show only the one tumor growing/changing. Even though I am staged at IV, we decided to maybe give radiation a shot at the one active tumor in the hopes the others are dead or worst case just slow down my progression. Soooooo, this Friday morn I get a PET and if it is clean, except for the one, then there is a good chance I will be a candidate for radiation. The Tumor Board is meeting tomorrow to discuss this option and the recommendation of my ONC. Another door is part way open, maybe I can squeeze through.

It’s kind of hard not to get your hopes up, I’m trying not to get too excited 8)

Luv ya all

Don’t ever give up


Link to comment
Share on other sites


Wishing for the PET test to show only the

best results.

Still a lot of fishing waiting for that big one

to bite, always hope in life for something good

to happen in all phase, fishing, health and happiness.

Will keep prayers on the way.



Link to comment
Share on other sites

Okay, one.....two......three..........we're all shoving it open as hard as we can! Let us know as soon as you can...........did it open wide?

You have an amazing medical team so I have confidence that they are going to pick the best treatment for YOU.

Take care of yourself,


Link to comment
Share on other sites

Join the conversation

You can post now and register later. If you have an account, sign in now to post with your account.

Reply to this topic...

×   Pasted as rich text.   Restore formatting

  Only 75 emoji are allowed.

×   Your link has been automatically embedded.   Display as a link instead

×   Your previous content has been restored.   Clear editor

×   You cannot paste images directly. Upload or insert images from URL.

  • Create New...

Important Information

By using this site, you agree to our Terms of Use.