kimblanchard Posted October 4, 2005 Share Posted October 4, 2005 Well here is where I stand. Met with the ONC today and we both agreed that my case is somewhat unique. My old main tumors have been dormant for about 9 months and only one tumor is active (lymph node). Past two CT scans show only the one tumor growing/changing. Even though I am staged at IV, we decided to maybe give radiation a shot at the one active tumor in the hopes the others are dead or worst case just slow down my progression. Soooooo, this Friday morn I get a PET and if it is clean, except for the one, then there is a good chance I will be a candidate for radiation. The Tumor Board is meeting tomorrow to discuss this option and the recommendation of my ONC. Another door is part way open, maybe I can squeeze through. It’s kind of hard not to get your hopes up, I’m trying not to get too excited Luv ya all Don’t ever give up jim Quote Link to comment Share on other sites More sharing options...
Leslie221 Posted October 5, 2005 Share Posted October 5, 2005 Wishing and hoping and praying that this all turns out the way you want it to! Kick that door ALL the way open! Thinking about you, Leslie Quote Link to comment Share on other sites More sharing options...
kamataca Posted October 5, 2005 Share Posted October 5, 2005 Kick down the door, knock out a wall...whatever it takes. My hopes are up for you, too. Isn't it funny what we start to wish for after awhile?!? Prayers for you. Kelly Quote Link to comment Share on other sites More sharing options...
Patkid Posted October 5, 2005 Share Posted October 5, 2005 We are behind you all the way, Jim. You are a one of a kind in more ways than tumors........... You are all the best of being unique!! Lots of love and support. Brian and Pat Quote Link to comment Share on other sites More sharing options...
Kasey Posted October 5, 2005 Share Posted October 5, 2005 Prayers are coming that the PET turns out to be dark with only that one exception so that door can fling open for treatment. Thinking of you, Jim. Kasey Quote Link to comment Share on other sites More sharing options...
Jyoung20 Posted October 5, 2005 Share Posted October 5, 2005 Jim, I truly hope everything turns out the way you want. GOD BLESS YOU!! Jamie Quote Link to comment Share on other sites More sharing options...
1bets1 Posted October 5, 2005 Share Posted October 5, 2005 Jim, I'll say a prayer for the best possible outcome for you. Betty Quote Link to comment Share on other sites More sharing options...
Don Wood Posted October 5, 2005 Share Posted October 5, 2005 Wishing you the best, Jim. Quote Link to comment Share on other sites More sharing options...
eppie Posted October 5, 2005 Share Posted October 5, 2005 Sending good thoughts to Jim. I know you will get through this. I am pulling for you! Quote Link to comment Share on other sites More sharing options...
CharlieD Posted October 5, 2005 Share Posted October 5, 2005 Jim, Hoping and praying the PET scan is favorable and you can give the radiation a shot. Keep pluggin and fishin. God Bless. CharlieD Quote Link to comment Share on other sites More sharing options...
shineladysue Posted October 5, 2005 Share Posted October 5, 2005 Jim, Sending more prayers your way. With all these prayers , that door should be opening real wide.. Take care and keep us informed. love, Sue Quote Link to comment Share on other sites More sharing options...
Treebywater Posted October 5, 2005 Share Posted October 5, 2005 SO Pulling for you, Jim!!! And praying too! Quote Link to comment Share on other sites More sharing options...
Ry Posted October 5, 2005 Share Posted October 5, 2005 Sounds like a good plan-- I hope all goes well and the radiation is a success. Quote Link to comment Share on other sites More sharing options...
daggiesmom Posted October 5, 2005 Share Posted October 5, 2005 This sounds so positive. Just like YOU. I wish and pray for the best for you. Keep us posted. You'll land this BIG FISH, I just know it!!!!!! Joanie Quote Link to comment Share on other sites More sharing options...
stand4hope Posted October 5, 2005 Share Posted October 5, 2005 Go, Jim, Go! If anybody can knock this disease to hell where it belongs, it would be you! Go get'em Tiger! Love, Peggy Quote Link to comment Share on other sites More sharing options...
Nushka Posted October 5, 2005 Share Posted October 5, 2005 Jim, I sure hope the tumor board agrees with your oncologist. I pray for good things in your future. We love you too. Nina Quote Link to comment Share on other sites More sharing options...
flacrakr Posted October 5, 2005 Share Posted October 5, 2005 Jim: Hopes and prayers here that the radiation does the trick. There's lots more fishing ahead. Quote Link to comment Share on other sites More sharing options...
francesbean Posted October 5, 2005 Share Posted October 5, 2005 Hoping and praying that radiation is a go! I have a question, though. Are dormant (for a certaing long period of time) and NED / NERD the same thing? Or does NED / NERD refer to clean scans only? Thanks and again, good luck! Quote Link to comment Share on other sites More sharing options...
J.C. Posted October 5, 2005 Share Posted October 5, 2005 Jim, Wishing for the PET test to show only the best results. Still a lot of fishing waiting for that big one to bite, always hope in life for something good to happen in all phase, fishing, health and happiness. Will keep prayers on the way. Hugs J.C. Quote Link to comment Share on other sites More sharing options...
ma's kid Posted October 5, 2005 Share Posted October 5, 2005 Prayers that the door is wide open! Libby Quote Link to comment Share on other sites More sharing options...
Darci Posted October 5, 2005 Share Posted October 5, 2005 Don't you ever give up either! Hopefully that door will swing wide open for you! Quote Link to comment Share on other sites More sharing options...
Ann Posted October 5, 2005 Share Posted October 5, 2005 Like others have said...kick down that door! Quote Link to comment Share on other sites More sharing options...
cindi o'h Posted October 5, 2005 Share Posted October 5, 2005 I like her plan. Sounds like it may work out for you, Jimben. Sure hope so! She is a good worker. I wish all of us had docs that were as thoughtful as she is. Crossing everything that the board will be in agreement. Cindi o'h Quote Link to comment Share on other sites More sharing options...
Fay A. Posted October 5, 2005 Share Posted October 5, 2005 I'm praying, keeping all movable body parts crossed that what you need to have happen DOES happen. Quote Link to comment Share on other sites More sharing options...
LynneH Posted October 5, 2005 Share Posted October 5, 2005 Okay, one.....two......three..........we're all shoving it open as hard as we can! Let us know as soon as you can...........did it open wide? You have an amazing medical team so I have confidence that they are going to pick the best treatment for YOU. Take care of yourself, Lynne Quote Link to comment Share on other sites More sharing options...
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