cindi o'h Posted October 8, 2005 Share Posted October 8, 2005 Friends Saw the surgeon on Friday. I was looking at a pleural effusion on the chest xray. I had only seen them on a CT scan. It does look different on an xray. As you may recall, I spent 6 days in the hospital and major VATS surgery to try to resolve this in early Sept. Dr. says that a chylothorax presents a more tenacious problem. He suggested ligating the the thingy that it dripping chyle fluid into my lung. However, he said to accomplish this, he would have to break one of my ribs and lay me open from here to there, the same as a thoracotomy. We, neither of us, liked the sounds of that. I told him that I think that there is more. I told him that I think there is more going on with me to cause the SOB. Maybe my heart. Maybe the pulm artery. There is alot of scar tissue from the radiation around the pulm. artery. Maybe it is all the scarring of my lung. I don't know, but I would like to know. I do well if I stay still. I just can't move. Sometimes just turning over in bed leaves me breathless. Something is going on. Walking any faster than a snail leaves me gasping for air. This has been going on for at least two years. He agreed to help me. I am to be admitted on Monday for a thorough going over. Can't wait! I am hoping that the source of my problem will be discovered and fixed and then I can get on with the activities I used to do. Like tying my shoes. I am bringing the notebook this time, so I can stay busy in there. Thanks for all your prayers and well wishes. Cindi Quote Link to comment Share on other sites More sharing options...
Kasey Posted October 8, 2005 Share Posted October 8, 2005 Okay Miss Cindi!!!! Shame on you for pretending to be better than you really are! SOOOOOOOOOO I HOPE this time you and the surgeon can get to the bottom of this. I will pray even harder for you (if that is possible) that there is some resolution to this probem. Does this mean that we will not be hearing from you for a while? PLEASE keep us up to date, Cindi. We want your breath restored and you feeling well. Love, Kasey Quote Link to comment Share on other sites More sharing options...
kimblanchard Posted October 8, 2005 Share Posted October 8, 2005 Ok Hon, I'll be right there on your shoulder, watching over you.....And Vinnie and Tony are on stand by with the ball bats to take out some knee caps if you don't get the answers you need. Luv jim Quote Link to comment Share on other sites More sharing options...
LynneH Posted October 8, 2005 Share Posted October 8, 2005 Cindi, I really don't like it when you are away, but if someone can give you relief then it is a small sacrifice that we will have to live with. Perhaps that is an electronic notebook you are taking so you can check our "good wishes" while you wait for the next poking and prodding? Of course, you could just use this time to rest and take it easy and know that you will be in our thoughts, always. Take care of yourself and let the nurses help too! Lynne Quote Link to comment Share on other sites More sharing options...
tnmynatt Posted October 8, 2005 Share Posted October 8, 2005 Cindi, Praying for you to get answers and relief from your SOB. Praying for the doctors to have wisdom and persistence. Take care, girl! Quote Link to comment Share on other sites More sharing options...
ma's kid Posted October 8, 2005 Share Posted October 8, 2005 You've got my prayers as well, (((Cindi))) Libby Quote Link to comment Share on other sites More sharing options...
J.C. Posted October 8, 2005 Share Posted October 8, 2005 Cindi, My spirit will be with you all week. Sending you warm wishes that you will soon be feeling much better. Will keep your candle burning and prayers going your way. Love Jackie Quote Link to comment Share on other sites More sharing options...
Patkid Posted October 8, 2005 Share Posted October 8, 2005 Cindi, What a wonderful reassurance that he is 'going to help you'. We trust him to do so. Please know we are with you, we care and we have you firmly in prayer. Much love and all positive thoughts! Brat Quote Link to comment Share on other sites More sharing options...
kimblanchard Posted October 8, 2005 Share Posted October 8, 2005 Cindy: Sounds like you have been through a heck of a time...also sounds like your not stopping till you get to the bottom of this. Good for you! We know our bodies best, right? I'll be thinking of you and praying for the best outcome possible. Vicky Quote Link to comment Share on other sites More sharing options...
Kaffie Posted October 9, 2005 Share Posted October 9, 2005 Cindi, I'm so glad they are finally going to find out what is going on. Sheesh, two years is a little bit too long to go without breath Will be looking for updates on what's going on and praying all goes well and the answers turn out to be an easy fix. Kathy Quote Link to comment Share on other sites More sharing options...
Fay A. Posted October 9, 2005 Share Posted October 9, 2005 Having some recent experience dealing with similar issues you have to know that I'm praying and keeping my fingers crossed that they find answers and can help you to breathe easier very soon. I've sent a private message. Quote Link to comment Share on other sites More sharing options...
TAnn Posted October 9, 2005 Share Posted October 9, 2005 Cindi, I hate to hear this. I was hoping they took care of this fluid issue with the talc procedure. On the other hand, I hope it is just fluid causing your SOB instead of heart problems. Either way, I'm praying for you! TAnn Quote Link to comment Share on other sites More sharing options...
carolhg Posted October 9, 2005 Share Posted October 9, 2005 Prayers coming your way Cindi. Take care! Carol Quote Link to comment Share on other sites More sharing options...
shineladysue Posted October 9, 2005 Share Posted October 9, 2005 Cindi, You have my prayers that you will get answers this time. It's such a helpless feeling when you don't know why things are happening to you. You have been trying to get someone to help you for a long time. Praying this trip yields plenty of results and better yet, solutions. Keep us informed. Love ya, Sue Quote Link to comment Share on other sites More sharing options...
Treebywater Posted October 9, 2005 Share Posted October 9, 2005 Many prayers being said for you, Cindi! I wish Carolyn and I could come visit and give you smooches... Take care of yourself and let us know how you are when you're able. I NEED my Cindi'oh fixes! Quote Link to comment Share on other sites More sharing options...
CharlieD Posted October 9, 2005 Share Posted October 9, 2005 Cindi, I truly hope and pray that they get to the bottom of this once and for all. Yo've suffered long enough with it. Praying for you my friend. Git R Done! CharlieD Quote Link to comment Share on other sites More sharing options...
Maryanne Posted October 9, 2005 Share Posted October 9, 2005 Darn Cynd, don'tlike that news. Didn't know you can't even tie a shoe without getting SOB. You are right girlfriend, we have to find out once and for all what is causing this and get it fixed fast. I don't like you being so SOB. Not our Cynd... no siree..... Will be lighting a white healing candle for you. Will be thinking of you and sending out healing prayers. Hang in there. You will get an answer. Maryanne Quote Link to comment Share on other sites More sharing options...
Darci Posted October 9, 2005 Share Posted October 9, 2005 Cindi, I haven't been around here too long, but I know that things will not be the same if you are away for a while...you have an amazing spirit, and are so supportive of everyone here. I am hoping that the surgeon will be able to figure out what is going on...and fix it! Be sure to keep us posted, if you can. Quote Link to comment Share on other sites More sharing options...
Don Wood Posted October 9, 2005 Share Posted October 9, 2005 Prayers comin'. Quote Link to comment Share on other sites More sharing options...
stand4hope Posted October 9, 2005 Share Posted October 9, 2005 Dear Cindi, I ditto Kasey's post. Shame on you for not telling us you were still having SOB problems that bad. I am really glad you are going in to get this figured out and get it fixed. You must be miserable being that short of breath. My prayers are with you for success next week and soon! Love, Peggy Quote Link to comment Share on other sites More sharing options...
mayos Posted October 9, 2005 Share Posted October 9, 2005 Cindi...I'm sorry to hear of your problems with SOB. Since I've been diagnosed with Pulmonary Artery Hypertension for a number of years..I know how long and frustrating the dx process can be. Contact me if I can help. Quote Link to comment Share on other sites More sharing options...
Nushka Posted October 9, 2005 Share Posted October 9, 2005 Cindi, Now you tell us. Here it has been 2 years and you never told us how bad it was. My prayers can be much more specific now and maybe that will make some difference. I hope that you and your doc can come up with a solution quickly and that it does NOT require cutting you from here to there. Stay in touch as you can. We all need you Cindi. By the way, who is minding the pub? Nina Quote Link to comment Share on other sites More sharing options...
NancyT Posted October 9, 2005 Share Posted October 9, 2005 Cindi, Sending prayers and hoping things go well for you! NancyT Quote Link to comment Share on other sites More sharing options...
slinaresholz Posted October 9, 2005 Share Posted October 9, 2005 Cindy, Praying that they can help you and you will be feeling better. Take care! SHARON Quote Link to comment Share on other sites More sharing options...
flacrakr Posted October 9, 2005 Share Posted October 9, 2005 Cindi: You will be missed. My hopes and prayers are with you throughout your 'thorough going over' that the doctors find and fix the cause of your SOB. Quote Link to comment Share on other sites More sharing options...
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