Rower Michelle Posted May 3, 2019 Share Posted May 3, 2019 Hey Everybody! Yesterday when I saw the Hippie doctor at acupuncture he "leaked the radiology results". Brain MRI is negative woo hoo, CT Chest, STABLE, STABLE and STABLE. He was really happy with the results. So then I saw the onc and the first thing he said was that he disagreed with the radiology report. For about ten seconds my heart just sank. Doc said, I think your lungs look nearly normal and the tumor area looks smaller to me. He showed my the comparison CT scans going all the way back to September. Alectinib is doing the job and his feedback thus far, is EXCELLENT response. Whatever is left in the lung junk is probably scar tissue. In words of our fearless leader Tom- I will stay the course having graduated to scans every three months. Onward. Jersey strong, Michelle Link to comment Share on other sites More sharing options...
Curt Posted May 3, 2019 Share Posted May 3, 2019 Amazing! You had me nervous for half a sentence there. Looks like the spa treatments are working, keep them up. Link to comment Share on other sites More sharing options...
Rower Michelle Posted May 3, 2019 Author Share Posted May 3, 2019 Yep, it's like the old Green acres theme song- "Spa living is the life for me!" LOL! Link to comment Share on other sites More sharing options...
Lisa L Posted May 3, 2019 Share Posted May 3, 2019 Yay yay yay ...did I say yay....I was holding my breath reading your post. I’m so happy for you sweets.... I’m telling you it’s the spa days that just make you chill enough to hear the results. ❤️ Link to comment Share on other sites More sharing options...
MBinOregon Posted May 3, 2019 Share Posted May 3, 2019 Michelle! So happy to hear! Congrats! 😍👍🤗 (happy + thumbs up + hug) MB Link to comment Share on other sites More sharing options...
BridgetO Posted May 3, 2019 Share Posted May 3, 2019 Woo hoo! Yay for Michelle and alectenib! Link to comment Share on other sites More sharing options...
LouT Posted May 4, 2019 Share Posted May 4, 2019 This is such great news Michelle, although I also gasped when I read that your oncologist disagreed... But what a great disagreement it turned out to be. Congratulations on the results and I pray that they keep on coming in like this for you. Lou Link to comment Share on other sites More sharing options...
LexieCat Posted May 4, 2019 Share Posted May 4, 2019 Great news, though I think your oncologist was a bit mean, to mess with you like that. But so glad for you that the news is so good! Link to comment Share on other sites More sharing options...
Rower Michelle Posted May 4, 2019 Author Share Posted May 4, 2019 He didn’t know that I was sneaky & got the results ahead of time. Doc didn’t want to read the radiologist impression to me because he disagreed with the findings. I usually pester him for the all the details & this time he said nope! I’m good with that! 🤪 Link to comment Share on other sites More sharing options...
LexieCat Posted May 4, 2019 Share Posted May 4, 2019 Oh, OK, I thought it was like, "Here's what the radiologist says, but I disagree--just kidding!" These appointments are nothing to be messing around with! I always love how my oncologist gives me good news before the door's even shut behind him. Link to comment Share on other sites More sharing options...
Barb1260 Posted May 4, 2019 Share Posted May 4, 2019 Great news! Keep up the good work Jersey girl. We are tough aren't we? Link to comment Share on other sites More sharing options...
Tom Galli Posted May 4, 2019 Share Posted May 4, 2019 Michelle, Wonderful news! Stay the course. Tom Link to comment Share on other sites More sharing options...
ale Posted May 4, 2019 Share Posted May 4, 2019 Very well, I'm happy for you, Michelle!! Kiss every One from Italy Link to comment Share on other sites More sharing options...
Rower Michelle Posted May 4, 2019 Author Share Posted May 4, 2019 Grazi Ale! I appreciate the support! Link to comment Share on other sites More sharing options...
Steff Posted May 5, 2019 Share Posted May 5, 2019 Great work Michelle, congrats! Link to comment Share on other sites More sharing options...
PaulaC Posted May 5, 2019 Share Posted May 5, 2019 Awesome news ❤️ Link to comment Share on other sites More sharing options...
hope16 Posted May 6, 2019 Share Posted May 6, 2019 Wow...congrats Michelle...love the result Link to comment Share on other sites More sharing options...
Tomm Posted May 22, 2019 Share Posted May 22, 2019 Michelle that's great news!! you and your team have really done the research and got the results of progress Link to comment Share on other sites More sharing options...
Rower Michelle Posted May 22, 2019 Author Share Posted May 22, 2019 Thanks Tomm! All is well here. I’m still on the hunt for a replacement hippie doc- interviewed one and have two more set up. It’s hard to find someone who understands this LC mutant world of TKIs. I’m heading to the University in Iowa City in July which sounds far away but “only” the next State North to interview their doc. I was surprised to learn that IA has a large presentation of LC (radon). And so the beat goes on..... Link to comment Share on other sites More sharing options...
ColleenRae Posted May 29, 2019 Share Posted May 29, 2019 Michelle, I have been "absent" from this site for far too long and need to catch up... I just read your post here and I am thrilled for you! This is wonderful news. Very happy for you. You have continued to stay so upbeat, pro-active and informed re: your treatment... utterly amazing to me. Very, very happy news for me to start with / get back to... Link to comment Share on other sites More sharing options...
Rower Michelle Posted May 29, 2019 Author Share Posted May 29, 2019 So glad you’re back! Greetings from the Rocky Mountains! Keep us posted. Link to comment Share on other sites More sharing options...
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