sharonjo Posted January 10, 2007 Posted January 10, 2007 Well, I saw my onc yesterday and got the results of the MRI I had taken right after Christmas. Unfortunately, the spots they saw on the CT are new liver mets - the MRI confirmed this. So now I am going back on chemo, but am going to do a Phase 3 trial this time. I will be randomized to either Taxotere or Almita with or without the study drug Cetuximab (Erbitux). Anyone have experience with any of these drugs? The Cetuximab is a targeted therapy and supposed to have minimal side effects. I am wondering about the chemo drugs Taxotere and Alimita. I am not going to start treatment until 2/19, as I have a Disney trip scheduled for early February, and I would miss 2 treatments while away. So I am very happy about that, cause I don't want to be tired or nauseaus or in pain while in the happiest place on earth!!!! And I feel super right now - so I'll go off to Florida and then come back and kick some cancer butt!!! Sharon Quote
terriep Posted January 10, 2007 Posted January 10, 2007 Sharon - Sounds like you have a great plan of attack! Enjoy Disney - sounds lovely and WARM!! Have a great trip! Quote
ernrol Posted January 10, 2007 Posted January 10, 2007 sharon, Sounds like a good trial to be in. we will pray for good results. I am in Orlando now going to a Steven Ministry leaders training. I hope it warms up for you. It's a little cool for me now. I am sure it will have a great time. Stay positive, Ernie Quote
Frank Lamb Posted January 10, 2007 Posted January 10, 2007 Sounds like a great plan of attack.Especially starting out with the Fla. vacation. Wishing you the best of luck with it. Quote
Maryanne Posted January 10, 2007 Posted January 10, 2007 Hi Sharon, I am so sorry to hear about your new mets and also that you have to start that blasted chemo again. But you have a incredible attitude. With everything you have been through in your life ( and that is much too much for one person) you just keep on fighting. Your amazing, and with your attitude, you will prevail. I am so proud of you. Good luck with your new treatments. You are smart to wait till you come home. Have a great time in Disney World with your grandchildren. If anybody deserves a break it certainly is you!!!!! Thinking of you girlfriend.... Maryanne Quote
Nushka Posted January 10, 2007 Posted January 10, 2007 No experience with any of the drugs but wishing you great luck with them. I hope you enjoy Disneyworld..one of the really neat places in the USA as far as entertaining. Have a wonderful time and come home with your boxing gloves on. Nina Quote
Connie B Posted January 10, 2007 Posted January 10, 2007 1. I am sorry to hear about the new mets. 2. I am glad to hear they have a plan in place for you and I am praying and hopeful it will stop this bugger in it's tracks. 3. I am so happy to hear your going to Disney! How fun is that? YOU GO GIRL!! Have a GREAT TIME! 4. I just want you to know your in my thoughts and prayers each and every day! Keep that fighting attitude! It's half the battle, as you well know! ((((((((((SHARON)))))))))))) Quote
Tom K Posted January 10, 2007 Posted January 10, 2007 Hi Sharon, I don’t have experience with any of the drugs you mentioned but I am so sorry to hear about the liver mets. Have your doctors considered a biopsy just to be sure? When all the imagining studies indicated I had liver mets, it was the biopsy that provided the definitive answer. Doing the biopsy was somewhat controversial because the other doctors thought the imaging studies were sufficient evidence. But my primary Onc argued my case before the tumor board and the surgeons and radiologists finally agreed. The surgeon had me sign a release to allow him to resect my liver because he fully expected to find cancer. So I am a pretty big proponent of getting biopsies whenever possible. I hope you enjoy your trip to Florida. Like the rest of the East Coast we have been unusually warm this winter, so the temperatures will likely be in the mid eighties when you visit next month. Quote
TracyD Posted January 10, 2007 Posted January 10, 2007 Sharon, Sorry to hear about the new mets and that you are going back to chemo, that's just lousy. It sounds like you've got a good plan and a super attitude to take you through this. Enjoy your Disney trip. Take the time to relax and enjoy (I know, there's not much time to relax in Disney!), then come back with both fists swinging! Best of luck, Tracy Quote
Geri Posted January 10, 2007 Posted January 10, 2007 Sorry about your results but it sounds like all your ducks are in a row. Have a wonderful holiday, Geri Quote
mamasbabygirl Posted January 10, 2007 Posted January 10, 2007 YOu are a tough cookie and an inspirtation for this board. I think this sounds like the perfect plan of attack. Have an awesome trip!!! Quote
melindasue37 Posted January 10, 2007 Posted January 10, 2007 I'm very sorry to hear about the liver mets but with your attitude you'll knock em' out in NO time! Have a wonderful time in Florida. Quote
MsC1210 Posted January 10, 2007 Posted January 10, 2007 Sharon Keeping you in my thoughts and prayers. Have a great trip. Chris Quote
Nick C Posted January 10, 2007 Posted January 10, 2007 Sharon, Thanks for the update...sorry the news isn't better. But you have a GREAT plan in place to certainly whoop up on this thing! And enjoy your trip...it'll be great! Quote
Don M Posted January 10, 2007 Posted January 10, 2007 Sharon; I am sorry to hear of your progression. i hope the new treatment brings you good results and that you have a great time on your trip. Don M Quote
Shar Posted January 10, 2007 Posted January 10, 2007 Enjoy the holiday Sharon. Sorry to hear of the progression but it sounds as though you have a great plan. All the best and I'll be thinking of you, Sharon Quote
trish2418 Posted January 10, 2007 Posted January 10, 2007 So sorry to hear about the mets, Sharon. Enjoy Disney and come back ready to fight! I've had buckets of Taxotere -- starts off fine but does a number on the blood counts over time. However, it really knocked the bejezus out of my tumor, so I won't complain about it too much. Good luck with treatment; I'll be praying for great results. Trish Quote
Linda661 Posted January 12, 2007 Posted January 12, 2007 Enjoy your trip to the fullest. Sounds like you have a great plan in place -- Linda Quote
asmakis Posted January 12, 2007 Posted January 12, 2007 My dad was on Alimta, and he did pretty well except for some fatigue. He never got nauseous though Best of luck to you and your fight- have a great trip too! Quote
marym Posted January 12, 2007 Posted January 12, 2007 Hi Sharon. First, enjoy the trip! Then, darn, more chemo..but we have a plan. I have been on taxotere and alimta. Both were fairly easy for me as far as side effects went, For both, I needed some extra sleep and the taxotere also seemed to cause a rash (it's always hard to be certain if it was the chemo or something else). The alimta had no effect, maybe slight progression. The taxotere seemed to stay the same size but it was interesting that the tumor was identified as different dimensions. Good luck. Mary Quote
cindi o'h Posted January 14, 2007 Posted January 14, 2007 Sharon, I had the taxotere. Something did work for me. Could it have been the taxotere? (why not??) Many get bone pain and general malaise with it. I lost a toenail on it. Have fun on your trip. Glad you are planned for success. Cindi o'h Quote
jang Posted January 15, 2007 Posted January 15, 2007 Sharon, Enjoy your vacation...we will be here for you when you get back. Quote
patscan Posted January 16, 2007 Posted January 16, 2007 I'm sorry to hear this news...but I know you can beat this! You've been a real inspiration to my mom and I and we will keep you in our prayers. Enjoy Disneyland--I'm glad you are sticking with your travel plans...cancer can get it's butt kicked when you return. XOX Candy Quote
carolhg Posted January 29, 2007 Posted January 29, 2007 I am praying for the very best treatment results for you Sharon. Carol Quote
dchurchi Posted January 29, 2007 Posted January 29, 2007 Sharon, Sorry I am just now reading about the fact you are back in the fight. Alan has not had either of those drugs so I can not add any info there. Praying you have great results with limited side effects. Have a Blast at Disney world Quote
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